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Posted 11/19/2012 9:33 PM (GMT 0)
hi everyone, I am so sorry that I havn't been on latley. I just got a new job about 2 months ago and its been hard for me to keep up. Its been a long time since I have had a 40 hour a week job, that and for the last month they have been requireing an extra hour a day. I just got my perminit schedual which I was very excited about...4 10hour days and 3 days off....now it 4 11 hour days and its just killing me. I have missed 3 days since starting this new schedual. that is inluding today and yesterday. My pain is so bad my percs are not helping at all...Im taking 2 of the 5/325's and its not touching my pain...ive taken a bath with both bathsalts designed to help with muscel pain and apple cider viniger(wonder if the viniger will hurt my hair in the long run idea ) and nothing is helping... All I can seem to do is sleep today...I slept from 3am to 2 pm and I am still sooo tierd.I am even haveing leg spasms (does anyone else have these mine suck! usuly just in my legs, but today they are spreading to my arms, i hardly ever have these though idea )Ive tried to play my video games to take my mind off it...it was no good, didn't help at all...can't concentrate....can barly focus....need some ideas to help me i can't keep missing work I need this job. I have till December 11th(hopefully) that my insurance should kick in, adn then my new doctor I have which is very nice aboue my fibro, wants to send me back to pain managment. I am hoping to egt some therepy in as well I know i need it. please if anyone has any ideas let me know.

Fish

also my dog will not let me out of bed, somehow she has always been able to since how bad I'm doing sad

Posted 11/20/2012 1:20 AM (GMT 0)
Sorry to hear you are having a difficult time.

I've been working hard to work closer to full time hours this year but its been tough. I started in August but I haven't completely adjusted either. I can imagine that 11 hours days would really be trying to adjust to if you haven't been accustomed to it.

Perhaps being able to see your doc and get some treatment will help you so focus on getting to that point.
Posted 11/20/2012 7:22 AM (GMT 0)
Catkittyfish - sorry your in so much pain. I hope the new hrs. are going to help you. I don't think I could do it. What kind of job are you doing?
I look up to all of you that can work still. I wish I had some helpful hints to give you, but I don't.

Rest when you can. I have a dog that stays right under me if I am sick.
Posted 12/2/2012 4:32 PM (GMT 0)
I work at a call center for verizon wirless...i just seem to not to be able to get over this hump with my pain. My pain hasn't been this bad since I first come down with my fibro. This morning I woke up screaming cause my dog touched my trying to wake me up to go potty cry . I really need this job, its great for me, not physical at all, adn they promote really easily, I even talked with a supervisor that has fibro as well. they really seem to be pretty understanding. I haVe been in constant contact with my supervisor and he knows I am trying hard to get past this. I also should be getting full insurance, I havn't had insurance in 5 years (i think)

I have been in constant contact with my doctor. He is new to me but seems like he sincerly wants to help me, he is sending me to a pain managment place. I have dont pain managment before, when I was 16 and it didn't go well for me. I'm alittle nervsous about going back to one but at this point I just need to get the pain under control. We where trying to wait till my insurance kicked in, which was going to be in Janurary, but Ive gotten so bad so fast and there is nothing else my doctor can do. Now I am just waiting for them to call me. I am really hoping to get into some therepy agian. i know when I was younger massage really helped, gonna try to start that up agian. My doctor did put me on a new medican... its called Savella....yeah it made me throw up violently twice a day every time I took it. I also have had a very bad reaction to the lyrica...it almost killed me (very scary) shocked , I had the 1 in 500 reaction to it. It was bad. 

I'm on perceset for pain...i am on 5 mg. It was helping, now its not....my boyfriend is on 10mg and he helps me when i forget my pills and they hardly help. Ive been to the hospital twice in the last 3 weeks for the pain. When it gets really bad, my bofriend cant even touch me. This just keeps happening more and more. I'm really worried Im going to lose my job...I have up to 12 point I can aque I think I;m at 5 counting today. The points can fall off based on over time and they fall off after 3 months I htink. They do have FMLA at work but you can't get on it till after a year, I guess my supervisor can put me on something like it, but he is a new supervisor and he doesn't know much about it, I am going to talk to him agian today about it. I do have doctors notes for everyday I have missed, but its getting reall expensive, I dont have insurance yet. :(

I have cut out all foods that could give me a flare up, taking baths daily for the pain. i have a little tens unit, and normaly that would help me alot, but it hurts way to bad to use it. I am basicaly only eating fruits and veggies...some meat here and there..chicken, left over turkey. but my appite is basicaly gone from the pain. Im so worried about my job though, I'm trying to do everything I can to keep it, keeping my supervisor informed and everything i can think of. Sorry I have talked so much and sorry if I have repeated myself, doing really bad today....had to call off work agian, just cant seem toget around. Ive been in the bath with my apple cider vinager, no help there today....gonna sleep it off I think. Lots of gental hugs to everyone.

