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Do I really have Fibro?

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Posted 7/15/2011 1:24 AM (GMT 0)
It all started when I had a death in the family. I was in bed shaking for 2 days. A week later my bowels gave out and I could not eat anything without ab pain. This lasted for 4 months. Bad digestion, constipation, etc. Three doctors said I had severe IBS. NOW 3 months later, I can eat pizza and pasta? Bowels are regular, etc. This had stayed this way for 3 months.

I used to have twitching in my thighs and my back, but that is gone as well. I do have some sore muscles when I am on the computer too long, or if I run too much at the gym. I am 45 and this is likely normal.

WHAT I DO HAVE- Is my FINGERPADS. Not my fingers...Just the pads that look "fluid filled" then they become wrinkled an hour later. They fluctuate back and forth. The FINGER PADS are also red/purple at times. Area around the nails are browning as well. My ring still fits the same, so it is not the entire finger.

I have had A and A blood tests done. Testyed Scleroderma, full blood work, MRI, and every desease in the book and then some!

I am wondering if anybody has this symptoms, or if" I had Fibro ( it has been 6 months ) since symptoms started. Wouldn't maybe my fingers hurt? Wake up with morning aches and pains, etc? I do some some soreness here and there, but nothing uncomfprtable. My Doctor says it is Fibro?

Posted 7/15/2011 2:33 AM (GMT 0)
I don't know, but Fibro without significant pain?? That's a new one on me. I think I'd get a second opinion - actually, I know I would!

Did you look at the first thread on the forum, "Fibro 101"? Do you see yourself there?

The thing with your nails sounds very strange to me, I have no idea what that could be. Sorry I can't be of more help.

Debbie
Posted 7/15/2011 3:14 AM (GMT 0)
Thanks for your response. I do have some aches and pains, but only if I ( as ones mind does) concentrate on them. Nothing that would effect my daily routine or hamper my social life, etc. I know..people talk about significant pain. Mone are more like body aches.
Posted 7/15/2011 4:41 AM (GMT 0)
I don't think I would accept that diagnosis without a second opinion.
I sure hope you find out what is going on with those fingers?!

I know that I usually have to focus to NOT feel pain, I have to be distracted from my pain.
I hope things get better.
~Toni
Posted 7/15/2011 3:10 PM (GMT 0)
what about reynauds syndrome (?). Doesn't that have to do with fingers changing colors? Anyone?
Posted 7/15/2011 4:18 PM (GMT 0)
Doctor says no Reynauds. Fingers dont turn white. Don't feel numb or cold. Not heat/cold sensitive. I see signes of scleroderma, but my Rheumatologist says not due to negative blood tests, negative a and a test ( antibodies test ). I say this because the top of the fingers are thinning ( sign of scleroderma ). I am wondering if maybe it is just nerves.....but it became this way ( withing a week ) of a traumatic event. I dont think scleroderma would just show up? Nor do I think Reynauds would just show up either?
Does anyone on here with Fibro have swelling/wrinkling of the finger tip ( pads only )? Any hand signs, etc? I am on the computer and just returned from the gym. I don't think with Fibro I would be sitting here with no body pains.
My hand are driving me crazy.... I have came very far in my healing process, but something....is not right here and they are getting worse each week. It looks like tiny marbles are underneath my 'finger tip pads". Just strange.
Anyone else have anything like this?
Posted 7/15/2011 5:13 PM (GMT 0)
Thintz,

I am sorry that nobody seems to have what you have. I thought reynolds too. But if you aren't sensitive to cold, it probably isn't. I hope that you find out what is going on. Let us know, keep us posted.

Hugs, Karen
Posted 7/15/2011 5:48 PM (GMT 0)
Hi, Thintz, and welcome!  I'm so glad you found us and joined in.  I see that you were directed to Fibro 101...the second thread on the forum.  There are links to good info about fibro and you can learn a lot there.  You might want to read the links called Symptoms and also A Thorough Explanation of Fibromyalgia.  You will get a good idea of what a person with fibro deals with daily.

Has your doctor run a lot of tests to rule out other illnesses before they gave you the fibro diagnosis?  Our symptoms are very similar to those of other illnesses...illnesses they have test for.  There is a link in Fibro 101 called What Else Could It Be.  You'll see what they want to rule out.  It does sound like you've had many of the tests. 

I wish I could help  you about your fingertips.  I tried doing a search to no avail.  You might want to see a dermatologist and see what they think.  This is somewhat in their field of expertise.  This is about all I can think of right now.

 

If you find the cause, let us know because we really do care about you.  I hope to hear more from you soon.

