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Posted 4/15/2012 9:57 AM (GMT 0)
Morning everyone I am a 36 year old male who has been to the doctor and emergencyy roon countlees times for pains.  Finally diagnosed with chronic myofascial pain (CMP). i am writing this to let everyone who suffers with CMP or Fibro know that you are not alone and I  understand what you are going through.  I have not slept tonight as my lower back is paining me.  i know rhe feeling to well studying if this pain is CMP or is it  a pain that is goin to kill you .  I know the feeeling of giving up of being depressed, of going and drink to feel liberated and not worry about the pains but just to be normal. I know the  questions you ask; The why me? The What have i done to deserve this? I know.  I have looked far and wide for the answers myself and found none.  The dark cloud of depression is hanging over me right now and no one will ever undertand what we go through on a daily basis.  the fear of when you are driving, the anxiety atttacks, te heightened sesnes of smell, the loss of appetite and overall feeling of weakness.  I know.
Posted 4/15/2012 1:40 PM (GMT 0)
hi b2308,

WElcome to the fibro forum. I am not feeling well, so this will probably be short. It is always nice to know somebody understands. Keep posting, and let us know how you are doing. We do have a wonderful depression forum too if need be.

Do check out the second thread on the forum. Called "fibro 101". There is a wealth of infornation there. There will be others to welcome you. Sorry I am not up to snuff.

Hugs, Karen
Posted 4/15/2012 3:41 PM (GMT 0)
Thanks Karen.   i realise now that to live a"great" life i have to make a life change.  Who doesnt like a few drinks with the guys on a Friday?  But the pin seems to be etting worst and my intolerance level for alcohol i realise is crazy.  Just finished cooking lunch and i had to devein shrimp....a task that was so simple ...now actually felt like i was using a jack hammer...but i finished and made a woderful chinese lunch for the family.  my lower back is still hurting  but not as much...has anyone gotten divertucolus as a side effet of this disease?  had that last year but the good thing with it i did a CT Scan and got a good report on all other organs...but the chest pains still freak me out.   i am from Trinidad in the Caribbean and i went ot the sister isle for some r and r.  this is the first time i experienced a panic attack.  i was rushed to the hospital and my muscles were so tense that the muscle relaxant they were administering via injection, the needle broke.  man whatever they gave me i was knocked out for the rest of the day.  just one of the many hospital experiences i have been through with this disease.
Posted 4/15/2012 4:39 PM (GMT 0)
Welcome! I'm not feeling very good at the moment either. I've been in a flare for a week now. Karen already mentioned the fibro 101 thread. The information in there helped me to realize that I would not die from any of my symptoms. It is an understatement to say that it took a load off my mind! Hope to hear back from you soon.

Janice
Posted 4/15/2012 5:02 PM (GMT 0)
I am on the laptop doing a report fro work tomorrow.  i find this kind of take s away from studying to much about the pain. Thanks Janice. just started to type and one of the other annoyances of tihs disease which i am experiencing as we speak is the loss of apetite.  I am a great cook and i normally used to love cooking and eating but with thechange in the sesnitivty of smell and taste cooking has become tedious since certain smells now get me nauseous.  i will be honest with you guys and am sure a lot of you probably went through this or stronger than me and didnt.  i started to get a dependence on alcohol to get away from the pain.  i do not take any medication.  i cant stand the side effects.  ths weekend was one where i just send screw it and have some drinks. of couse thats why i am in total pain right now. i  really try not to let this disease rob me of my social life because i really enjoy it.  but geez i am 36 and this "thing" makes you feel like am 60!!!!! oh   
Posted 4/15/2012 6:33 PM (GMT 0)
I know for myself that drinking alcohol eventually adds to the fibro pain. Maybe others in here have a different experience. I only know that when I drink, the pain becomes more intense.

I can relate to the problem with cooking too. Some days I can prepare anything with no trouble at all, and other days I cannot even stay in the kitchen when food is being prepared. The smells and sounds become unbearable.

There are other times when I hurt so much that moving around in any room is a real problem for me. On those days I make sure to stay as active as possible, not matter how much it hurts. If I stay still for too long the pain becomes more intense.

I'm working on the computer too, but getting off to rest for a while.

Sorry that you feel so lousy.

Take care,
Janice
Posted 4/15/2012 6:42 PM (GMT 0)
Hi, B2308, and welcome!I"m so glad you found us and joined in.  I don't take the "heavy" medication for fibro.  I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, vitamin D3 supplements, and a natural product called Curamin.  All this helps me be in control of my pain.  I also do gentle stretching exercises, gentle daily exercises (I walk and swim.  Yoga is another good one for fibro), I pace myself and I get gentle massages once a month.  All this combined keeps me in control of the pain...unless I have a flare.  Like you, I don't want to deal with side effects of medications.  I have had reactions in the past so that's always in the back of my mind.

