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Posted 7/9/2012 10:40 PM (GMT 0)
Hello everyone and hugs to all of you,

Was just reading through many of the post on the forum and my heart goes out to all of you, was just sitting here thinking wish i could just push a button and make everyone pain go away because i know how this fibro thing can really get to you i was diagnosed 3 years ago but believe i had it for many years before being diagnosed and with age i am now 38 i seem to be having more and more symptoms pop up went to fibro 101 and was reading through the symptoms, wow their are so many things their but was comforting to know at same time because i find myself with almost every symptom their listed all but 5 or 6 of them, but here is what i think is so crazy once in a blue moon so to speak i will have a day where i hardly have any pain (these days are very few ) but i love those days and am very thankful for them but on those days i seem to catch up on so many things i fell behind on and keep myself very busy but then it seems the next day i wake up in so much pain can hardly move are any of you like this ? It is almost like my body punishes me for doing normal things scrubbing floor, going shopping , vacuming seems this is to much for me in one day . i have been having huge problem with dizziness and i know this can be symptom to fibro but the dizziness get very bad at times to where i feel like passing out also i notice when i am standing up if i close my eyes the dizziness also get very bad and i can not keep my balance at all i nearly fall down just wondering if any of you have this issue with your fibro? Thank You all for being here and listening sometimes i just need to vent . hugs to all of you and take care you all are in my prayers.
Posted 7/9/2012 11:54 PM (GMT 0)
Hi Anna Lynn,

I basically just wanted to say hello. I don't experience dizziness, though I lost it once when my blood pressure took a dive. I am sure that there are others who do experience dizziness and they will post. I just wanted to say I hope that you feel better and don't over do. We have to pace ourselves even when we feel good. Take care and have a good evening.

Hugs, Karen
Posted 7/10/2012 12:40 AM (GMT 0)
Hi Anna Lynn,

Yes, I experience dizziness on occassion, esp. if I overdo it for the day. To tell you the truth most of my flares start like that, dizziness, feeling off balance, etc. Thankfully I don't get flares to often. It's a scary feeling. I am 39 and I was diagnosed about 2 years ago. I am not working anymore and filed for disability. Since I have stayed home and really paced myself my fibro is "sleeping" more now lol. I just have to tip toe and try hard not to wake the monster up.

I know a few weeks ago my hubby and I went fishing for maybe a few hours. The next day I had a flare and woke up dizzy! As soon as I rolled over in the bed I felt dizzy. I got up and took some pain meds and muscle relaxer and laid down for an hour or so and it got better.

I have heard alot of people say they get dizzy too...but the "off balance" feeling makes me look drunk, and I don't even drink lol.

Take care

Karen

Posted 7/10/2012 5:22 PM (GMT 0)
Thanks for posting getting by and klambert1 :-)
Posted 7/10/2012 7:45 PM (GMT 0)
I posted on your other thread, Anna.  Please do get checked out to make sure there isn't something else going on, okay?

 

Sherrine

Posted 7/10/2012 10:23 PM (GMT 0)
Hi Sherrie,

Yes i am thinking to make another docter appointment this extreme weakness and dizziness is just really starting to get me down, today went out to run a few errands and was only an hour or so into it and i was so exahusted, i had to come straight home after only a little over an hour the weakness is extreme also shortness of breath seems to pop up at times also for no apparent reason make cause i am just soo weak i am just frustrated . Hugs sherrie and thanks for posting.
Posted 7/10/2012 10:30 PM (GMT 0)
Sorry Sherine i just notice i keep calling you Sherrie and this is not your name ,hugs it is the fibro fog kicking again this happens to me often :)
Posted 7/10/2012 10:31 PM (GMT 0)
I do get dizzy eyes blur some, totally drunk like/hungover like etc!

And I have good days and over do it, then my body punishes me that night or/and the next day!!!!

And all I have is fibro :-)
Posted 7/11/2012 12:09 AM (GMT 0)
When I was your age, I'd do the same way - I'd have a good day and over do it. Then the next day i could barely get out of bed to take the kids to school. Now I'm 48 and have gotten worse since then. I threw our big annual Christmas church chili party at my home (my hubby is the pastor) and I have yet to have a good day again. I was dx-ed w/ fibro May 21 and I went searching for answers. What I found was this great place and the people here. I am trying to learn to pace myself, say no to things (mostly so I don't let people down as I'm no longer reliable), I'm taking supplements in hopes it'll help.

With the dizziness, mine turned out to be the meds I was taking. I felt exactly as you say. Also, make sure you're drinking enough water. Lots of dizziness can come from being dehydrated.

I am still learning. I don't seem to have good days, but I do have good hours, or a good 15 minutes every now and then. I find that walking helps, but I can't over do that either. It looks like everyone's different w/ what might help them or hurt them, so I'm trying things out in hopes I'll find what helps me. I recently did some swimming and that went really well, but hurt a lot the next day.

