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Fibromyalgia
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Posted 9/15/2010 9:16 AM (GMT 0)
I've been struggling with fibromyalgia for years now and I have always heard from my father "I know that you have fibromyalgia but you really should get a job and help your husband" First of all its none of his business about who works in my family, my husband likes being the bread winner and I don't ask anyone for money because we don't live beyond our means. I worked up until the point that I felt that I couldn't and my husband feels I shouldn't work either. Anyway my father called me yesterday and said "you know I saw a tv program about fibromyalgia in the dr's office and it really is a real disease." I said I know dad I've been telling you that for years. You think I wanted to go from active and happy to sedentary and miserable?I'm not making this up. I find it funny that if its on tv people will believe it but if I tell them about it, its just not plausible.
Posted 9/15/2010 10:58 AM (GMT 0)
I've noticed more advertising about fibromyalogia lately both on tv and internet. It's a good thing to see more about our illness.
Posted 9/15/2010 2:04 PM (GMT 0)
I'm glad too. I hope as time goes on people that are going through what we are, don't have to wait years to be diagnosed.
Posted 9/15/2010 2:06 PM (GMT 0)
My mother knows I have it but never asks how I am doing, ever. She will ask about everyone else but me. She can be so hurtful. I wonder why some parents won't take what we say as the truth, has to take someone else to convince them that something is really wrong with us. I hope now that your dad sees that this is a real illness he will be more supportive.
Posted 9/15/2010 3:04 PM (GMT 0)
I think he finally got it because the program was being shown in a doctor's office.  I wish all doctors would show that in the waiting rooms.  It sure would help us. 

 

I'm glad that your Dad finally is starting to understand.

 

Sherrine

Posted 9/15/2010 3:30 PM (GMT 0)
dc,

Yes, it is hurtful.  Very.  My parents were very good about it, but some of my best friends aren't.  I notice their eyes glaze over when I start talking about how I feel.  It's like they're afraid if they validate what I'm saying, I'll just feed on that and pretty soon, I'll be a total nutjob, imagining all kinds of pains and disabilities and they'll never get me to shut up. 

I recently had a nurse in a hospital - I was visiting someone - tell me that it was a wastebasket diagnosis.  So we do have a long way to go.

Debbie

Posted 9/15/2010 3:43 PM (GMT 0)
My Dad was one of my biggest supporters and the one who most inspired me
to "keep on keep'n on." I think he is still cheering me on from Heaven.

Fibro doesn't get the respect it deserves but each time it the general public
sees an informational ad, awareness is being spread. Someday it will get the
respect it deserves and maybe even a cure. I'm still holding out for one!!!

Hugs, Robin
Posted 9/17/2010 3:01 AM (GMT 0)
Glad your dad is starting to come around on fibromyalgia being real. im in the same boat my parents had never heard of it so they think its something people make up for atention , so i spend most my time trying so hard to hide the pain if they see me hurting they are so hurtful .. i think since its never got much atention so many dont think its real cause they have never heard of it.
Posted 9/17/2010 3:18 AM (GMT 0)
I am the same way as you Lisa. I hold out on telling people at work how much pain I am in or exhausted I am because I still am affraid of someone looking at me like how my primary Dr did. Like I was a complete whack-job! Needless to say, I don't consider that Dr to be my primary anymore and I guess I just try to grin and bear it while I'm at work, but they do wonder why I get up and keep walking around...lol.

I am very lucky to have my family as a great support system. I think the only person that really doesn't get it is my sister and believe it or not she is a nurse! She never asks how I am doing or anything. My Mom on the other hand completely understands and gives me alot of support. She even texts me almost every morning to ask me how I am feeling today and she has never read a single thing on FM. It needs to be more well-known before people and even people in the medical field are going to start treating it like a true disease. I think that is great that that Dr's office was playing something about it in his office. Just think if all physicians offices did that. We would all be understood. Well, until then we can all hope :)


(((Hugs)))
Carley
Posted 9/17/2010 7:01 AM (GMT 0)
I have suffered with fibromyalgia for 25 years, but it did not become real to my husband's family until my sister-in-law was diagnosed with it. I was considered a malingerer and a lazy fat person. Now everyone is concerned because SIL has it; her daughter makes it a point to tell me and my children how much pain her mother is in. I'm still ignored.

Oh well...
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