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Posted 5/29/2012 8:22 PM (GMT 0)

Hello everyone, I am new here. I have just been diagnosed with fibro. 6 months ago. I am still puzzled by the whole thing. To make things worse my husband doesn't understand and is really getting sick of hearing about my complaints. I try not to complain. Sometimes I don't even say a word. I just moan and groan. I don't know what to do about that. I also have a question. Does anyone have severe pain in their legs? My forarms and elbows are constantly in pain. The Dr. also checked my vitamin D level. And it was 15. I'm not sure what it is supposed to be, but I have been put on vitamin D pills. My question is, could my low vitamin D be the real cause of all this pain I am feeling. I have been taking the pills for about 2 week and no change in pain. I am also taking savella, which seems to help some. What do I do for pain? Ibuprofen and Tylenol don't work and I don't know what to do....Thanks for listening...

Posted 5/29/2012 8:46 PM (GMT 0)
Hi Emmaline,

I am also new to FM and this site. Everyone has been so nice and introducing themselves!! And I can relate SO MUCH to you with your husband not understanding!! I just had a rant on another topic about my fiance! But I'll keep that off of here!! There are alot of useful things on the thread fibro 101, Ive been reading and reading and it seems to help. There are so many remedies, or things people try and works for them, and thats what Im finding out, you will have to do sorta a trial and error thing to find out what works for you!!! I have sorta found heat works...sometimes! But the general consensus on here is stay actve, walk, yoga, and stretching. I have been trying to incorperate a walk in everyday, hard with my busy schedule but, I need to make time!! I hope you can find something that works for you and that this site proves helpful in whatever ways!! Good luck and hope that you are having a good day!! Take care,
Bex
Posted 5/29/2012 8:52 PM (GMT 0)
Hi, Emmaline, and welcome!  A vitamin D deficiency can cause more pain and fatigue but it' probably isn't causing all the pain you are describing.  I take 5,500 IU of D3 and have been for several years but still have pain.  BUT the pain is better.  As the D gets in your system, you probably will feel a little better.

 

Everyone is different as to what helps with their pain with fibro.  We just have to try things to see what works.  I use ibuprofen, extra strength Tylenol, Malic acid/magnesium supplements, vitamin D3 supplements, and an alternative product called Curamin to help with my pain and fatigue.  I also take a prescription muscle relaxer caller Robaxin that helps me too. 

 

I also do gentle daily exerciese like walking or swimming.  I pace myself when doing things, and I also get gentle massages.  All of this helps me be in control of fibro instead of fibro being in control of me.  Yes, I have pain but I've learned to ignore it as much as possible. 

 

I don't talk about how I feel either.  No one will understand unless they live with chronic pain, too.  So the best thing you can do is do  your best and live as normally as you can.  Your husband will be able to tell when you aren't feeling well.  My daughter does.  I will be making dinner and she can tell by my body language if I'm feeling good or not.  Now, if I talked about fibro and how I'm feeling a lot, she would tune me out. 

 

Be sure to read Fibro 101...the second thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Good starting links are called Symptoms and A Thorough Explanation of Fibromyalgia.  All the links are good so do check them out.  Knowledge is power.

 

By the way, I deleted two posts of yours because they said the same thing as this post.  Sometimes that happens.  Guess there is a glitch in the system.