Keep us updated on how you're doing.
Meg
Posted 7/31/2012 2:53 AM (GMT 0)
Wondering how you were doing! Dizziness can be caused by blood pressure, hypoglycemia, vertigo. I know we fibromites feel over/under doctored at the same time, but I am always afraid to attribute everything to fibro and miss something that should be taken care of.
Posted 8/1/2012 3:28 PM (GMT 0)
I am so glad to see that I am not the only one who is suffering from the results of FM.  I was just diagnosed two weeks ago, I also have Celiac Disease & of course IBS also.  I have had body aches & pains for the past 20+ years, especially my lower back, when you touch it it feels like bone on bone but did not now for sure what it was.  In the past few months I could not even be touched by my knees, the pressure point, without feeling like I was going to go through the roof.  I have had pains in my neck, shoulders, between my shoulder blades in my back.  I am not sure if this goes along with it but at times I feel like my arms & legs feel like they weigh a ton.  Last year I started having my fingers & wrists hurting not knowing why.  I went through so many years of hurting but not knowing why, the doctors thought maybe I had sleep apnea, my oxygen levels we okay but I was just not getting into the deep sleep I needed, I was asleep but not asleep.  The doctor asked me what pain I was having and I did not even think about all the places except my back.  He was wise enough to check the pressure points, he checked 13 of the 18 and I just about jumped out of the chair, that is when he told me I had Fibromylagia, the only problem is that he is a Sleep Study doctor and can only help me with medication until I am through seeing him.  I can't get into a R heumatologist for another 4 months.  This doctor started me on Gabapentin which helps me sleep but does nothing for the pain, especially during the day.  I am so tired and have no energy.  I still have to work to pay bills but sure wish I could quit, only if I could get Medical Retirement.  The stress of work, home, children and also taking care of my mother-in-law after working 10 hour days is really putting me down & my husband just keeps saying what else is wrong and where else does it hurt, he just doesn't understand.  Well thank you for letting me go on & on, any advise will be greatly appreciated.  
Posted 8/1/2012 5:29 PM (GMT 0)
Hi Mermaiden,

Thank You for your reply and nice to meet you. Yes i still am having dizziness it is just awful at times and my blood pressure does seem low ,so i am thinking this is a contributing factor to the dizziness it is not uncommon often for mine to be 93/57 and sometimes falls much lower one day last week i was feeling very bad took it and reading was 89/53 i mention this to the doc last time i was their and even kept a record of blood pressure readings for him and he look at the readings and said looks like i possibly could have orthostatic intolorance /orthostatic hypotension but at that time i had been having so much problems with migraine headaches and also terrible severe pains in my head quite often he was focused on getting and mri to make sure their was no issues their everything came back okay on mri he said, so why i get these terrible awful headaches i guess may just because from the fibro i guess but they are so debilitating or maybe now i am thinking they are caused from the low blood pressure also i know you mention hypoglocemia my mom has this maybe this could be an issue also, i am not sure just very confusing all of this the dizziness is so very bad at times i feel as though i am going to pass out i get extremely week and feel like my ears are filling up this is really getting to me its has been about a month since i went for mri but i know i need to go back and tell him we really need to focus on this dizziness and low blood pressure thing and what is causing it because it is really getting me down along with all the migraines and severe head pain sometimes i think fibro surely cant cause all of this can it? Oh i almost forgot have any of you ever heard of the Romberg test it is a test where you stand up close your eyes and put you arms out in front of you i tried this the other day and i failed i could not keep my balance at all not even for 5 seconds i fell back just wondering can fibro cause this kind of thing also ? I just know i need to call the doc again but i get so tired at times and frustrated i just want to feel 38 instead of 88 lol.
Posted 8/1/2012 5:50 PM (GMT 0)
Hi Grammie,

Nice to meet you and welcome to the forums. Yes fibro deffinitally causes lots of pain and yes also often sleep issues where you can sleep but never feel rested infact i do believe many here would agree while fibro can cause many symptoms, the hall mark symptoms meaning the greatest one are muscle problems and sleep issues but the weakness you are having i am not so sure this is cause from fibro over the last year i have developed also extreme weakness along with all the muscle fatigue plus i have extreme exahustion after only an hour or two of work my doc also mention could be CFS Chronic fatigue syndrome so many things they mention but hugs to you if you keep having lots of issues with weakness i would tell the doc this could be something else going on also i know it is difficult when spouses or others very close t you do not understand our pain i have found also with my spouse i think it is very difficult for him to relate to all the pain i have maybe print up some info from online about fibro and let him read what all it can cause this may help him to understand more what your going through .
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