 

I see Karen directed you to Fibro 101...the second thread on the forum.  Good starting links would be Symptoms and A Thorough Explanation of Fibromyalgia.  You will also find links to the stretching exercise and  malic acid/magnesium supplements and vitamin D3 supplements and how they work in your body.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 4/15/2012 6:52 PM (GMT 0)
Thanks everyone.  Its great to be here.   i have read that talking about what you are going through really helps and that is why i started on the forum.  my wife also calls me her weatherman becasue i can tell when its going to rain.  th epain increases.  right now its overcast so it explains why i am still getting myriads of pain.  thanks for the ears guys.. one thing you need are listeners.  especially listeners who understand what you are experiencing.  i dont think i know anyone who understands what i am going through. they cant relate to always being in pain.  not even my wife fully understands
Posted 4/16/2012 3:55 AM (GMT 0)
WELCCOME B208 - The pain and depression I can truly understand. I have asked myself why me also. I finally had to accept what I have and try to bear each day the best I can. I have improved with my depression over the years, but it takes work to be on top of the depression. I have found out some of the meds they were giving me caused depression and some of pain I was having causees depression. I have finally found the more natural treatments I do the better I get. I have learned all these great ideas from here. Educate yourself as much as possible. See what things triggger your pain and depression and go from there. Take baby steps for each symptom. This is how I got where I am today. I have a husband that still has a hard time understanding chronic pain and depression. So I sometimes cant always go to him for the support I need. This is a great place for support as you can see. I hope you get as much as I have from this site.
Posted 4/16/2012 11:22 AM (GMT 0)
welcome. i am new to this site also. it helps to know that everyone here understands what i am going through. i feel like just screaming today. well really for about a week now. just cant seam to get out of this fibro fog. cant stand the pain tired of getting confused. i have found alot of info on this site. just wanted to say thanks
Posted 4/16/2012 3:29 PM (GMT 0)
Hi there. Just had to write a note here too. I think that it will always be hard when it comes to family or even friends understanding us or what we go through. I had a sister I am very close to--have this for 10 yrs. before me and as much as I felt for her, I didnt get it! But we all have each other and this forum, and until the day the world gets it--it will have to do. It is a tough place to be with an illness that takes away so much and there is so little understanding, but we have prayer, too!! I am praying for all you--take it one day at a time is my logo. God Bless!
Posted 4/18/2012 2:31 AM (GMT 0)
Hi Guys

Just came out the shower and going to sleep.  Had to finish some reports tonight so i am up.  Finally going to try and exercise in the morning.  today was good minus some sharp pains in the shoulder and back region. overall good day.  glad to see everyone is fighting.  i always remember the navy seals saying " alone i am lethal as a team we dominate."  i think this quote reflects us here as a team fighting our enemy.  Thanks team

Posted 4/21/2012 5:52 PM (GMT 0)
Welcome b2308, I am fairely new myself. I'm glad you found a place to vent. It is a hard pill to swallow, no rhyme or reason for how we will feel from day to day. I have felt like there could be something more wrong over the past 15 years , but when I would ask Dr.s about pins and needle sensations etc.... I had an MRI (negative) ruled out MS then they just act like it's in your head. I am surprised you were even dxd with CMP in the ER. In my experience, I have had to tell Dr.s what I believe is wrong for years before they figure it out! Whatever happened to critical thinking???? It took 5 years to get my hashimoto's thyroiditis dx.....by that time my heart rate was 40, sores on arms, fat neck , thin hair, and so depressed calling suicide hotline every day! I just kept asking to see different docs. It's an autoimmune disease and it only took one blood test to show antibodies. The only reason I have FM dx is because by 35 my many symptoms had gotten so bad that I researched online. Of course I asked my doc of 13 years and she dxd me. I left her soon after for a more compassionant doc! I am 40 and feel 60 too! One thing that gets my mind off my pain is watching WILD CARIBBEAN on tv. I dream about taking another vacay out that way! I was fortunate to visit Turks n Caicos and St. Thomas and surrounding isles in the past couple years....I am obsessed with the Beauty and atmosphere of that part of the world. How did you feel when you were in Tobago??? Pain? ?? Do you know what brought your panick attack on?? I felt more stiff and had more tailbone pain with humidity on St Thomas, but my allergies/ nasal burning was better. T n C was very dry though
I wish you luck in your journey to find what works best for you. I am alcohol intolerant now....feels good for a minute, then I pay lol
Posted 4/22/2012 12:52 AM (GMT 0)
Hi all, im new too.
The my aches became significant only 3 months ago after being dx'd with HepC and started seeking the help from TCM (Herbs, Acupressure, Acupunture) and OTC painkillers and just today started taking 5000IU daily of Vit D3.

Every morning its miserable, feels like being ran over by a mack truck and wish i could just do what my body wants and don't need to struggle my way to get to work. By 2 pm i will feel drained, so tired and more achy that my mind will go blank. Painfully waiting for the hours to pass and finally am done for the day. Recently ive got tendinitis on my right wrist and a new pain on the left and right forearm and ankles.

A good friend who has Crohn's complain about her pain everyday which i think mine is not comparable to hers so i just listen cos i don't want her to be stressed by my pain. Colleagues think my fatigue and aches are the same as how they feel after much work and lack of sleep. My mum is 75 years old and is much more energetic and walk better than me but i believe she's trying to understand.

I have also gathered all my symptoms are a combination from HepC, Fibro and PMS (46 yrs old)
This forum is the only place where we can vent and with members who have been through whatever we are feeling, they will offer much encouragement and understand with most importantly, a listening ear.

God bless.
Posted 6/21/2012 5:32 PM (GMT 0)
Ive been avoiding forums. Cause it hurts me more to find out why too many of us. Have to go through all of these. Im batteling not only for my cmp. & now w/ dr's & how would i live. Ive done a lot of research & found really more deppresing stuff for what really happening to patients like us. I know im not alone & this is not only in my head. Im not sure. But i dont think what we have is not in medical book yet. We get hurt more. Even we seek help. Maybe we can help each other to change that & be heard. Not only in patients forum. I know theres a lot of us can contribute into something to find our cure. & to stop discremination of what we have. Im just having a real difficulty how to really start. For how can we really reach each other. & most of all the patients families before us. That patient is no longer w/ us. Maybe then they would really listen
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