New here

Hi Butterflyrose!!

I'm sorry you had lousy medical care but at least you found someone who will treat you with the respect you deserve. One thing I would do, but this is only 'my' opinion here... I would write to the AMA and/or whomever licenses doctors in your state and share this story with them. They can not play games with you about informing you of what ailments you have. It's NOT their choice to withhold information. That does irk me like crazy. By sending a letter, not an email, they will at least be talked to about the issue and if others have written they might just go a bit further with this person.

Why do I get so fired up with this? My Father and Mother had Group Health (or as we around here call it Group Death) health care, such as it was. They discovered dad had prostate cancer and failed to 'mention' it to him for 2-3 years!! When they did finally bring it up because of symptoms he was having their comment was, "Something else will kill you first!". While waiting for that 'something else' the prostate cancer took his life. It metastasized into the blood stream, bones, etc. Even though they tried radiation and chemo nothing helped and he died with Hospice care at home. One thing about prostate cancer is that it's about the most excruciatingly painful way to die...so the nurses told us. If he had known earlier he would have had the choice of treatment or not. So I don't take this lightly any more.

I do hope you have great results working with this new doc. She sounds like a gem!
Chutz

Oh the thought is in my mind belive me. I had a "HMO" Kaiser, kill my husband and all the Dr could say was we are a hmo, we are not in saving lives just mantaing them. At the time nobody could sue them as they were "to big" to sue and all the lawyers wanted over ten grand just to look at the case. When the walls were broke to sue them it was to late.

There is way more to this Dr that is going on that I can say. I would be fore the hour telling my story with them. It took me 3 demand to get my reports. They were so messed up it was not funny, they almost got me kicked off my disablty by saying I was working full time and married.

Thanks Butterflyrose

Hi, Butterflyrose, and welcome!  I'm glad you found us and joined in.  I agree with all of the above.  We do have to be active participants in our health care.  I ask a bazillion questions every time I go to the doctor's office.  I make a list and also request results of any and all tests they do.  After all, I hired the doctor to take care of me and I paid for the tests.  They can't keep that stuff away from you.  I had major surgery a while back and contacted the hospital and asked for a copy of the operative report.  This tells EXACTLY what happened to me on the operating table.  I have that in my health file, too.  So, don't settle.  Be on top of everything.  You know your body better then anyone.

 

Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good information about fibro there and you will learn a lot.

 

Don't hesitate to ask questions because we are here to help you.  I'm so happy you are here and I hope to hear more from you soon.

 

Sherrine

Hi butterflyrose, welcome to the fibrofamily! Being proactive about your healthcare
is the first step in getting answers. I used to think my Doc would think I was a pain in
the butt because I asked so many questions but he told me he was glad that I researched things because I had an understanding of differant meds and possible
side effects.

I'm glad you have joined our family. We are here to support one another and for
me it has been a blessing. Someone will always be here for you! Take Care!!!

Hugs, Robin

I feel your anger, honestly. I found out that my GP tested me for Hepatitis C 12 or more years ago and never told me I was positive. I have since treated and cleared the live virus but it would have been nice to have known.

I went to a new doc that did not believe in fibro, just changed my anti Depressant, told me that my pain was from depression.

I am back at the original doc after a long discussion with him and am totally proactive in my care. Good Luck