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My Scalp Hurts

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Posted 2/10/2012 2:46 PM (GMT 0)
I saw my PCP yesterday, and now he agrees it's the fibro and the knots of trigger points at the base of the skull that are causing my scalp pain. I have an appointment next Tues. to see a pain specialist to address my severe thoracic back pain and my "headaches". If he doesn't inject the trigger points just at the skull base, my PCP said he'd do it. It'll probably take multiple injections, but if it will stop the pain, I'm willing. I'll let you all know how it goes! I'm feeling great that I finally have a concrete possiblity to the problem. Again, thanks Mamanan for that article. Best wishes to all, Susan
Posted 2/10/2012 4:11 PM (GMT 0)
I still can't believe how many others have been dealing with all of this same PITA stuff that I have !

Scalp pain ? Sure. But more often, I used to get severe itching, to the point I wanted to scratch my hair out.... no dry scalp (read; no actual good reason for itching).

Started shaving my head about 8 months ago, and haven't had any scalp pain since then. Some itching, but nothing crazy like in the past.....

Fish

PS, I didn't start shaving my head as any kind of treatment.... Just going bald anyway. And I don't think most women would really want to do this.... 

 

Post Edited (Fishchris) : 3/5/2012 9:55:32 AM (GMT-7)

Posted 3/5/2012 5:57 AM (GMT 0)
I havent been diagnosed with anything, but I have been dealing with all diff types of headaches for over a decade. Its starting to get worse though an interfere with my life..escpecially the scalp sensitivity.  When I wake up I generally have a headache from jus laying on my pillow all night, if my so touches my head I will get a headache, I cant wear sunglasses, headbands, barrets..etc I dont get the burning pain just the dull pain that if I dont stop whatever is causing it quick enough will almost always cause a migrain like headache. I also get frequent migrains, tension headaches, cluster headaches, sinus headaches, every type off headache you can imagine as well as a constant dull daily headache that I have just learned to live will, but the daily headache weems to be getting unbearable as well. I try not to take to much meds cause I dont want to damage my liver. I am not sure what do do?
Posted 3/5/2012 7:10 PM (GMT 0)
I'm 2 weeks post my first lidocaine injections into the trigger points on both sides of the base of the skull.  It's helped!  I haven't had more than 2 of the headaches in the past 2 weeks (instead of 10).  I'm scheduled to have them done again on Weds.  I'm hoping to have the injections on an every 2 week basis until I get complete relief.  My PCP is a GOD!!!!
Posted 3/6/2012 4:56 AM (GMT 0)

Its so amazing to read about things that are going on with ones self through other peoples words

 about 7 months ago I went to my Doctor with those knots on the back of the head at the base

I woke up one morning and could not even put my head forward or backwards

I told my husband about it and to see if maybe something bit me, It was swollen and felt like there was fluid in there

It also itched like crazy but to sore to really scratch the spot,

I put ice packs on ,but it didnt get better, My doctor put me on steriods and antbotic , It took a week and half for it to chill back down,

She never did say what it could be but then with me LOL she never knows what to think.

 But it flares up and it always feels swollen and many times My migrains come from the base of my head

Also in my hair I get these bumps all the time now I guess a rash they are red bumps.

I just thought maybe the knots were from my discs

Maybe my brain is getting to heavy from thinking to much LOL

Take carealways

Renee

Posted 3/6/2012 12:06 PM (GMT 0)
Wow, I have been having a very tender scalp. I actually have a spot a little larger that the tip of my finger on my left side that would make my eyes water it hurt so bad to touch. I just thought that maybe I had hit my head and forgot....sounds funny that I would forget but I have days where I am not so graceful..lol. However, there was not a typical goose egg there. I have also lost a lot of hair recently. Maybe I will ask my sons allergist when I take him in a few weeks to get an allergy test done.
Posted 3/31/2012 9:40 PM (GMT 0)
My scalp hurts when I move my hair whether I have it up or not. A lot of times it hurts after washing it so I asked a hairdresser about that and he suggested Sea Breeze. I've been using it for years and it really works for me. Just put it directly on your scalp and rub it in and leave it. Take care not to get it in your eyes. It also can help to change to a milder shampoo.
Posted 4/2/2012 12:21 PM (GMT 0)
^ Contrary to what is often heard, it's very common for women in their 20's to get this. I actually had the symptoms since I was 11, had a really bad problem with it starting at age 21, then after 10 more years I was finally diagnosed.
Posted 4/5/2012 1:28 PM (GMT 0)
I have had both types of pain -- sensitive scalp and painful spots that come and go.
The sensitive scalp got so bad that I couldn't stand the shower water hitting it -- and the shower is gentle.
Also, I noticed at the same time that hot water, even lukewarm water was painful. So it was also a temperature issue.
This went on for a few years and at the same time I noticed it was painful to put my hands in hot water, very painful to try to wash the dishes.
I went to get a haircut and was talking to the woman cutting my hair and just out of the blue she said she had a friend who had a really sensitive scalp -- and she went to the doctor and was dx with MS -- and that's how she knew she had MS, because of her sensitive scalp ... and I said "What?"
It got me thinking about a neurological basis for the pain.
Regarding the sore spots on my scalp that come and go, that's a different feeling and I agree they could probably be massaged out. They seem to get worse before a migraine -- so perhaps nerves are involved in those, too.
Posted 5/7/2012 3:49 PM (GMT 0)

