Fibromyalgia following Complex Regional Pains Syndrome/Reflex Sympathetic Dystrophy

Five years ago I was diagnosed with stage 2 CRPS/RSD involving my right leg. Great relief was achieved with a procedure involving inserting a needle into my spine until they reached an area that caused my leg to warm indicating increased blood flow. I was told at the time that there could be a another occurrence and it would not necessarily involve my leg.

For the last 15 months I have experienced generalized pain that is virtually debilitating. I have had significant relief from Chiropractic care and it has been suggested by my chiropractor that I am suffering from fibromyalgia. I am told that there is believed to be a significant incidence of fibromyalgia following CRPS/RSD.

Does anyone know anything about this? Could you tell me what further things I should consider?

Hi djjl and welcome. Many have gotten fibro after a physical or mental trauma so I don't know why you couldn't get it. Some people can't relate anything to their getting fibro.

 

Read the fibro 101 thread, second on first page, it contains lots of great info including a list of symptoms that you could print out and check the ones you have and take it to the doc if you find you have many of the symptoms.

 

You need a doc that believes in fibro, there are some that still don't believe it is a real illness and think it is all in our heads. It doesn't matter what kind of doc some use internist, rheumatologist or PCP. My GP dxd me after ruling everything else out, which is also in the fibro 101 thread under what else could it be.

 

If you have anymore questions feel free to ask.

 

luv and hugs

Marlee

Hi Eliza,

Welcome!  You will find a lot of information and support here.  I found your post particularly interesting.  I was diagnosed with Fibro 6 years ago.  I knew a good deal about chronic pain because my father also has RSD/CRPS.  I think it is marvelous that you have found a way back to standing on your feet with the RSD.  My father has had it for about 17 years and still has a daily struggle.  He also had a SCS but found that it wasn't the answer for him.  I have also thought recently that he possibly is starting to show signs of Fibro as well. 

I think one of the best things you can do is educate yourself about Fibro.  There is A LOT of unknown, but there is a lot of information out there about what is "normal" and what you can expect.

Lastly, I too am on the young-er side.  I was diagnosed when I was 24 years old.  I know our struggles can be very different from those who are in their 50's and 60's.  Please know that you are not alone and you can still live a full life and accomplish all of your hopes and dreams.

I hope you find much support from this wonderful forum!