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

Sherrine 

Posted 5/29/2012 8:56 PM (GMT 0)
Hi Emmaline, welcome! Fibro can be very puzzling. My vitamin D was around the4 same level yours is and I take supplements, but I haven't noticed any difference in pain levels. I'm sorry your husband doesn't get it. There's a very informative post on here Fibro 101. Perhaps you could get him to read it with you? My family doesn't understand either so I know how hard that is.
My forearms and elbows hurt a LOT but not sure if it's my tennis elbow or fibro that's causing it. probably a bit of both. Most of my pain is in my back neck and hips but everyone is different.
Yes a vitamin D deficiency can cause a lot of pain. You doctor would be better able to say if it is causing all of your pain but if you have Fibro, i doubt it.
You should have your vitamin C levels checked also, low vitamin D can lead to low vitamin C.
There are a lot of people on here with a lot of knowledge so be sure to look around :)
Posted 5/29/2012 9:51 PM (GMT 0)
Thank you everyone for responding so quickly. I feel so much better just knowing that there are people I can talk to and understand what I am going through.
Posted 5/30/2012 4:20 AM (GMT 0)
emmaline- I wanted to welcome you. As you can see we have a great support system here. It sounds like you are doing well asking questions and educationg yourself as much as you can on fibro. This is the way I worked up the ladder and now I am doing great. I feel like this forum gave me a new life. I had to educate my husband over and over about fibro pain. Believe me, it took years for him to understand. I would recommend you read other post to get ideas on how others treat their fibro. I had to actually educate my Dr. on a lot of this. I recommend you keep up with your vitamin levels. You will see that we all react different to meds and treatments, so dont get discourage to quick! I went down the hard long bumpy road with fibro many years ago. I finally found this site and learned how to mangage my fibro mostly natural ways. As you can see pain is probably the number one issue for most of us. Some Dr's try to start off on the lower end for pain control and move up if not controlled. You will find out some dr's are not wanting to write scripts for long term pain meds, but are willing to give you a referral for pain mangement. I have been going to pain management for many years. Most of them treat fibro patients. Magnesium supplements really do help me. I use have muscle spasms and crmps and now they are far and few between. I now do the following for my fibro- Heat, light escercise, vitamin supplements, subutex, rest and stay away from lots of stress. LOL I hope I help you some.

Post Edited (ak angel) : 5/29/2012 10:23:46 PM (GMT-6)

Posted 5/31/2012 9:43 PM (GMT 0)
Hello Emmaline - I"m new here, too. I think not telling my husband how I feel, he then assumes I should be able to do more stuff. I don't want to complain, but if I don't tell him, he'll want to make plans and do things. I've been hurting a lot for a few months now and I can tell you I'm pretty sick of it. I am going to try the supplements talked about in fibro 101. I take ibuprofen, tylenol, advil and tramadol - all of which just take the edge off. I take benedryl at night and I sleep ok, but the dr wants to put me on lyrica and some sleep aid, but I'm looking into natural first.

My list so far is therapeutic massage, stretching, yoga, walking, swimming (exercise in moderation), heat, meditation to help relieve stress and maybe therapy as well. Better sleep will help w/ the fibro fog. I"m working on not feeling guilty for resting; learning to balance everything is difficult. We can do this, tho.

The elbow pain caught me off guard when it first started getting bad. I remember saying to my hubby that I don't remember hitting them on anything and I couldn't figure out why they hurt so bad. Now my legs, feet & ankles are bad too. I'm ready for it to ease up, that's for sure! I love that we have people here who can relate and we can talk to. It's been really nice in the midst of all this to have this forum.
Meg
Posted 6/1/2012 1:35 AM (GMT 0)
I just want to thank everyone again for replying to my post. I really wish I knew more about fibro, but I am newly diagnosed. So for now, if it is ok, I am going to ask all my questions on this forum. You all have so much exerience and I just couldn't answer any questions right now because I am learning myself. I have figured out that the more stressed I am the more pain I am in. I have had so many terrible things happen in my family for the past 2 years that I am beginning to think that is what brought all of this on. Could that be possible? I have had both parents with cancer, a daughter in law who hates me, and a son who suddenly decides in the last 6 weeks of his senior year not to do his work because he doesn't think it matters. I could probably go on and on forever. I am terrible at handling stress. I was a teacher for 14 years and finally had to quit because of the stress level. I do believe I need to be more active. I am going to take your suggestions and see how it goes. Talk to ya soon!
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