interesting to find this thread bc i have sensitive and painful scalp.  i have ulcerative colitis, and I am on Remicade.  is anyone else with this on Remicade?  also, has anyone else tracked it with their medication cycle?  My Remicade cycle is every 5 weeks and i tend to get the painful scalp 2 weeks prior to my infusion and it lasts 2-3 days.

Posted 10/31/2012 7:00 AM (GMT 0)
Oh wow! I thought I was the only one with scalp pain. I've had it ever since I was a little girl and it made it difficult to brush my hair or anything. I wasn't firmly diagnosed until a year ago, when I was 18, but we suspect I've had it for years. Does anyone else with fibro suffer sensitivity to sound? Certain sounds send me into a flare up like no other. It feels like I'm dying sometimes. confused confused
Posted 10/31/2012 7:49 AM (GMT 0)

Deepwell said...
Hi--- can't remember if I've said welcome, so Hi! and glad you found this forum! yes the sound sensitivity is also very common. Kind of embarrassing once when I had an outburst at huge family gatherings. I come from a loud large family, and have been known to shout "quiet!". I find earplugs that let in different decibal amounts are helpful. I also take earplugs to the movies. You can still hear everything.
Walmart sells a Big jar of them for $9.99. I cut off little slivvers lengthwise, to make them more comfortable, (or to let in a little more sound); I wear them to bed every night, to sleep better. The yellow and pink brand are super soft, but only come a few to a pack.

You could try Voltaren gel(prescription) on any bad sore spots in the scalp. It has really helped some of my Headaches to do that. if it doesn't help the scalp, it does a lot for me on other sore areas. love the 12 hour, time released Flector patch on muscle spasms. Same medicine.
Good luck!

Thank you very much! I'm going to try the voltaren gel if my doc approves. I sleep with ear plugs regularly, but that's because we have a puppy in the house who cries all night. It really does help me have a deeper sleep. I hate my headaches. I have one everyday without fail. My doctor tells me to take Tylenol, but it doesn't do much
Posted 10/31/2012 12:20 PM (GMT 0)
I remember telling my doctor it feels like my "hair hurts" (I meant the scalp, of course). He said that it is almost always nerve pain. The Neurontin helps me.
Posted 11/2/2012 12:44 AM (GMT 0)
I get the scalp pain too. Just another pain on top of everything else, lol. At least if i dont touch my head or brush my hair it isnt too noticeable. But i will forget and run a hand through my hair, and OUCH!!! It feels like when i was a kid with my long, thick hair. It would be in a pnoytail all day, and i would take the ponytail out before bed and it would hurt so much to shake it out. My mom loved uber tight ponytails, lol.
Posted 11/4/2012 4:03 PM (GMT 0)
Going to add my experience as well. I have suffered with the scalp pain for many years. Whether my hair was long or short did not matter. My pain is all around the crown. Some days, like today I just wake up with it. It causes me distress, and my neck gets tight. I'll also end up with a headache. I usually will wash my hair and comb over my scalp, and then let it dry without product in it. It doesn't make the pain go away, but helps a little. My hair is very thick and curly, and I keep cutting it because of this, but it never helps. No matter how short my hair is it still happens.
Posted 11/4/2012 4:15 PM (GMT 0)
Hi Everyone,

I wanted to share with you that my future mother-in-law was diagnosed with Trigeminal Neuralgia and it sounds as if this might be something some of you might have. If she doesn't take her med for it, she suffers great pain.

I've had this. I tried a supplement kit from Vitamin World, 1 pack per day, and the next day I had bigtime sharp stabbing pains in my head. I took them back and got a refund. I had this pain for a few weeks and it went away gradually over the following months. That was about a year ago and it hasn't happened to me since.

Here's a link to Trigeminal Neuralgia. Hope this helps some of you:

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001751/
Posted 11/4/2012 9:24 PM (GMT 0)
This thread is getting very long and it also is a very old thread...it was started 3 1/2 years ago.  There obviously is still an interest in this topic so if you want to ask more questions or post, please start another thread.  I'm now locking this.  Thanks!

 

Sherrine

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