Is it Fibro?

I have been to the neurologist for several tests and he has thrown out the "possible fibro" diagnosis amidst all this testing.

My issue has been strange parasthesia with an atypical presentation--i.e. unrecognizable to the neuro. I read that parasthesia can be a symptom of fibromyalgia and my question is:

For those who have parasthesia as a symptom what is it like and when was the onset?
I ask because in my reading, the explanation for parasthesia in fibro is from cramping of muscles over time, so it is my guess that this is not a symptom at onset? I would really appreciate your replies because I don't feel like paying another doctor for a normal result, i.e. a rheumatologist.

Here is a brief outline of my symtoms:
Sep 2008: formication (ants crawling feeling) on both feet for 30 min (didn't know it was neurological at the time)
June 2010: postage stamp numb patch found at upper Left leg next to groin (still numb) + tingly tops of feet for 2 weeks
Sep 2010: Downhill from here--Right toe went numb off and on for one day; global twitches, jerks, even had 3 days of lower abdomen 'twitches'; little ankle tendons fasiculations after exercise; tinnitus appears and gets worse; 'cold' back after walking + zits across shoulders; sharp pains nearly anywhere, but concentrated in now tingling feet--these are stabbing nerve pains that are brief; arms and feet fall asleep; can't run anymore as too painful in feet and knees; feeling more 'zaps' in my elbows and knees

I do not have fatigue. I do not have muscle soreness--everything is very much nerve zaps and brief shocks and tingles and jerks (plus this awful tinnitus now).

Can anyone shed light on what is happening? I should add that I have had clear MRI of brain and spine, normal EMG and blood tests. I am a 29 year old female, healthy otherwise, don't drink or smoke and on no meds.

I appreciate any input and don't worry you can't scare me with alternative diagnoses.

I am going to add one more question!

For those with tinnitus: did you have auditory tests? Is it accompanied with hearing loss?

I am getting an auditory test next week.

I didn't reply earlier because your symptoms aren't at all like what I deal with; I was hoping someone else might have better answers for you.

Anyway, wanted to wish you good luck. It's always frustrating knowing there is something wrong, but not being able to pinpoint what it is.

I sound very much like you.....I do have muscle tightness/pain but may last a few seconds to a couple hours.  Unless it hits my neck or lower back then it lasts longer.

The fatigue comes and goes,  some days I'm all good and then days like this it's a doozy.

I have something going on with my right ear, what I do not know.  All I know is when a front comes in, my ear hurts and will continue.  It will get to the point I can not touch it nor lay on that side.  That is when I try to knock myself out.

Everything else you mentioned I do have and understand what you are going through.  ((hugs))

 

Copsing, I'm so silly, I just reread your post and noticed at the bottom of it you said you are not on any meds.

Sorry about that, I guess my short term memory is at it again!

Or not at it again. lol

I still hope and pray you find out something soon. You are so young to be having to deal with this sort of stuff.

Blessings to you

Debbie