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My Scalp Hurts

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Posted 10/21/2010 6:30 PM (GMT 0)
My mother complains of her scalp hurting often and she has lupus. I think she has fibro too.

Tryingtounderstand: I don't think 29 is too young to have fibro. I'm 36 and was just diagnosed, but I've been having some symptoms for years. It got alot worse at 34. Chronic fatigue is very common with fibro...you should ask for a referral to a rheumatologist. I hope you have answers soon...no explanation is not fun, unfortunately many fibro patiens go years without a diagnosis!
Posted 12/31/2010 1:45 AM (GMT 0)
Where do you order this shampoo: I buy from France a gentle shampoo alternating lavender and mint.
Posted 1/1/2011 5:17 PM (GMT 0)
I have similar scalp problem. Last night I put 100% cocoanut oil into my scalp. It felt great! I think the scalp needs lubricant imo.
Posted 3/8/2011 12:31 AM (GMT 0)
I noticed there is a spot in the center of the back of my head that is very sensitive. Whether or not this is related I dont know, I was recently diagnosed. But laying on my back at night or washing my hair I have a very tender spot in the center of my lower scalp :(
Posted 3/8/2011 12:43 AM (GMT 0)
tryingtounderstand: you arent to young, I am 23 and was diagnosed a month ago but it was a late diagnoses, I have been suffering from these symptoms since i was 20.
Posted 3/18/2011 12:02 AM (GMT 0)
confused    I have Fibromyalgia and also have scalp pain.  I'm a 45 yr old female and last summer my hair started thinning and soon after I developed what I was calling painful hair.  Just a trip to the salon to get my hair washed and cut was a painful experience.  When she ran her fingers through my damp hair it literally felt like she was ripping all my hair out at the roots.  I haven't gone back since.  Its almost impossible to wear my hair up anymore because when I take it down its extremely painful and I get localized pain on the scalp on the upper left side.

I've read this condition can also be a result of overly tight neck and head muscles ... and that these tight muscles can cause "sinus" pain and could be a result of TMJ...

Either way, its a tough thing to live with.  My scalp pain, along with the other pains from the FM come and go.  I'm going to keep a journal of what I'm eating, and what lotions/shampoos/soaps I'm using and hopefully find a pattern associated with the pain.

Good luck to everyone!

Posted 3/18/2011 12:07 AM (GMT 0)
If anyone is interested, you can find coconut oil in the hair dept of K-mart. Black hair treatments. :-)
Posted 3/18/2011 12:50 AM (GMT 0)
I recently started using Rusk hair products and my hair and scalp have been feeling so different and luxurious. I know that sounds stupid but the products are so rich. There is something pretty new called aragon (or argon oil) oil that is wonderful stuff for the hair, scalp and even body. I do not work for them or sell the products, just an end user.
Posted 4/23/2011 1:09 AM (GMT 0)
Oh MY GOD! I thought I was the only person on this earth with this problem. I believed I was crazy and people won't believe me. yeah
Posted 4/23/2011 10:17 AM (GMT 0)
I've had this same pain too.  Since I have a headache 24 hours a day, every day of the week, I just figured it was a part of the headaches, which in a way, I guess it is.

Every day there is another "aha" moment when reading in this forum!

Posted 4/23/2011 10:40 AM (GMT 0)
I get the scalp pain too, usually accompainied by neck pain and or jaw pain.. I would like to try going gluten free but that eliminates a lot of foods, doesnt it?
Posted 4/23/2011 11:48 AM (GMT 0)
Gluten free doesn't actually eliminate the foods that are really good for you.  We should all be eating veggies, fresh meats, fruits..stay away from processed foods as much as possible.  Processed foods are full of chemicals we don't need.  I truly believe many of us wouldn't be in the messes we are if we had known to eat a much healthier diet when young.

Gluten free eliminates breads, bagels, donuts (although there are gluten free varieties now) pastas (also gluten free varieties are made, Tinikiyada being the best)I also am very careful with all lotions, shampoos, and such.  Gluten free seems hard in the beginning, but it does get easier.  Research it online..the advances even since I went gluten free nearly 11 yrs ago are amazing.

