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Posted 7/12/2012 3:48 PM (GMT 0)
I've accepted the fact that along with fibro that I have  autoimmune issues that could potentially kill me. As time goes by and symptoms pile on, it is harder to deal with...now that I'm dealing with progressive heart and lung problems there is no denying, I'm not as strong. I'm still hanging on to hope like a rope but there are days where I feel like I'm fooling myself.

I haven't admitted to hubby or family that I'm frightened...I'm trying to be brave and strong. I know they are scared for me too and I dont want them to worry.

"Hope is not about everything turning out OK...it is about being OK no matter how things turn out. " I have this posted on a post it note and I read it often to convince myself I am OK.

Thank You for letting me share my fears with you...sorry it isn't more positive.

Hugs, Robin

Posted 7/12/2012 3:53 PM (GMT 0)
Robin, big hugs to you. I can't say I know what you're going through, but please know that I am keeping you in my thoughts and prayers. If there is anything you need, feel free to lean on me.

Hugs,
Amy
Posted 7/12/2012 4:05 PM (GMT 0)
Hi Robin,

I know if anybody can handle this, you can. You are such a strong lady. But there comes a time when we have to put it in a higher power's hands and have faith that we can handle the situation. You are always so positive and cheer up the forum daily. Take time out for you and for healing. Remember how special of a lady you are.

I am so happy to have you on the forum. Take care sweetheart, and take care of you...

Hugs, Karen
Posted 7/12/2012 6:54 PM (GMT 0)
Robin

Of course you're scared, who wouldn't be? There is nothing wrong with being scared just don't let it paralyze you and make you give up.

You worry you are just fooling yourself, but without hope how would any of us get through the day? You hang on to your hope with every ounce of strength you have.

If you feel your grip on your hope slipping, get right on here and ask us to grab on and help.
Posted 7/12/2012 7:04 PM (GMT 0)
When I get a new and different symptom from this fibro I also become

fearful and have learned to calm myself by asking "What am I afraid of?"

And then going through a meditative process to try and get to the root

of my fear.

So I am curious, "What are you afraid of?"

Posted 7/12/2012 7:14 PM (GMT 0)
Hi Robin,

We are all holding on to you and lifting you up and praying you up and loving you up!!!  I like many others here can relate. I've been told recently other new dxs. Until just recently I was down at the bottom and scared...but I had folks like the wonderful people here and my friends and family praying me up..I call this journey we are going through a roller coaster now...sometimes your at the top...sometimes your at the bottom...I am not one of those folks that have found that middle ground yet...I'm learning to pace! Sounds easy but this is my hardest point to get...when I feel better I want to tackle the world.

I started juicing and I have to admit I'm feeling better. I added protien powder and flax seed and all raw stuff. I do buy frozen fruit but no added sugar. I also started that hormone treatment. Heck, I can't remember what it's called now...another thing that I started again and I HATE that I had to do it was adding a small dose of steroids.

Being afraid is ok! I talk to God and I tell him, I'm scared, I'm mad and I seriously don't want anymore of this life if this is all HE had got planned for me..HE knows how we are feeling anyway...I say speak it out loud..not to long ago I went for a car ride by myself. I couldn't go far because I shouldn't have been driving...I screamed bloody murder!!! screamed and screamed and screamed...and ya know what...I've started to feel better...

Being afraid is so ok, but don't give into it!  God is not fear, He is love.. HE loves you and  so do all of us!   I didn't mean to get all preachy but for me I want to know that someone is in my corner....and it is hard to tell your family because no matter how much they say they get it.....hmmm, they don't!

I haven't on the board in a long time, because at the bottom of the coaster!  Today I thought let me see what is going on, when I saw your post I felt drawn to reply...

I'm sending you gentle loving hugs!!!!!

Jerrie/FibroNana

Posted 7/12/2012 7:19 PM (GMT 0)
{{Robin}}

Oh, gosh. I wish I could give you a real hug! Of course you're afraid. You wouldn't be human if you weren't.

We love you....and we're all pulling for you.

Debbie
Posted 7/12/2012 7:40 PM (GMT 0)
Sending you soooo many hugs...I know if anyone can face these things with positive thoughts and actions, you can.  You are still my hero!

HUGGIES!

Donna

Posted 7/12/2012 11:21 PM (GMT 0)
Thank you all for the caring support...I do love my fibro family...you've been here with me through the good and the crummy :)

I love my life and I'm not in a hurry for it to end...yeah, I believe in Heaven...but Heaven can wait !!! My hopes are to grow older with family and friends.

My faith keeps me going and I will continue to do what I've got to do...the good Lord willing.

Next week, more testing...heart and lungs...my hope is that my lungs are not fibrosing (getting stiff and hard). Lung function tests are progressively getting worse. I'm dizzier than usual, with a nagging dry cough.

My pity party is over...I'm counting my blessings and for sure I am blessed to have all of you in my life.

Wishing better days ahead for all of us :)

Hugs, Robin
Posted 7/12/2012 11:41 PM (GMT 0)
Robin, I think most of us have had those days where we have some fear about our health issues. Having fibro seems a never ending health problem. It takes work to stay healthy for me these days. I can totally understand your thinking. I have been down that road too many times myself. I hope you feel better. Remember to take one day at a time.
Posted 7/13/2012 11:52 AM (GMT 0)
Robin, I think you are doing amazingly well for all that is on  your plate.  No, you aren't ready to leave yet but from what I have seen, when it is time, you will be ready!  So try not to dwell on these things.  Any one of us could pass on at any time.  We just don't think about it, and that's a good thing.  You wouldn't be normal if you weren't frightened to some extent but don't let that overtake you.  Always remember that God is with you and He didn't cause this stuff to happen to you, either. 

 

The old one day at a time works here.  Don't project yourself in the future.  Who knows?  They might come up with something that makes your autoimmune illnesses better.  We just don't know what the future holds.  I just read that they think they found the "key" to Alzheimer's and can probably produce medication to stop this from happening.  (It's a mutant gene.)  So, I'm sure studies are going on right now for your problems, too.

 

I have a card on my refrigerator that really helps me.  I hope it will help you, too.  It says:

 

"LORD help me remember that nothing is going to happen to me today that You and I together can't handle."

 

Sherrine

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