so sad (is there light at the end of the tunnel?)

I am the same as you. I can handle the pain more than the fatigue. I was in bed for two years, it was awful.

I would accept this jesture of your husband's and use this time to get better and stronger. Talk to your doctor about what you are going through and see if there is some kind of solution. I myself, take adderall for the fatigue. I must admit in the beginning it seemed to give me more energy as I have developed a tolerance to it, but it still helps, though I am not going to ask the doctor for more. I have been taking it for a few years now and have seen great improvement. Though not all fibromites agree with stimulants. There are also natural herbs and supplements that you can take to help you with energy. I am sure that somebody will post them. I do know of ginseng, ephedra and caffiene. But I prefer the adderal. It is a dextroaphetamine.

Being fatigued is so hard. You just barely have the energy to stand up. Trying to get out and walk helps that a lot. But you need to start off slowly. Just a few minutes a day. It gets the blood and oxygen going. I use to cross country ski, but haven't done it in years. Every year I have good intentions, but you know how that goes.

Are you getting enough sunlight? People in the wintery climates often suffer from SAD. And getting a light box can help to fight that. It might be something that you would like to talk about. Also if you are feeling depressed, some antidepressants do help with fatigue. So that is another thing you might want to talk to your doctor about. Depression alone can cause fatigue, also can cause pain too.

I hope that you feel better soon. Do take care, don't feel guilty about your husband helping you out. But do take advantage of this time to try to get better.

Hugs, Karen

Hi, mysoulsings!  I"m sorry you are having such a bad time.  Karen gave you some good suggestions to help with fatigue.  I might add that staying in bed could be playing into it, too.  Many times I get up in sooo much pain.  Just trying to get to the bathroom has my abdomen hard as a rock and I can barely breathe.  I use a cane when getting out of bed.  But, once I'm up I do a little stretching and usually within 15 minutes I'm better.  I still have pain but not as bad.  Once I get up and moving, this gives me energy.  I do walk, too, and that helps.  I walk my dog for one mile a day plus all the walking I do around my house.  Actually, anything you do around the house counts as exercise and this helps keep your muscles strong and does help with fatigue.

 

You might want to talk to your pharmacist about the meds you are taking and see if these could be a reason for your great fatigue.  Medications can do a lot to you and it's not all good, either!

 

Also, I use malic acid/magnesium supplements and they help me with pain and fatigue.  There is a link about them in Fibro 101.  They don't work for everyone but it might be worth a shot!  Be sure to pass this past your doctor.  My doctor said they wouldn't hurt me but he thought I'd be wasting my money.  I tried them and he was wrong!

 

Why don't you print off some things in Fibro 101 and have your husband read it.  Good links would be Doctors Respond To New York Times Article and also A Thorough Explanation of Fibromyalgia.  He may not believe in fibro but he is dead wrong.  It is recognized by the American Medical Association, the American College of Rheumatology, the National Institute of Health, and the World Health Organization to name a few.  Have him Google "fibromyalgia mayo" and the Mayo Clinic site will come up.  Why would they discuss fibro if it didn't exist?  Hmmm....

 

Now, please don't feel bad about sending your child to preschool!  It's one of the best things  you can do for your child!  I was an elementary school teacher many years ago and the children that went to preschool had a head start over the other children.  I have three children of my own and they were put in Montessori School when they were three years old!  One of my daughters was reading the newspaper, knew how to use the index to an encyclopedia, and also could add, subtract, and multiply when she entered first grade in the public schools!  When they are  young, their little brains are like sponges.  So, you really are doing a wonderful thing for  you child and it's wonderful of your husband to work extra to give your child this advantage. 

 

Lastly, fibro is not a death sentence.  When your child asks if you are going to die, reassure them that you will not die.  You are just very tired right now.  I do urge you to start moving, as I mentioned above.  Set small goals for each day and pace yourself to complete them.  You should become stronger and have more energy.  Laying in bed just makes you weak.

 

You really can live a full and enjoyable life in spite of fibro.  You can learn what will help you control your pain and fatigue and then  you will learn how to work around this illness.  It sounds like you've kind of given up.  Don't do that!  You are young and have a lot of living to do.  Look forward to tomorrow with anticipation and see what you can accomplish.  Little by little you should start to feel better about things.  Let us know how you are doing.  We really do care about you.

 

Sherrine

Hi Ladies~

Mysoulsings:  I joined this forum today; with the hopes of connecting with you at some point.  I've suffered greatly the last 6 years especially; and I was directed to your post of August 2010.  I can't believe it; but I think we may be living parallel lives.

I too was diagnosed with Thyroid Disease when I was 18- ( I turn 38 in March) I also have endured spinal trauma; (3 car accidents- not my fault) once severe enough to leave the accident on a spinal board.  i never really recovered from the therapy that followed. I have been visiting a chiropractor for 8 years consistantly- sometimes as often as 3 times a week!!  In 2006- I ALSO got diagnosed with Fibomyalgia; and I too suffer in relative silence; as my husband is "skeptical" of the diagnosis.

One thing I know for certain is- my suffering is real. 

If you feel up to it- I would be forever greatful to hear from you.  There may be things I have learned; that may prove helpful to you. 

You are not alone Friend.

 

I think you probably have a lot in common with many people on here. My husband too, is slightly skeptical. My son also asked me is I was going to die, and if I needed a transplant. I told him that I was absolutely not going to die, and that I did not need a transplant, but that I had a boo boo on the inside that he couldn't see that made my muscles hurt, and made me very tired. He accepted that reply, and hugged me.
Before I was diagnosed with fibro, I put my son in half day preschool at 3 - because I could see that he needed to interact with other children his age (I wasn't hurting at this time). It was the best thing I could have done for him besides reading to him every day/night. He is 4th grade now and is in the gifted and talented program. Think positive about your son - kids adapt quickly. He will be fine, and so will you!
Agreed about moving around - I work full time, and make myself get up at least once an hour to do a lap around the office. It makes a difference.
Good luck!