 

Sherrine

Posted 7/15/2011 5:58 PM (GMT 0)
They have done an A and A test ( antibodies ) All blood work ( Blood Panel ), MRI of brain, esophagus testing, chest x rays.
Nothing there. I used to have "twitching" in my thigh and muscle spasms in my back ( all gone ). Yes...dermotologist as well. He tried to say "frostbite"? but I live in San Diego? I am sure not the case.
If you are the moderator on here, then you have likely heard it all. Even you...have never heard of this. It is like my fluids in my fingers fluctuate or something.
Posted 7/15/2011 6:09 PM (GMT 0)
Hi thintz, welcome to the forum :)

My finger pads swell and wrinkle the way you have described. Right now they are wrinkly...looking like I soaked in a tub too long. I do have Raynauds, and Scleroderma as part of MCTD. There could be a number of reasons for your symptoms. Stress can also trigger a Raynauds attack without cold. It happen to me often.

Hopefully your doc will continue the search as it takes some symptoms a while to present themselves.

Wishing you the best of luck!

Hugs, Robin
Posted 7/15/2011 6:17 PM (GMT 0)
Hi thintz,

I am wondering about your finger pads are they sensitive to say pin pricks? I am remembering a girl I used to know about lets say 25 years ago : ) she kept saying her fingers hurt and then one day she was over visiting my mom and mom used to think everyone needed to check their blood sugar she was diabetic and when she did the pin prick everyone did it : ) this girl said it hurt so so bad. She actually had a problem with her circulation and somehow over the years we have lost touch but I still remember how badly she said the little pin prick hurt.

Take care I hope you find out the mystery of your finger pads.
Rose
Posted 7/15/2011 6:21 PM (GMT 0)
I have had not one, but to antibody tests done. They both came out negative? I think that something would have shown up there?
In regards to Reynauds... I am not sensitive to cold at all? My fingers also turn red/purple just at the finger tips. There is no whiteness anywhere?
Posted 7/15/2011 6:24 PM (GMT 0)
I also just had a test for scleroderma done as well. Was told negative
Posted 12/17/2011 11:09 PM (GMT 0)
I have SEVERE pain in my fingers when I wake at about 4 am every morning. Not wakening because I want to, but from the pain!

I can move "wiggle" or stretch them for about 10 seconds and the pain goes from a 10 scale, to about a 2-3 scale immediately.

The rest of the day..they are sensitive when I use my fingers to close a car door or something, but nothing too bad. I just notice they are being used/stretched.

The rest of the day, I do have some body aches, but nothing too bad. Just enough to notice them.

Being told I now have FIBRO? I have no headaches ( as described by fibro ) Not a headache in over a year, for any reason.

Its the finger pain that is ruining my life/sleep. Again..it goes away almost completely the rest of the day. All I have to do is move/stretch them for 10 seconds in the morning.

Posted 12/17/2011 11:42 PM (GMT 0)
We don't all have the same symptoms.  Muscle, tendon, and ligament pain is the hallmark of fibro.  We all have that.  Other than that, no one is identically alike.  I have had maybe five very mild headaches in my life and I'm 64 years old!  But some with fibro have bad headaches and a lot of them, too.  See what I mean?

 

It sounds like you are handling fibro well and I'm glad you don't have the pain some members do.  Just keep those fingers flexible.  They probably are stiffening up at night because of lack of movement.  My whole body is like that.  I am awakened by pain nearly every night and am stiff as a board in the morning.  But, once I get moving, I improve.

 

Sherrine

Posted 12/18/2011 12:22 AM (GMT 0)
Just wondering if you've been to see a vascular specialist to rule that out? Since you mentioned problems with circulation. Just a thought....I really hope you get to the bottom of this if it's something other than fibro.
Posted 12/18/2011 1:03 AM (GMT 0)
My dad died in front of me and I was "normal" until that? I was in bed shaking for two days. Terrible... I was told that I got fibro from letting my nervous system "overload"? Never thought that could happen? Wierd..
Posted 12/19/2011 11:47 PM (GMT 0)
Do I really have fibro? I have one doctor saying I have Fibro" and the other saying I dont have enough of the pressure points?
Mainly just pain between my shoulder blades. Like a pinching feel.
The....clincher is that my hand pain/wrist pain is unbelievable when I wake up!
However" after just "5 seconds of flexing these joints, it is basically gone.
It goes from a leval 9-10 pain, to about a 2 the rest of the day.
Any knowledgable input would be greatly appreciated
Posted 12/20/2011 2:19 AM (GMT 0)
Perhaps look into rheumatoid arthritis?
Posted 12/20/2011 4:49 AM (GMT 0)
Applevunes. Thanks...already did. Does severe Fibro night pain go away from just flexing fingers for 4-5 seconds? Sounds kinda wierd? The pain is "way" beyond arthritis. That is for darn sure.

Thanks.
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