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Posted 11/21/2010 11:53 PM (GMT 0)
Hey I was just wondering if anyone else had heard of a Vitamin D defficincy and it affecting people who have Fibromyalgia? When I went to the Rheumy she said that most people with Fibro are Vitamin D difficint! So she started me on Vitamin D! Anyone else heard of this? Just wondering!
Posted 11/22/2010 12:01 AM (GMT 0)
Yes, this is true, from what I have been told by my doctors and by what I have read. My Vitamin D was 22 this Spring. They prescribed 50,000 units of Vit D for three weeks, then 10,000 units a week going forward. They tested again and my Vit D was 35. Minimum is 30. Since I have fibro and inflammatory arthritis, they want my level up to 60 or 65. Since Vit D is not water soluable, you need to have your blood tested at regular intervals. Low Vitamin D levels can cause muscle pain and soft bones, according to my rheumie. Hope this helps! V
Posted 11/22/2010 11:42 AM (GMT 0)
Yes.  There is a link all about it in Fibro 101.

 

Sherrine

Posted 11/22/2010 12:48 PM (GMT 0)
My Vitamin D was 25 when I saw the rheumy in July. Now I take a supplement and really can't tell if I feel any better. I wonder if I had a higher dose if that would help more? I only take 2 tablets a day. Fibro, what a confusing thing!
Posted 11/22/2010 3:06 PM (GMT 0)
my vitamin d level was 11 (should be over 33) and my iron was 6.8 (should be 11.5) and my b-12 was 211 (should be 500-700). So did all these really low numbers cause fibro or just aggrevate it, because I have been in the worst, longest flare ever.
whats even worse is the hemotologist says my numbers are crawling back up so all my unusual aches and pains are not from the lack of iron, vit d and b-12 def. So, I went to the rheumy. He said that fibro causes lots of aches and pains and chronic fatigue but could not be the cause of all my other "unusual" symptoms so off to the neurologist I go. Had an mri done this past friday and see the neuro next friday. I guess I am going to go thru the same guantlet of doctors and tests to finally come up with the diagnoses of "Fibro" -( the illness that causes almost any symptom in the book) like almost everyone else has.
Posted 11/23/2010 12:14 AM (GMT 0)
Statistics show that many Fibros also have a Vitamin D Deficiency. I have fighting the D dificiency since 2007. It has been on a see saw ever since. I got as low as 13. An internist told me that even if we take a supplement, research has shown that all Vitamin D's are created equal. I order mine on line...not sure if I can mention brand name on here. I have ramped up to 4000 mg/day.

Can anyone say CONSTIPATION! turn
Posted 11/23/2010 12:35 AM (GMT 0)
Ok cool thanks for all the replies, Sherrine I did not realize that there was a link about it on fibro 101 so thank you for mentioning! My anxiety has been high the last couple days not sure why maybe because of the approching holidays and my father due back from afghanistan any day now. I guess i will keep taking the vitamin D!
Posted 11/23/2010 9:27 PM (GMT 0)
Kitty

Yeah, Sherrine's right, after having read Fibro 101 you will realise that there is definitely a connection. My D levels were very low after I was diagnosed with fibro and now I take supplements and make sure I get sunshine.

You will feel better soon ready for your father's return home.

PS everyone it was 92 deg F yesterday where I live, thank God for aircon.

Gentle hugs
Oxygene
Posted 11/23/2010 10:56 PM (GMT 0)
I'm also deficient in Vitamin D (20 at my last bloodwork in August).

Deficiencies also detected in magnesium and my Vitamin B12 levels. I had to go for weekly B12 injections for six weeks --- now I'm at one a month. Taking daily supplements for Vitamin D and magnesium, along with ATP cofactor?, multivitamin, and so forth.
Posted 11/23/2010 11:36 PM (GMT 0)
Hi All...Don't think I ever posted on here.

Back in May my Rheumy said that my Vit D was low (27), so she had me taking 2000 units a day... well Nov 4th I did more bloodwork and now she says that my calcium is too high... for me to stop taking the calcium and vit d...I never started taking calcium...I have a positive ANA which could be lupus and fibro....

One thing that I've noticed and don't really know why I'm doing this, but here lately I can just bust out in a sweat...and I mean pouring down my face and back...could that be from my calcium too high????

Thank you and God Bless

MsFroggi

Posted 11/24/2010 12:10 AM (GMT 0)
Hi, Everyone. My NP and my Rheumy insist that I buy Maximum D3 as a vitamin D supplement. They told me not to buy the supplements over the counter like you find at Wal-mart and the various drug stores, because those supplements are not regulated and they want to know exactly how much Vit D I am taking in. You don't have to have an Rx for Maximum D3, but you have to ask the pharmacist for it. It is behind the counter, so to speak, but it does not require a prescription. It has Omega 3 in it and since I have been taking it a while, my "good" cholesterol has really improved. I have problems in that area...inherited. They do test my Vit D levels every three months. I was in the sun a lot this summer, but it didn't do anything for my Vit D level. My Rheumy did say that almost all of his fibro patients have low Vit D levels. I did notice a decrease in my pain after I was able to get my level to 35. I wonder if this issue could be due to a metabolic problem. So many questions where fibro is concerned, eh. Hope this helps someone! Best Wishes, V
Posted 12/6/2010 4:08 PM (GMT 0)
Hi. I just wanted to let everyone know that every single capsule of vit D I checked here in Australia
has soy oil as a base for the vit D.Dr Verta, Metagenics, Herbs of Gold - you name it.
soy is highly GMO not to mention some individuals are sensitive.
I tried to take 5-6 capsules a day but after sometime it did not agree with me.
You can ask your GP for an injection of 50,000 [like 50 pills].It didn't hurt at all. I had no side effects.
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