Posted 12/13/2011 10:23 PM (GMT 0)
I just found you guys and am glad I did. I have this stupid scalp pain and I wondered if it was part of my fibromyalgia. Stupid disease.
Posted 12/15/2011 3:01 AM (GMT 0)
I get this too! It's always accompanied by hair loss, white and dead looking follicals, and all over dryness. I wish I knew what was going on!
Posted 1/12/2012 6:38 PM (GMT 0)
I know this thread has been going on for several years-- so glad I found it!  I just saw a Neurologist last week as a result of feeling as though I'm being "scalped".  It's been going on for more than a year now--off and on.  I need to take a narcotic to ease the pain in order to put my head on a pillow to sleep, using it several times a week. I can usually deal with it during the day, as long as I don't touch the scalp.  The Neurologist basically thought I was a nut.  Usual reaction to us with fibro.  I've learned more from Googling "scalp pain" than he knew from years experience (jerk).  I had brought up the idea of Botox.  He supported the idea--if the anti-depressant I'd just started didn't help.  I not only have fibro (first diagnosed in 1996) but also sero-negative RA, cervical stenosis and other cervical and thoracic degeneration, and a history of classical migraines.  I've found the pain can be related to the cervical problems, fibro, and the possibility of a "different" type of migraine. 

So--I don't really know if the pain is associated with the fibro, RA, or cervical spine degeneration.  I'll need to see another Neurologist to try the Botox (the guy I saw doesn't do it--naturally) and I'll let you know if it's helpful.  Best wishes to all.

Zaks27

Posted 1/12/2012 6:55 PM (GMT 0)
Hi, Zaks, and welcome!  I'm so glad you found us and joined the family.  Your scalp pain sounds horrible.  I don't happen to have this symptom and I know I'm glad I don't after reading your explanation!  I'm happy that you have found something to at least easy the discomfort until you find what helps you best.  Good luck on the botox and, yes, please let us know how this works.

 

Be sure to check out Fibro 101...the second thread on the forum.  There are links to good information and you can learn even more about fibro.  I know that I am still learning about this illness and I've had it since 1987. 

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 1/12/2012 7:34 PM (GMT 0)
Hi Sherrine!  Thanks for the welcome.  Wow, you're on the ball with quick replies! 

FYI--for others with the scalp pain--I just read an article about occipital neuralgia.  In it's lessor form, it can be the cause of tenderness, "hair pain" and pain.  Autoimmune diseases can be a cause (which include the fibro). 

I know most docs hate us "surfing the web"--but hey, I just saw a MD who pretty much poo-pooed my pain.  Post menopausal...  He told me it "definitely isn't a nerve problem".  Huh????

Hopefully the doc who does the Botox will have a different perspective. 

Thanks again for the welcome!

Zaks27

Post Edited (zaks27) : 1/12/2012 12:37:39 PM (GMT-7)

Posted 1/15/2012 10:19 PM (GMT 0)
Hi Everyone,

I see this thread started a couple years ago. However it caught my eye. I am experiencing scalp pain for about 2 months. It is something new for me. The pain is also above my left eye on the brow bone and forehead. The scalp pain is also only on the left side and is sometimes on the top of my head more sore and then will sorta move to the back left or side left, but mostly on top. I have been to see my Dr. twice regarding this. The 1st time she diagnosed me with an ear infection. At that time I was having ear pain too. It sounded very reasonable as I was pulling on my ear all the time and having pain inside my ear. She prescribed antibiotics. I took the entire 10 day round. Although my ear began to feel better, the scalp pain, brow and forehead pain did not. I went to see her again and she thought the infection was also sinus related and thought the 1st round of antibiotics was perhaps not effective and prescribed another round of stronger ones. I again took the full 10 day round. It is 2 weeks post 2nd antibiotic treatment and I am still having the same pain, minus the ear pain.

I was wondering... for those of you who posted on this thread, have you talked to your Dr.'s about this? Are any of the people who posted on the thread still active on this forum? Do you really feel this is Fibromyalgia pain related? When I told my Dr. about this thread and how some of you had posted it was due to Fibro, she said no it is not Fibro pain. I have a friend who has Fibro and she says she has pains in her scalp all the time. I guess I am wondering if I should continue to see my Dr. or just wait it out awhile? What if anything have others here found out about this scalp pain? If there is anyone who has any info I would really appreciate you telling me about it.

Thanks in advance. My Best to all here and wishes for low pain days.
Posted 1/15/2012 11:48 PM (GMT 0)
Hi Springsun!

Funny huh--this topic hasn't seen any "action" for quite awhile and now there's two of us within a week responding.

I still wouldn't rule out your pain being related to a sinus infection.  I know from experience that some of us need to be on antibiotics for occasionally a month or more before our symptoms subside.  (Two months isn't out of the question). 

That being said, I too have the forehead and brow pain.  I call it a "spasm" usually, but I guess pain is more appropriate. I DON'T have a sinus infection.  Fiorinal helps me--even though I can only take it before bedtime, and only want to take it less than two times a week.  I've tried hot beanbags, hot ricebags, and frozen corn to the areas without relief.  So much for non-medicinal treatments. 

