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I'm okay until I stop moving

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Fibromyalgia
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Posted 4/30/2012 6:25 AM (GMT 0)
I'm still trying to figure out how to keep functioning now that I've given up Vicodin. In general as long as I keep moving I feel okay. When I first wake up I'm stiff and sore, but as I get up and get ready for work I feel a little better. Unfortunately I have a 45 minute commute so I stiffen up during the drive. I get to work and I have a sit/stand desk and I get up and move around as much as possible so I'm usually feeling pretty good most of the day. Then I have the 45 minute drive home but that one doesn't usually bother me as much.

Then it is time to get dinner ready, clean it up and throw a load of laundry in and then I'm exhausted. At this point all I want to do is lay down and read or watch TV. But this is always the worst thing because the longer I lay there the worse I feel. But I'm just too darn tired to move much. How do you deal with this? I can't move forever until I drop dead.
Posted 4/30/2012 8:21 AM (GMT 0)
Hi Namian

I was the same. Check out my recent post.just in case

Posted 4/30/2012 9:08 AM (GMT 0)
Namian,

Sounds so familiar. That's what I need to do, for years I've been frequently changing what I'm doing, I'm so use to it, it comes as second nature. See if incorporating some stretches into your life might help. I've been performing stretches twice a day for many years.

Good luck to you.
Posted 4/30/2012 12:12 PM (GMT 0)
During your commutes, do some stretching exercises while at the stop lights.  There are some exercises on Fibro 101 that are done sitting down.  These can help you on your commutes and at work.  Remember to do deep breathes with your stretches, too.  These help your oxygen levels and also help with the muscle pain around the rib cage.

 

Do a few minutes of stretching...your back and shoulder muscles...before you start dinner.  You can do the stretches as you are putting the laundry in.  Try starting your laundry before making dinner so your evening will have some fun times.  If you are married, cleaning up the dinner dishes should become his job.  You are working full time, too.  If not, I see you have three children.  If they are not toddlers, they can clean up the dishes.  You are only one person and you don't have to do EVERYTHING!

 

I even stretch in bed if I wake up in the middle of the night and I also stretch before getting out of bed.  It really helps a lot.

 

Sherrine

Posted 5/1/2012 4:42 AM (GMT 0)
bruceb1 I did look at your post and the symptoms are the same as mine, but I'm in my 40s so I'm not in the age bracket at all. I'm not sure if that puts me out of the running entirely, but I'm sure my doctor would never consider it.

Sherrine and almost med free. I'll look into the stretches and try to incorporate more into my day. My kids really do help a lot. It isn't so much that I feel that I'm doing too much. It is just that when I stop...the pain catches up with me. :( I want to be able to enjoy watching a TV program again without knowing that I'm going to suffer for it as soon as it is done.
Posted 5/1/2012 4:56 AM (GMT 0)
So similar to what im feeling during the evening after dinner.  Even doing all the dishes is torturing my back and will only wash my own dishes.

After one hour of TV, with in between breaks of standing and walking around, I will get so tired and just fall asleep.

Come the weekends are the worse, less activity and the pain seems like bad flare.

Every Monday morning back to work and it feels like i just returned from 2 days of mountaineering...shaggg

Posted 5/1/2012 5:36 AM (GMT 0)
I have those pains all the time. Once I stop for the day and it has been real busy I can hardy get up from a chair to get to bed. Only to wake up like I was 80 years old. I dont work and still have this problem. I just learned to accept it and try to move around frequent. I lock up sitting just for 30 minutes. I am real slow in the morning because of my stiffness, but once I get moving I try not to stop till bed.
Posted 5/1/2012 6:28 AM (GMT 0)
Isn't fibro a crazy illness? I know it can affect us all in different ways, but the main symptom seems to be pain! I can barely move when I get up in the morning. I'm taking Malic Acid and Magnesium, thanks to Sherrine and this group, and it has helped so much with the morning stiffness.

With me it's the fatigue that is so bad in the mornings. I just can't hardly move till I've been up for about an hour and a half to 2 hours.
I try to stay positive though, there are still so many great things in life, and we can't let this illness win.
Posted 5/1/2012 9:42 AM (GMT 0)
Namian, it's so nice your kids are understanding.

Concerning the discomfort you feel when you sit down to watch a tv program, my body is so sensitive I have to sit on a very comfortable chair or sofa with good support. Luckily my b/f has a very nice sofa, that's the only place I can sit in the house for 15 to 30 minutes of time max before I need to get up again.

Is the place where you sit comfortable and supportive?
Posted 5/1/2012 11:42 AM (GMT 0)
Namian, I know what you mean about getting up after watching TV.  I'm stiff as a board so I stretch my back muscles for a few seconds before I even stand up.  Then I'll stretch a little more and once I'm moving again the pain is better.  I've been this way for years so I guess I'm used to it.  It's just a part of my life but I'm so glad I can get up and walk now!  Last winter, I could hardly lift my feet off the floor because of the pain!  We just have to keep on keeping on.  

 

I, too, am glad your children are helping you.  It means a lot, doesn't it.

 

Sherrine 

Posted 5/3/2012 5:25 AM (GMT 0)
hi again namian

Its up to you but I think if it was me I would be insisting my doctor rule Polymyalgia rheumatica in or out. You are correct in saying 40's is too young for a disease they say only strikes 50 plus age. But bear in mind you hear of 20 somethings dying of breast cancer and same for super fit 20's dropping dead of heart attack. rare but I believe it does happen. Easy to rule out Polymyalgia rheumatica if u dont respond allmost imediately to prednisone.

Bruceb

Posted 5/3/2012 6:12 AM (GMT 0)
Im just as bad!! Im so stiff in the mornings and in the evenings when i try to "relax". My muscles ache and twitch and everything feels so tight. I'm 40 and often feel 90 with this darn illness
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