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Posted 9/17/2010 6:32 PM (GMT 0)
It sure can take a lot of work to feel better, but most of the time...well worth it.

Living with chronic illness is emotionally and physically draining.

At times I find myself so emotionally weak and I hate losing my inner peace, anger

and self pity creeps in. Believe me I have had my share of pity- parties.

Some days are sruggle to try to stay strong. There are days I have to push myself

to get out of bed. I continually pysche myself up. I know if I didn't I would feel

worse.

Being pro-active is taking care of myself when it seems difficult or inconvenient.

Some days I really have to make an effort to get a walk in and to do my relaxation

therapy. I still hurt and still flare, but I think it would be even worse if I did

nothing at all.

Taking one day at a time working on being pro-active. Wishing wonderful days

ahead for all of us.

Hugs, Robin

 

Posted 9/17/2010 6:41 PM (GMT 0)
Robin I am almost sure there are none of us that havent had our own pity parties, so dont feel alone. I always admire you though because you work so hard to overcome them. You are an inspiration for all of us.
Gentle Hugs
Shirley
Posted 9/17/2010 6:50 PM (GMT 0)
Thank you for sharing :-) It means alot to me to hear you say that.  I have had my own shares of parties and it can be so exhausting to be proactive.  But guess what.  I do not like the alternative. And it has taken me time to realize that.  So I choose to fight.  Fight to be active even though I hurt, fight to do things with my kids even though I don't feel like it and Fight to be a great person even though I feel like yelling at the top of my lungs.  Because if I don't, I will become bitter and the fibro wins!  I feel like this way now but I will still have those parties from time to time and that is life.  Thank you crazykitty tongue

 

Lisa

Posted 9/17/2010 8:22 PM (GMT 0)
Hi Robin,

Your post on grieving not being a linear process really helped me the other day when I was having a rough go at things.

I was reading this post and thought I would mention that I think you would be great at writing a blog. Your posts are so balanced - you have a away of validating the tough stuff while also bringing hope.

I have no doubt others out there would benefit being able to read your "musings" and encouragements as you press on with the wonderful approach you have each day. Would be neat to have all your posts in one spot like a blog could offer - even for yourself to be able to look back and reflect on for your own journey. It could be a simple thing like just copying and pasting some of the things you share here - that way you would have the enjoyment of sharing on this forum as well as on your blog where you can bring all your writings together.

Anyway, it was just a thought that came to me as I read your words here today. I don't come here all that much, but when I do I really appreciate your posts.

Keep letting your light shine.

embers
Posted 9/17/2010 8:47 PM (GMT 0)
Thank you embers for your kind words. I really enjoy this forum, everyone is
caring and understanding...it truly is like a family. I have learned so much from
everyone here and always recieved encouragement and support when I needed
it. Sharing my feelings comes naturally...I have always been outspoken, sometimes
too much :) I post here almost daily and I never considered doing a blog. I am
flattered that you think I should do one, but truthfully posting here where I feel
at home.

Shirley and Lisa...Thanks for you kind words...you reassure me that I'm not alone!

Hugs, Robin

Post Edited (crazykitty) : 9/17/2010 2:57:07 PM (GMT-6)

Posted 9/17/2010 9:23 PM (GMT 0)
Anytime!
Hugs,
Lisa
Posted 9/17/2010 10:03 PM (GMT 0)
You always lift my spirits too, Robin!  I imagine you as a very "up" person.  :-)

Debbie

Posted 9/17/2010 10:12 PM (GMT 0)
Robin, you are such an inspiration. You give me hope and encouragement in the worst of times. Thanks
Posted 9/18/2010 12:55 AM (GMT 0)
Robin that was a really nice post. I try to psych myself up everyday just to get through work. The one thing that I really have trouble with is the whole relaxtion part. I don't know how to relax! I have tried to sit in a quiet room and just close my eyes and try to just relax and think of a nice place, but it just doesn't work for me. I don't think I even truely relax when I am asleep because I wake up so often, and I have a Temper-Pedic! I think the only time that I reallt relax is in my jet tub, but I can only stay in there so long. I do take a bath every night and I consider that my relaxation time, I just wish I knew how to relax throughout the day. It's so weird too because I never FEEL stressed or anything.

I love inspirational messages. It makes me feel like I can tackle the day better! Thanks!

(((Hugs)))

Carley
Posted 9/18/2010 1:34 AM (GMT 0)
Thanks Robin, that is so inspiring.
Posted 9/18/2010 2:00 AM (GMT 0)
Thank you all. You inspire me everyday with your strength and courage :)
I keep you all in my prayers :)

Carley...I enjoy my jetted tub too and do alot of my relaxation there. Much of my
stress is physical from pain and I try to alleviate through the exercise and R&R.
Sometimes I worry over things i cannot control...some of my health issues keep
me on high alert....things are what they are and all I can do is "keep on keep'n on.

Hugs, Robin
Posted 9/21/2010 6:33 AM (GMT 0)
...I hear ya. Inspiring each other is great and you can't go wrong with sharing with friends.

take care,

manyembers
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