I'm New and Need Help!

Hi everyone! New here. Not so new to the pain. Have been dealing with depression and anxiety since age 14 Along with aches and pains. But over the past two years things have REALLY flared up. I've spent the last year having nerve tests, every blood test you can imagine and LOTS of crying. about 4 months ago, i got a secondary diagnosis of fibromyalgia. Which broke mine and my moms heart because we were wishing that it wasn't. My mom has suffeed from fibromyalgia for almost 13 years now. Anyway, i'm 18 now amost 19. And running a restaurant for my uncle. I spend my nights awake in pain and dread the soon coming morning... mainly looking for people who understand what i'm going thru. Because i have nobody to talk to about this that believes me.I'm currently taking 450mg of lyrica a day and still having immense pain. Just to give you an idea of where i'm at. Please help!

I gave you a subject line.  This way  you will get more responses.

 

Sherrine

Post Edited By Moderator (Sherrine) : 8/10/2012 7:12:58 AM (GMT-6)

Welcome inpaindaily! You found the right place to learn and get support. The pain can be bruital at times, but once you can learn your limitations I think it gets better. Once I learned what made my pain worse, I made changes in my lifestyle. It made the world difference. You being so much younger makes it a little harder to adjust. When your young your body wants to play all the time. Lol As you will learn certain activities might set the pain off.

The best thing is to read and educate yourself on fibro. You might have to cut some hrs.on working if your that miserable. Stress is a big factor with fibro. I try my best not to go looking for extra stress. Taking vitamin supplements and a good diet makes a difference.

I had fibro at early age, but the education wasn't available on fibro back then. You have advantage with all the new info on fibro out there. Try not to be discourage because the treatment is so much better then when your mom was diagnosed or me. I have found out the more simple I keep my treatment the better I have got.
You can still have a productive and fun life with fibro diagnoses.

I am so glad you found us. I hope you continue to keep this a favorite site. It has been a blessing for me. It turned my life around. I hope it can do the same for you.

Post Edited (ak angel) : 8/10/2012 1:00:14 AM (GMT-6)

Hi, Inpaindaily, and welcome!  I gave you a subject line so you will get more responses.  I want to make sure the members see you have arrived!

 

Guess what?  You can have a good life in spite of fibro.  You just need to try things to see what works for you to control the pain.  Obviously, Lyrica isn't working for you so I'd be on the hunt for other things.  Does your doctor know you are still in a lot of pain while taking Lyrica?  I'm a weird one.  I don't take anything that doesn't help me or makes me feel worse so, if this were happening to me, I'd be talking to the doctor about it.

 

I was having extreme pain this winter and at first put it off to fibro.  That's so easy to do.  We do it and so do the doctors.  But, I decided to see an excellent rheumatologist in my area and, boy, am I glad I did!  It turns out I have another illness that was causing the extreme pain.  I still have fibro but I had that too.  I was treated with  the proper medication and it is amazing how much better I am now.  See, if I hadn't continued searching, I'd still be in a ton of pain!  You and your Mom can go on a hunt together and get help so both of you feel a whole lot better. 

 

Be sure to read Fibro 101...the first thread on the forum.  There are links to good info about fibro and you will learn a lot there.  Knowledge is power and you do need to be your own advocate with this illness.

 

I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, vitamin D3 supplements, and an alternative product called Curamin.  I also take a prescription muscle relaxer called Robaxin and that has helped me immensely.  There are links in Fibro 101 about the malic acid/magnesium and vitamin D3 supplements and how they work in your body. 

 

Also, gentle exercises is very good for fibro.  If you sit or lay too much, you will be stiff as a board and have more pain.  Good gentle exercises are walking, swimming, and  yoga.  I walk and, even though I don't feel like heading out the door in the morning for a walk, I do it because I have less pain and less fatigue by the time I get home.  Besides, I love looking at all the beauty that is around me and that helps me feel better, too. 

 

Keeping a positive attitude has helped me as much as any medication.  We all have many good things...blessings...in our lives but many times just focus on the negative things.  This can help bring on anxiety and depression and I sure don't want that.  I have had both at times in my life.  There is a link in Fibro 101 about maintaining a positive attitude and I do refer back to that a lot.  I hope it helps you as much as it has helped me.

