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Posted 8/5/2012 9:01 PM (GMT 0)
Iam new to this forum but i really need help. Iam 53 and was dx with fibro,cfs, ddd and hypothyroid, in 2001. about 3 weeks ago i woke up so tired and painful i could not do a thing but sit around, i have started to notice other things as well, my hair is everywhere, headaches, arms and legs feel like i have run 100 miles nonstop, my brain is fuzzy and i just feel out of sorts. Iam on meds for all and they have been ajusted at different times according to bloodwork, but i have never felt like this and can not get anyone to listen!!!! Please help, does anyone know what iam talking about? Thanks guys Tina

Post Edited (billy- girl) : 8/5/2012 3:25:02 PM (GMT-6)

Posted 8/5/2012 9:27 PM (GMT 0)
Hi Tina,

I think we all know what you are talking about. I am 53 also but have had this since I was about 42. So it has been a long haul for me. But I think I have found what works for me now so I am better than I was. I slept for close to two years. I missed out on a lot of life.

If you go to the first thread on the forum called "fibro 101" you will find a great deal of information there. I think it will help you a lot.

Keep posting, know that we care. I hope that your day gets better.

Hugs, Karen
Posted 8/5/2012 9:36 PM (GMT 0)
Thanks Karen, I do feel alone sometimes, its like everyone is sick of hearing me complain and seeing me in pain with NO energy!!! Thanks again Tina
Posted 8/6/2012 2:30 AM (GMT 0)
Hi Tina, I am 54 and it's like suddenly I ache and feel like I'm 80. Take some time read fibro101 loads of great info there. Remember you have found a place where we all have the aches, pains some of us use medications and or suppliments to help.
Posted 8/6/2012 3:36 AM (GMT 0)
Billy Girl Welcome- I am glad you found this site because it has been a life changer for me. I hope you can find some helpful hints to make your life much easier. The support alone is wonderful here.

It just amazes me when I read new commers post that they are going through the same symptoms as me. I also have low thyroid. I felt like somebody suck the energy out of me and I ache more. I am finally starting a low dose of synthroid. I can tell a difference already. Hopefully you can get your thyroid balanced.

I came to this site in miserable shape and was desperate for some help myself. I got some ideas and educated myself with books on fibro. It took some trial and error to figure what would for me. As you will read and see we all react different to treatments and meds. I finally got a good plan for fibro now. I have found out the hard way, but the more simple I can keep it the better I am.

I was very surprised when I started taking vitamins supplements on how well they work. I just need to change my diet now. I am sruggling with that one. Lol I have made some small changes.

I hope we can be very helpful for you and anytime you need to ask questions or need that hug let us know. I hope to see you around the forum.

Post Edited (ak angel) : 8/5/2012 9:39:21 PM (GMT-6)

Posted 8/6/2012 3:55 AM (GMT 0)
Hi, Tina.

It is freaky when you've been long-diagnosed with fibro already, you're treating your symptoms, and all of a sudden you feel even way worse!

The first thing that popped into my head when I read your post was also a question about your thyroid level (as Angel suggested.) Just a thought...going on generic synthroid didn't make me feel better, but the doc says I'm low, so I take it anyway.

Hope to get to know you better, and hope you start feeling better.

Debbie
Posted 8/6/2012 1:09 PM (GMT 0)
Angel thanks for those words, i really needed them!!!! Debbie I take 2 thyroid meds, just had bloodwork and she increased one of them about 2 months ago but i seem to feel worse. I have to say that iam really getting tired of feeling bad all the time, nothing seems to help, havent been the same since 2001,only short pers of feeling well but not normal, really dont know how much more i can take!!!!!! Iam on 2 thyroid meds, vicodin 10/350 2x a day, opana er 2x a day, 1 antidepressant daily, nuvigel 250 daily and a stomach pill to keep all these from killing me! I have fibro, cfs, ddd, hypothyroid arthritis and depression, no wonder, but nothing is really helping. Tired of taking meds. I have a pcp and i go to a pain clinic once a month, cause i think my pcp was getting tired of me, cant blame her i tired of me!!!!!!
Posted 8/6/2012 1:27 PM (GMT 0)
Hi, Billy-Girl, and welcome!  Medications can cause you to be tired.  Maybe this new dose that was given to you is the culpret.  Also, you possibly could be anemic.  This happened to me a year ago.  I take ibuprofen for pain and developed bleeding ulcers.  I kept getting more tired and my doctor thought it was just fibro.  I did some research on my own, asked him to check for anemia, and I sure was anemic!  I'm fine now but not everything is caused by fibro.

 

If you live in an area that is getting a lot of rain and barometric pressure changes, this can make your pain and fatigue worse, too.  So you could have a couple of things going on.

 

I've had fibro for over 25 years and have had a wonderful life in spite of it.  I'm now 65 years old and enjoying myself.  I have figured out what works for me.  I do take ibuprofen again, along with some medication to help protect my stomach from more ulcers, I use extra strength Tylenol, malic acid/magnesium supplements, vitamin D3 supplements and an alternative pain medication called Curamin.  I do take a prescription muscle relaxer that has helped me a lot called Robaxin.  I also walk daily, do stretching exercises, and pace myself.  All of the above helps me live a good life with fibro. 

 

Everyone is different.  What works for one doesn't necessarily work for another.  You have to try different things to see what works for you.  Like Angel, I like to do things more "naturally" first before I head for the heavy duty meds.  I'm glad these over the counter things help me. 

 

Be sure to read Fibro 101...the first thread on the forum.  It's filled with good info about fibro.  There are links about malic acid/magnesium and the vitamin D3 supplements and how they work in the body.  It's something to consider and bounce off your doctor. 

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 8/6/2012 3:24 PM (GMT 0)
Sherrine, thanks for the advice! Iam allergic to ibuprofen, my face swells up, and muscle relaxers make me feel strange and then i have a panic attack, when i was first dx 12 years ago thats what they put me on along with paxil due to high epbarr and i began to have reactions so they put me on percocet and even tho i didnt want to become addicted at that time i was in so much pain i would have taken a dog turd if it would have help, sorry to be blunt but iam really having a bad time, cant seem to get over this flare, its the longest and worse i have ever had. I do live in fl and have all my life and even with the rainy season i have never felt this bad, cant sleep and hurt every where!! Iam so glad you have been able to find something that works for you and that this s _ _ _ _ d fibro has not gotten the best of you and you have been able to have a wonderful life, i keep praying it will happen to me one day!!!! I nevet have good or normal days, sometimes it gets to be too much for me!!!! Thank you for the suggestions, guess i have to keep plugging away at it. Have a great day TINA
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