Havent Posted for awhile

Its been awhile since I have last posted,

Hope that everyone is having a good week so far.

I went to the rhuemy  a month ago, She did more blood work

She said I sounded like I had fibro,

She said she treated many  people with heptitis C that had fibro,

I go back This thursday.

I have just been having such a hard time,This last sat I had a birthday party

for a friend, I didnt evan think I did that much

Sunday I felt awful, yeasterday at work I was in tears ,total melt down pain everywhere

If I could have run away from myself I would,instead of sending me home they keep telling me how they live with pain and just keep going.

I get that alot, I do keep going I work 42 hours a week and try to keep up with my home life.

I wish more people could really get a heart felt truth about the feelings of others,

I hate to complain and most the time I do a good job

But here lately I feel overwhelmed,

I feel like others will think like my last doctor that this is a cop out excuse that I should

suck it up and move on.

Im sorry if I sound negative but its just been a long month and a really long week,

LOL evan though its only tuesday

I just needed a place to cry

Take care all

Always Renee

They don't understand and won't understand until they walk in our shoes.  I am assuming that you need to work so I guess there isn't a great answer for you.  Does your boss feel this way?  Could you move to part time?  Try not to think about the pain and focus on other things.  That helps me.  If you have a microwave at work, get a Bed Buddy...the shawl size....and put that around your shoulders. back, and neck if you have a desk job.  That will help with pain.  Also, print out a copy of the gentle stretching exercises in Fibro 101.  You can do these at a desk if that is the type of job that you do.  All this can help get you through the day. 

I'm so sorry you are going through this but you definitely are not the only one.  But we are very strong people and we can do just about anything if we put our mind to it!  I'll be praying that you get that pain under control soon so work isn't so difficult for you.

Sherrine

sorry about your pain and i am almost in the same shoes too cos i have HepC and fibro pain that no doctors yet to believe the pain and agony that im in.  I work in an office and none understand whatever im feelin.  They probably thinks i don't look sick so how could i feel so bad.

The Rheumy just saw me yesterday and just gently touch my back muscles and used stethoscope to listen.  The outcome is no pain signals sent.  She didn't check on the tender points and told me there's no need to see her in a month but 3 months' time.  So no diagnosis, no outcome, just plain muscle aches (that's never ending for me) but less one patient for her.  She even refused to refer me to pain clinic when i requested.  At least and finally, she rx muscle relaxants - Diclofenac and Orphenadrine + Paracetamol, maybe just to pacify me so i won't make any complain to the Board.

Have you done HepC tx yet?  how's your liver?  i'll be starting HepC tx in 2 weeks' time and hope to clear the virus and the pain.   Hope you can learn to pace yourself cos over-doing will only be paypack in due course.  Eliminate all stress and live as simply as you can.  Cos with HepC, the pain in more debilitating and stressful.

Please take good care and God bless.