 

Posted 12/2/2012 10:50 PM (GMT 0)
I'm sorry about all of the pain you are dealing with. I know what you are going through. Too bad about the long shifts, do they have shorter shifts available? I work for a computer company 8-5 M-F and since I'm in the financial department I have super long weeks at the end of every quarter. The end of September I worked a 60 hour week. It is incredibly hard to work overtime. These are the tricks I've learned to get through those long weeks:

First of all, my mom used to pour apple cider vinegar over her hair to make it shiny, so I don't think it would be bad for your hair. :)

Sleep...sleep as much as you can. The weekends before and after my quarter end week I don't plan ANYTHING. I plan to sleep, rest and do my laundry. Occasionally I'll get things prepared to stuff into a crock pot. I don't clean the house, I don't go out, I plan to do NOTHING. During the week, I come home, say hi to the kids, ask them if they need me to sign anything and then go to bed as soon as possible.

I have three teenagers so I stock up on frozen dinners for the kids to fix for themselves. Both because I'll be home really late and because I know I'll be too tired to cook anything anyway. I also stock up on ready made salads and easy to eat fruits so I know we're all eating healthy but it is still easy.

First thing when I get up I take 1/2 of a Vicodin and 600 mg of Advil. This seems to be the magic combination for me. I've also discovered that if I take the pain medication first thing before my pain gets worse I'm better able to stay on top of it. I don't do this every day, but when I know I'm going to be working a long day I don't want to let my pain get out of control if I can help it.

I move as often as I possibly can. My work has sit/stand desks available for those who have a doctor's note. This changes the height so if my tailbone is hurting i can stand at my desk and still work. I have a diagram of simple stretches I can do while sitting tacked to my wall and I try to do them whenever I think of them. I get away from my desk and walk during each break (3X a day or more on longer days) this helps calm my mind, release my tense muscles and warm my muscles up.

Drink lots of water and avoid caffeine and sodas. Coffee and soda both seem to make my pain worse. I've also found when i let myself get dehydrated that i get headaches. I also try to keep healthy energy dense snacks like mixed nuts or cut up apples with peanut butter around. When I was answering phones in our call center I had four minutes between one call ending and the next one starting which was enough time for a few bites to keep my strength and energy up.

As soon as you have insurance and you are able I encourage you to try acupuncture. This has been a Godsend for my tense muscles. I have no idea why sticking a needle into a tense muscle will help it relax, makes no sense to me...but it does! I feel so much better now than I did nine months ago when I started.

Communication with your supervisors is the most important. When my supervisors saw me there at work and they could tell by the way I was walking that I was in pain they were very supportive of me because they knew I was trying! I know that your situation is different than mine since mine is one or two weeks every three months and yours is long term, but I think that some of this might help while your body adjusts to the new schedule and while you are waiting for insurance.

I wish you luck!

Joy
Posted 12/2/2012 11:02 PM (GMT 0)
LOL Namian, you sound like me. Figure out what you need to do to make the hours at work, work.

My rules:

Shower first thing. Helps beat the stiffness in the am.
Pain killers next. That way they take effect asap.
No sitting on the bed. Not for hose, socks, nothing. You can likely imagine why this rule came about.
Pack lunch, snacks, drinks, bag the night before. If I don't, it doesn't get done properly.
No caffeine after a certain point, unless I have nighttime rehearsals.
Sleep when you can.
ID the time you can take braindead moments. The car during a
break, the bathroom stall, lock/close the office door for a bit.
Stretch and move.
Someone in the know helps.
Posted 12/2/2012 11:58 PM (GMT 0)
LOL Myself "No sitting on the bed" LOL yes I can totally see how that came about!

Joy
Posted 12/4/2012 7:47 AM (GMT 0)
Hi Catkittyfish,
I applaud your motivation and commitment to your work. I don't know how you do it! Do you find that your pain is worse if you don't move/exercise? I do. Your dog reminds me of my loving husband, he encourages me to rest and I do rest but there is a fine line for me between too much exercise and not enough.
I am having a bad flare up currently ... So I literally can feeel your pain and I know what you are going through. But we are strong, confident and loving creatures, right? So, we can handle anything!
Alll power to you! Take care of. Your precious self.
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