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muscle fatigue is too much.

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Posted 6/27/2010 6:49 PM (GMT 0)
I've been through a lot of stress this year, supposedly good stress but still. 

We will be grandparents for the first time,  with (twins) and a single within months of each other.

We bought a house and are in the process of finalizing the sale of our house. 

I can't function very good.  I 've been packing little by little but it's like someone took the life out of my muscles, they ache just a little, but they are so fatigued that it feels extremely abnormal.  I go to sleep exhausted and wake exhausted.  I think I'm having too many wake periods during the night because when I'm tired I feel very weepy the next day and hurt more as well.  I'm having a lot of weepy and painful days.

I often wondered if I have chronic fatigue instead of the diagnosed myalgia?.  How does one know the difference or are the two related in some of the symptoms?  Call it what you will, the one thing that is evident is the aching and muscle exhaustion. 

 

Posted 6/27/2010 7:58 PM (GMT 0)
Hi dorri,

How exciting that you are going to be a grandmother for the first time, and wow, 3 around the same time! My mom says that being a grandmother is the best, and she thinks that should have come first because it is so much more fun. :)

I'm sorry you are not feeling well though. It seems like you are dealing with a lot of things all at once. It is certainly possible to be misdiagnosed. There are a number of symptoms that are common to both. It could also be that because you are extra busy right now with everything going on in your life, you are just in a flare? Have you talked to your doctor about your extreme fatigue? I hope you feel better soon! Try to rest up a bit more and take care of you as much as you can. Is there any chance of getting some help with your packing?
Posted 6/27/2010 8:00 PM (GMT 0)
I HATE that feeling - I get it, too! It comes over me like a wave and, like you said, it's like someone took the life out of the muscles. No rhyme or reason why most of the time. The bad pain I can understand better, because usually it's when I've done too much. But this is different. I recently had my blood sugar tested because it sounded kind of like that, but that's not it. Some of the symptoms of Fibro and CF do overlap, but someone else will probably know more.
Posted 6/27/2010 8:07 PM (GMT 0)
It is often believed that fibromyalgia and chronic fatigue are one of the same. I have read that in a couple of different places. But with fibromyalgia, you can have chronic fatigue with pain. I do. I take adderall for it. And it keeps me awake during the day. But with the muscle pain and fatigue. Try to do some gentle stretching throughout the day and keep well hydrated. I find that magnesium helps my muscles feel more normal.

I spent two years in bed with chronic fatigue until I finally found a psychiatrist that would prescribe something for my fatigue. I couldn't walk, I could barely stand up. All I did was sleep. I was in bed constantly unless I had to go to the bathroom or get something to eat. It was horrible. I hope that yours doesn't get like that. But I would be talking to the doctor about it and let them know that you can't possibly go on this way anymore. Hopefully they will give you something for energy.

Best wishes to you.

Hugs, Karen
Posted 6/27/2010 10:25 PM (GMT 0)
Thanks for the replies, my doctor has run a series of tests, and some more tests recently. I have to go to the doctor's tomorrow for the results. In the past nothing has shown up even though at times I was in a lot of pain during the tests. It's hard to understand why the tests don't show anything, but I know the pain is real, not imagined.
I do have one problem with anti inflammatory drugs because of the CD I suffer from, the doctor's are shying away giving me any outside of prednisone in fear that it will aggravate the crohn's. I found Tylenol does not help.
Posted 6/28/2010 12:40 PM (GMT 0)
Hi dorri, Congrats on being a new grandma! I love being Grammy1

You certainally had some change this year and even good change is stressful. The
lack of sleep combined with the added new stressors can quickly zap you of energy.

The B vitamins are wonderful for stress and B-12 will help re-energize you. My rheumy
suggested that I take 5000 mcgs daily of B-12 for my fatigue and I have noticed an
improvement. When you have a lot of stress your muscles are not getting enough
blood flow because of all the extra adrenaline and cortisol that is being pumped into
your bloodstream. If you take some time for a walk you can de-stress yourself and
energize yourself at the same time. I do deep breathing exercises and meditation
daily to help with the stress.

