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vent: LACK OF FAMILY UNDERSTANDING!!! (kind of long, sorry)

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Posted 4/26/2011 7:27 PM (GMT 0)
okay so this is just a vent and I need to get it off my chest and i am sure I am not the only one who has gone through this...

I have had alot of health issues lately. I was diagnosed with meniere's disease and had my left inner ear removed a couple of months ago now and slowly getting my balance back....

BUT... here is where it gets hard... I think the stress of the meniere's, the swamp coolers, the weather, etc... have all affected my fibro in a bad way:( I'm having the worst flare up ever! the fatigue is horrible! I just want to feel better. I think my husband and kids think I'm full of dookie, but I'm not. i'm really in alot of pain and my house is a mess and I feel that my husband blames me for it. Its not me... its this friggin chaos, that is only part of me. Lately its been so bad I have had to back out of plans, I missed church (not on easter, but the sunday before that) Its just nuts, its really crazy. He will come home after working 8 hours a day and cook, but leave the biggest mess ever. when I get up and go to the kitchen i do just a little bit of throwing things away... that he left out. Which I do not mind I am appreciative of him cooking. We have our 24 year old son living with us who hasn't been much help but is working and contributing financially which is great because right now i cannot work.

The swamp coolers in this house make it really hard, I know it will be okay when my body "gets used" to it. but what happens if it doesn't. the thought of moving makes my husband angry, but I honestly do not think I can live in this house like it is. I do my best, but right now, it's not good enough. i did get confirmation from my doc that the swamp coolers are a factor in fibro. (in case any of you are going through the same thing)

I also have arthritis in my hands and I now believe its in my hips knees and feet, but i don't know if its that or if its the fibro. I guess I will know when I start feeling better fibo wise and if they still hurt I will have it checked out.

Anyhow I feel better... thanks all for listening:) I am very blessed to have found this forum and it reminds me I am not alone. I do not want to suffer from this disease, I want to live with it! but right now, I am not living:(

thanks all for listening!
Ronney
Posted 4/26/2011 9:32 PM (GMT 0)
Are the swamp coolers making it too cool for you?  Maybe you don't need to have them on constantly.  Or, you might just have to dress warmer if coldness is the problem.

 

Your stress is probably causing more problems than the swamp coolers!  I can see it in your writing.  You are projecting yourself in the future instead of taking one day at a time and dealing with the one day.  You can find ways of working around fibro instead of fibro controlling you to the extent that you move.  Arthritis doesn't help at all and I hope you are getting help for that. 

 

But, as for the fibro, just stop and think what you can do to help be more comfortable.  We might have some ideas too if you have questions.  Sometimes I come up with some really weird ways of working around fibro but, hey, if it works, I do it!  There is nothing we can do about the weather.  We all deal with that but we deal with it.....one day at a time.

 

Sherrine

Posted 4/26/2011 11:33 PM (GMT 0)
no, its the dampness of the swamp coolers that is the problem:( Yea I've just been a little depressed lately because of it. and I do some things but I can't do enough... like of what I want to do.

So as we know, when we (well me) get depressed I tend to blow things up. y'know? I am doing what I can but I just don't feel like its enough. And I don't think my family (in particular my husband) thinks its enough either.

thanks for your encouraging words:}

Ronney
Posted 4/27/2011 9:03 PM (GMT 0)
Ronney,

Sherrine is right on. You have to take this disorder one day at a time. As long as you are doing the best that you can, you should be alright with that. There is a grief period and I think that you are going through that. You just can't do what you once did. That is all there is to it. We have to accept that and move on. It isn't easy, that is why it is a grieving period. And as with all grief, there are no rights or wrongs, and no time limits. So gracefully accept this and take it as it comes. If you worry, you cause more stress and that causes more pain. It becomes a viscious cycle. So stop that cycle. Take a day and rest. You will feel better for that. Give yourself permission to just be you. And stop beating yourself up over it.

You have us now. And we do understand. Fibromyalgia can be overwhelming. But it is how we handle things that count. You are going to have days where you can't do anything. You have to accept that and just rest. I slept for two years. I know it sounds extreme. It was. I lost that two years of being with family and friends. Then I got a psychiatrist who prescribed me adderall. Now I can do a lot more. I still have tired days. But less often. You might want to talk to your doctor about a stimulant type medication. It worked for me.

Hugs, Karen
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