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Facial sensations/pain?

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Posted 4/1/2012 3:56 AM (GMT 0)
Does anyone have pain in their face?  Mine is on my cheeks, and runs  the gamut from not there at all, to a faint tingly feeling, to a more burning feeling.  Since I'm new to all of this, I don't know what to chalk up to fibro, and what's unrelated.
Posted 4/1/2012 7:09 AM (GMT 0)
Kimiliz- I am not sure if you have brown patches on your cheeks. Almost looks like a the butterfly lupus rash, but not. I went to the dermatologist and I was diagnosed with melasma. Anyways my cheeks burn sometimes and are senstive when this is flaring up. The pictures on the information look just like mine. Sun makes it worse.
Posted 4/1/2012 1:33 PM (GMT 0)
Thanks for your reply!  No, I don't have any rash or brown patches or anything...nothing visible at all.  Just like so much of fibro (if that's what this is), it's "invisible".  rolleyes
Posted 4/7/2012 6:36 AM (GMT 0)
I get that too. Also sometimes on my arm and leg. Nothing visible, just a "sunburned" feeling to my skin. Even the air from a fan blowing on it bothers me.
Posted 4/7/2012 3:13 PM (GMT 0)
GlassOlive, I have had that, too, where a fan blowing on me is uncomfortable...isn't that weird?!  And I have the "sunburned" feeling a lot, all over my body.  Fibro seems to encompass many different sensations and locations!   rolleyes  
Posted 4/7/2012 7:17 PM (GMT 0)
I am prone to sinus infections and allergies, so I always have a painful, tingly feeling on either one side or the other of my face. Sinus issues and infections apparently have something to do with Fibromyalgia ... have you had those ruled out?

blessings and peace
Posted 4/7/2012 8:40 PM (GMT 0)
I've never had sinus problems, and my only allergy is latex. so I don't think it's anything like that...plus it all started when my other "weird" (read: new and frightening) fibro symptoms started.  I have read that a lot of people with fibro have sinus and allergy problems, though, so there definitely is a connection there.  I think my "free pass" to fibro came from having RA...I've read that from twenty to thirty percent of people with RA end up with it. rolleyes   Thanks for trying to help me piece the puzzle together, though--I appreciate it! 
Posted 4/7/2012 10:04 PM (GMT 0)
Yes, frightening indeed! I hope you will see the doctor about it. On top of fibro pain, yikes! that is for sure no fun :(
Before I was diagnosed with fibromyalgia, my previous (inept) doctor diagnosed me with RA. For years that's what I thought I was experiencing! So I did a lot of reading about RA and all the sources listed fibromyalgia as a tag-along "bonus", as well as chronic fatigue. Nothing about facial pain though ...
Hope the mystery gets solved for you. It's always the not knowing that is the worst thing - if you know what it is, you can deal with it. But not knowing is the scary part. I'm so sorry you are going thru that, on top of the other issues :(

blessings and peace
Posted 4/7/2012 10:52 PM (GMT 0)
Thanks for the kind words, angelfeather, and I agree--not knowing is the absolute worst.  I really do think that the facial pain is part of fibro--it's not excruciating, but just kind of sunburn-like and once in awhile a little tingly and "zappy".

I see my rheumy on the twelfth, so I'm hoping I'll get some more answers.  She told me at my last visit six weeks ago that if my lymph nodes are still swollen (which they are) by this visit, she'll order a CT scan, so I'll have to see what that shows.  I just want answers!  smhair

Thanks for replying--I appreciate it!

 

Posted 4/7/2012 11:04 PM (GMT 0)
You know, I just remembered something - when I was out with a friend a few weeks ago who is an osteoarthritis sufferer, she mentioned her face was burning and tingling like it was sunburned. She was never diagnosed with Fibromyalgia, though, so what the heck??? Could it be a skin sensitivity to something, a face cream, soap, or is that sensation related to something else ... ? Yikes! another mystery ...
Please keep us posted, Kimliz, and big-time prayers go out to you in the meantime as you wait for arrival of your appointment day!

blessings and peace
Posted 4/7/2012 11:20 PM (GMT 0)
Thank you for the prayers and wishes, angelfeatherI appreciate that so much.

Does your friend have any other symptoms that could be fibro? 

The reason I think my facial sensations may be fibro-related is because they come and go, and I haven't noticed them getting worse after I put on moisturizer or wash my face, but who knows?  I'll have to pay closer attention to that to see if I notice a difference.

Like others on this forum, I've had the scalp pain off and on, too, and I'm using the same shampoo and conditioner that I've used for years.  This is enough to make a person crazy trying to figure it out!

Thanks for the suggestions and the prayers!!

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