FM Information to help family and friends understand...

Hi all,

Please share with me any links or websites we can send to our families to help them understand what we am going through as I know there are a lot of newbies around like me.

Or better yet I phamlet would be much better as my aging parents spend very little time on the internet.

Thanks a million!

Christie

Yeah, my 15 yr old daughter gets it, my 62 hubby hasn't a clue

WOW!  If those don't help, I don't know what will.

 

Sherrine

Beachlover, Here are a few links to some information on Fibro....hope they help.

http://www.livestrong.com/article/147846-different-symptoms-that-occur-in-fibromyalgia/

http://www.webmd.com/fibromyalgia/default.htm

http://www.mamashealth.com/fibromyalgia.asp

 

...or my favorite, "Oh, you're fine!" .....

uh...and you would know this because...?

Debbie

Yesterday, I ran into an aquaintance that was introduced to me through a friend. She is a fibromite and a lupie. We talked a few minutes and she said...I know you know what it is like...wish my family did.

Unless people are living it we can't expect them to really know what we live with. We can hope that they are supportive, caring and willing to accept us as we are. We also have to remember that this affects our loved ones too...they are dealing with changes and it is an adjustment for them also. Being open and honest about how fibro does affect you both emotionally and physically helps. Express yourself in terms of what you need.

If your family and friends see you doing what you can do to help yourself and trying to stay positive, it makes it easier for them to be supportive.

Glad that the fibro family exists...you all get it !!!

Hugs, Robin

My little sister developed fibro years before I did. She tried telling me about it, but I certainly didn't get it. How could she be in pain if there was nothing wrong with her? I remember one time I was visiting with my first ds, and we were doing a lot of walking. We were taking a shortcut and going down a steep grassy hill. I was taking the stroller down, and she had ds piggy back. She mentioned that she would really feel that the next day. When I told her to stop and take it easy, she answered that it was good for her to move. I got so confused after that and started really doubting her. Of course I feel bad now and apologized to her.

This is a good question though. I've been looking myself for new articles and research on fibro. I did like some of the Web MD articles, only b/c they don't belittle fibro pain and fatigue as mere achiness. I've contemplated sending some to my ILs and even dh, but don't want to appear like I'm asking for pity, iykwim. But they don't really hold any new information for me.

Does anyoone know of newsletters or organizations that publish new resarch?

It only took the threat of possibly not being able to have children for my mom to get it. My father... ... he's another story. He's the one who also puts me down for my weight, amongst other things, BUT I see it this way; I've got friends who understand, I've got family-friends who understand, and I've got other family who understand, so one day, I hope my father will also come around;)