Posted 1/8/2012 8:33 AM (GMT 0)
After trying to explain this "rash" to my rheumatologist for over 13 years (it never would show up when I saw him), I finally had it so bad last year that my husband took pictures of it and we took the computer with us the next time I saw him. Boy, did he perk up! Sent me to a dermatologist, and the dermatologist did a skin biopsy and it was rosacea. Returned to see the rheumatologist the day I got the results from the biopsy, and I told him I had rosacea. He noticed at that visit my eyes were blood red, and he thought I might have ...I think it's called iritis..??? Anyway, he was concerned enough about it being autoimmune that he sent me to an ophthalmologist immediately and they diagnosed me with ocular rosacea. So I have it on my face and in my eyes. I have to use metronidazole gel on my face and Refresh drops and a prescription med in my eyes.
If your rheumie doesn't do anything, go to a dermatologist. I wanted to know once and for all if it was lupus or something else because I have been dealing with it for over 25 years; however, something my ANA came back positive and sometimes it came back negative, and since my rheumie had never seen the "rash," he didn't really believe me until I showed him the pictures.