Is it fibro?  A migraine?  Neuralgia?  My primary care doc doesn't know, and neither did a neurologist I saw.  I'm going to try Botox and/or get acupuncture.  I'll try anything at this point.  They all seem baffled by my symptoms and yet I've spoken to others that experience the same thing.  I'm sure you're just as frustrated...

Zaks 

Posted 1/16/2012 12:09 AM (GMT 0)
I am sorry for those that have this pain. I do not have scalp pain, but I do have facial and mouth pain. During research to try and get to the bottom of this (doctor said TMJ, dentist said no, neuro said no neuralgia, other doctor said atypical neuralgia) I did consider myofascial trigger points. It can refer pain to the scalp, forehead, brow, eyes and jaw among others. I used to have a very good chart as reference, but I can't find it now. All I can find is this pdf on it. Hopefully it will be of some use, maybe something else to consider and ask your doctor about?

http://www.frequencyspecific.com/papers/HeadNeckFacePain.pdf

wishing you both well, zaks and springsun
Posted 1/21/2012 2:01 AM (GMT 0)
I found this forum googling why my scalp hurts. I've never heard an explanation why or had a doctor know why either when I complained of it. My scalp hurts on the top of my head with occasional extra sore spots on the sides or back. It is very tender to the touch and the sore spots can move around. It comes and goes and I can be free of it for quite a while. I have it now that's why I decided to look it up. It feels like I have ridges that go around the top of my head that are inflamed and I can feel a dent in these ridges that are sore. I never tied it into Fibro, I was diagnosed with that about 20 years ago but have it so seldom I don't think about it much. I have times where it hurts to walk when I get up or if I sit for a while, it's hard to get moving. My hubby says we're just getting old but I've had that for 20 years. Mostly it's my feet. So this scalp thing is fibro related? Did anyone find anything about it? I will have to look up Substance P, never heard of it before. It makes me feel better that other people know what I'm talking even when doctors don't!
Posted 1/21/2012 3:25 AM (GMT 0)
TENNIS- I just treated myself with essential oils for this pain. french lavender, cypress, and cornmint oil in equal amounts in a tablespoon of grape seed oil, also helps with those love headaches we get.
Another thing I found out is sulphates tend to bother people with FMS, ME, lupus and a variety of other illnesses. The public is becoming more of sensitivities to sodium laureth sulfate (SLS). SLS is a degreaser and makes shampoos, toothpastes, etc. foam. It is also a carcinogen. It is banned in some European countries for food and cosmetics, but they do use it on airplane and auto engines, anything that needs high-power degreasing.
I am starting my own biz called Terra Rapha and have studied essential oils and herbs, no cures or guarantees, but if I can bring my pain from a 10+ to 8 or less, I get excited. TTFN
Posted 1/21/2012 3:28 AM (GMT 0)

teAlexis said...
I have similar scalp problem. Last night I put 100% cocoanut oil into my scalp. It felt great! I think the scalp needs lubricant imo.

I agree with you, pure coconut oil has many healing properties, and the massage does wonders even if it hurts. yeah

Post Edited (Skandahoovian) : 1/20/2012 8:31:44 PM (GMT-7)

Posted 1/21/2012 4:33 AM (GMT 0)
Hello!  Well, after reading Mamanan's link to the article regarding trigger points, I'm a believer. I never thought about trigger points!  When my scalp gets really painful (like several nights ago), I felt for the trigger points at the base of my skull.  Really tender and painful.  I put my thumbs on the points and layed down with my head putting pressure on the trigger points.  It helped.  It didn't take away the pain completely, but it made a bit of difference.  I'm going to ask my rheumatologist to inject those points on my next visit.  I have trigger points, as most people with fibro have, throughout my back.  My doctor has injected multiple points with lidocaine and it is very helpful--at least for awhile.  Thanks Mamanan--really good info.
Posted 2/10/2012 8:31 AM (GMT 0)
I am so glad I searched google and found this site. Now I know I'm not going crazy with this scalp pain. I have had it for about a year now. I'm new to this site, I have type 2 diabetes, fibromyalgia, IBS, high blood pressure, Angina, sleep Apnea, Asthma, Diverticulosis, Arthritis, Chronic otis media, COPD, TMJ, neuropathy, thats about all I can remember at the moment. Finally people who know what I'm going through. When I was younger I suffered with migraines, a few years ago I started getting what I called flash headaches cause they would hit at different times for a few split seconds and leave as fast as they struck. My doctor would only look at me like I was crazy when I told her about them. They stopped and then the painful scalp hit me. It's very nerve racking for one I live in an area where I can not get help with any type of pain medication other than tylenol or Ibuprofren. I not even allowed to get a script for any of the pain meds for fibromyalgia. I only pray God will take all the pain I have away.
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