 

Pacing yourself when doing things helps, too.  I will do a little, rest, do a little more and it all gets done but in a different time frame.  Your body will thank you for that.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from  you...and your Mom...soon!

 

Sherrine 

Give tiger balm a try. When nothing else helps I rely heavily on rubbing myself in. Together with my electric heat pad it brings relieve. Good luck!

Inpaindaily, you posted this in the wrong thread and it didn't make any sense.  So, I'm moving your post here. 

 

Sherrine

 

So far everything you have mentioned as far as lupus and others have been ruled out. My rhumatologist is planning on testing me every four months to find the main cause of my pain. She told me that it could take years for it to present itself thru bloodwork. I will try the tiger balm. Hopefully that will help. I have found that the new zzzquil. The non habit forming sleeping pill that nyquil has put out is helping me sleep. I've been flaring terribly for the past 3 days now and all i want to do is curl up in a ball and cry. Nothing helps. the zzzquil last night helped me fall asleep and thank god for that or i wouldnt have slept at all.... i just want to thank all of you so much for giving me people to talk to. It helps me feel a little better:) <3

So far, everything that you have mentioned has been ruled out, as far as lupus, rhumatoid arthritis and so on. my rhumatologist is planning on testing me every 4 months or so to wait for the main cause of my pain to present itself thru my bloodwork. She told me that it could take years.. So I`m preparing for the long haul.

 

I will try the tiger balm and see if that helps, I`m TRULY willing to try anything. And I really mean ANYTHING.

 

I have been flaring for the past few days, and all I want to do is curl up into a ball and cry.... Have you ever been in so much pain that you actually feel dizzy/light headed? Almost sleepy like you could fall asleep at any moment if you sat in the right position?  That's how I`ve been feeling lately.And it's terrible and embarrasing.

 

I run a restaurant for my uncle, because he has been on bed rest for almost 3 months now.. I basically work open to close and sleep any chance I can get, if any. But, there is nobody else that can take on the responsibilities that I have. Which makes it extremely tough to get a break.

 

I have found that the Zzzquil that nyquil has come out with (it's a non-habit forming sleeping pill) works AMAZING! I wake up in the morning not feeling groggy or anything, except for my usual constant pain. and I HIGHLY suggest it. If it wasn`t for that last night, I wouldn`t have slept at all. It works!, and puts me to sleep in less than an hour which is record time for me! lol

I have been flaring for the past week and it`s absolutely horrible. All  I want to do is curl up in a ball and cry. It`s very embarassing to me that I am in soooo much pain and others around me who are 20-30 years older are in shape and in no pain at all. I`m still learning to deal with all of this. Especially when people complain to me about a headache. For some reason it just really irritates me. Because I would trade this pain for a headache ANYTIME....

I feel like I sound like such a negative person.. And I`m really not. I love everyone that I work with, My family and I are VERY close. My mom is my best friend, and my little brother is going to be an amazing man when he grows up. He`s pretty much perfect. I work to help my family pay their bills along with mine. And I love to work! Everybody calls me a workaholic.haha.And in my spare time, I read. I`ve got a cat, a hamster and a gerbil, they're the closest thing I`ll probably ever have to children, but they keep a smile on my face..

I could type forever. But, I`ve written enough..

Thank you ALL SO MUCH for being here for me, and for the information. <3

I would NEVER wish this on anybody... Not even my worst enemy..
I`m just glad that there are sites like this were we can all come together and share our thoughts.
I haven`t given up, I just have a TERRIBLE time with all of this.

We all have had a terrible time with this illness.  It's difficult to accept...especially if you are a young person, which you are.  I was 39 when I was hit with fibro and that was bad enough but we have members in their teens! 

 

I did finally accept this illness and I just thanked God that I could get around, walk on my own, maintain my independence, etc.  I knew people, who didn't have fibro, who couldn't and, after I developed fibro, I was amazed at the things these other people could do.  I had never really thought about it before.  I started my search to help me control the pain and once I found what works for me my life opened up again!  I've done so many things that I never thought I would be able to do with fibro!  This should happen with  you, too.  You just haven't found the right combination of supplements and medication to get you to that point.  It's out there. 

 

Meantime, as Debbie said, vent, ask questions, etc.  It all helps.  There were no support forums when I got fibro so I talked to myself in the mirror.  LOL 

 

Sherrine