Hope things will calm down soon and that your sleep will improve. Enjoy those
precious babies!

hugs, Robin
Posted 6/28/2010 4:41 PM (GMT 0)
Thanks,,,hmm..do you think, maybe you are right.I've been flying in high gear for a couple of weeks now, so I know my cortisol levels are sky high. My muscles were already weak before this began, so each day I'm adding more stress on them. I was wondering the other day if I'm going to crash after things slow down. Hope not.
Posted 6/28/2010 11:30 PM (GMT 0)
I understand how you feel. I have been where you are. The best I can tell ya is try really hard to allow yourself some down time during the day. What is the dr. gonna do about your cortisol levels? When my daughters levels were high she was anxious, gained weight, did not sleep well and was very depressed.

I hope that you are able to enjoy the grandchildren without this terrible fatigue.
Posted 6/28/2010 11:55 PM (GMT 0)
Thank you for understanding, I got my test results back and the doctor said they look okay so I asked him why I was hurting, weak and stiff. He said he thinks it's crohn's related and gave me some tramacet to try and see if it works without irritating the crohn's. He didn't mention that it could be FM pain, although he does have the report sent to him by a rheumatologist who diagnosed me with it? I wish there was a specific blood test that would confirm FM so the doctor wouldn't have to hee and haw about what it could be?
Posted 7/13/2010 1:53 AM (GMT 0)
dorri What you are going through is tough.Ive had fribo for some 25 years i have pain all the time and yes im tired all the time.So bad i cant get out of bed some times.Get on a high fiber diet stay away from sugars and no matter what keep moving.God knows how bad it hurts and just trying to get the strenth to move is hard.but dont let this fibro whip you sonny boy
Posted 7/13/2010 3:34 AM (GMT 0)
Thanks, I cannot take high fiber because of crohn's disease but can take some of your other advice.  I've been moving everyday packing up our house for next weekend's moving day, and today I cried because I feel like I'm going to drop of exhaustion.  A nights sleep no longer recovers my fatigued muscles, they hurt and are stiff all the time with little to no relief.  I'm angry at myself because I can no longer do what I use to.     
Posted 7/13/2010 3:49 AM (GMT 0)
dorri, anger is part of the grieving process of mourning the loss of good health, many
of us went through it. I think it is natural to be angry but eventually you do learn to
accept your dx. I find taking one day at a time helps. You will find what works for you
and find that you can still enjoy life. I am so sorry you are hurting and hope you

find relief soon. I do understand and wish you well!

Hugs, Robin

Posted 7/13/2010 5:15 AM (GMT 0)
I have to agree with a lot that has been said..well what I was able to skim through given my poor concentration :/

Yes one definitely has to take it one day at a time with FMS. Despite the pain, the worst thing in the world is laying up in bed all day long. I did that for a whole year. In pain of course. Literally, I was sleeping beauty! I didn't barely eat at all. I still barely eat. I am also an IBD'r with a sensitive gut. Compulsive with reading food nutritional labels, oh yea thats me!


I am still in pain now. And sometimes never feel rested. But the Rheumy is trying to help out some. He wrote a RX for PT/Aqua Therapy. The Heated Pool works well for me.
So I am slightly motivated now that I am doing the PT...(i make my appointments late in the day!)

I guess that's it. I always take my Lyrica nightly. And there's the medicine for pain, sleep, spasms depending on how bad the body wants to hate me at any given moment. Speaking of sleep (*looking at clock, almost 1:30AM..)

Feel better Dor..

Post Edited (archiestyles) : 7/12/2010 11:23:04 PM (GMT-6)

Posted 7/13/2010 2:41 PM (GMT 0)
Thanks all,
I really do appreciate the input especially since I know that you are all going through the same pain.
The one thing I'm learning is that pushing the muscles to extreme does not strengthen them or take away the pain and stiffness, it makes it worse!.
Isn't the general rule for those without FM for overworked excercised muscles is not to rest, but to do more exercise and the pain goes away?
Packing, I consider to be regular use of muscle activity, moving and bending a lot and doing some light lifting. It feels like I ran a marathon, or a truck ran me over. Everything hurts and sleeping it off does not bring relief.
I do get a monthly B-12 injection but I'm not able to take the B vitamin supplements as something in them triggers off the crohn's. I tried several brands and forms hoping that I would be able to take them, but my body reacts with more inflammation. I'm also drug sensitive to a lot and have to start at super small doses, or I fall asleep. It hits me like I took several.
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