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Does anyone have meralgia paresthetica?

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Posted 1/14/2012 10:36 AM (GMT 0)
I have been having problems with numbness, tingling and pins-and-needles sensation, burning feeling, and then feeling like a hot poker is being thrust into the outside of my left thigh. It got so bad at Christmas I had to stop several times while I was cooking and rest until some of the symptoms went away. I had an EMG in December, and as I entered the room and told the doctor my symptoms, he remarked that it was most likely meralgia paresthetica and that mostly overweight people got it and it was caused by wearing clothes that are too tight and it's caused by the pinching of a nerve in the groin. At that time I knew he was dismissing me. I let him know that I do not wear tight clothes. He really made me mad the way he dismissed me. I don't think he did an extensive test on me (of course, I can't prove it), but the results of what he did show that I don't have any nerve damage. So, I'm left with the meralgia paresthetica diagnosis and nothing will be done about it; I'll just have to live with it. It makes me so mad I just had to vent.

I had similar symptoms back in 1993 when I wasn't as heavy as I am now. I scheduled an appointment with a surgeon. At that time, my left leg was larger than my right leg and I had a HUGE varicose vein sticking out (the left superficial femoral artery). It stuck out a good half inch from my leg and was the source of constant pain. It really affected my lifestyle. After I told the doctor my symptoms, he looked at me, DIDN'T do any kind of examination, and told me to quit wearing tight clothes. Of course, the left leg swelling did make my pants on that side tighter, but he would have discovered the varicose vein if he had just done an examination. I wasn't as bold then as I am now, so I just left his office and lived with the pain for another 5 years before I had that vein removed. Sometimes I just hate doctors.

So, do any of you suffer from that? I'll check here again Tuesday as I won't have internet from tomorrow until Tuesday.

Thanks.
Posted 1/14/2012 2:01 PM (GMT 0)
Have you been checked for diabetes?  That can cause meralgia paresthetica, also.  I looked it up and found this link about the causes of this problem.

 

http://www.mayoclinic.com/health/meralgia-paresthetica/DS00914/DSECTION=causes

 

Also, we get tingling and burning sensations with fibro, too.  So this should be considered also.  I hope you are doing better now.

 

Sherrine

Posted 1/15/2012 5:28 AM (GMT 0)
I have so much tingling, numbing, burning pain that right now my head, neck, back, right leg and foot are all doing their thing and I hate it. It scares me and worries me.
Posted 1/18/2012 7:55 AM (GMT 0)
Actually, I have low blood sugar if I don't remember to eat. And I didn't have these problems when I was 50 pounds heavier than I am now.

The doctor did mention that meralgia paresthetica can be caused by a nerve in the groin being pinched. I guess that makes sense if someone is overweight.

Thanks for the replies. I've been without internet since Saturday and it feels like forever!
Posted 1/19/2012 4:11 PM (GMT 0)
Hi there,

Yes, I have been dx with meralgia paresthetica..boy thats a mouth full. I can never remember how to pronounce it..One of my first symptoms was this horrible burning, tingling and numbness I felt in my left buttock and in my groin. I would try to explain that I felt as if I had been riding on our motorcycle for days or a horse. Some days it felt as if my bottom was going to fall out. It hasn't been that bad in a while thank you God!! But the burning sensation has always been there,never ever gone away. In fact now it goes down into my left foot. I am on neurontin 600 mg, 3x a day. Everyone says that don't know how I am functioning, plus percocet for the pain. I respond unfortunately this is the only way I am functioning is with the help of these meds.

I have been to a neurosurgeon and have injections into the nerve but it hasn't helped me. The only other option is surgery which I won't do. There are to many other nerves in that area and God forbid one wrong snip and things would be much worse. So, I live with it, along with the fibro and RA.

I too was told that it was caused by being over weight and too tight of clothing. When this all came on me I was the healthiest I've ever been in my life. But I was overweight in previous years. When it gets down to it, who knows, when, where or even how?  My new motto, "it is what it is".  I am determined to do my part and trust God to do His! 

I am very sympathetic to your pain, because if it's like mine it never ends and sometimes is debilitating. One of my best friends is Bio Freeze, rub a dub dub!! Also, I'm learning about a topical magnesium gel. I am starting to apply that everyday. All we can do is keep on keepin on...and trust me, I'm talking to myself this morning. It has been difficult days for me lately... Keep in touch and I pray that you feel better soon!!!

oh btw, the topical magnesium I purchased was through Bioinnovations.com but I'm sure you can find it at other places..

I am determined to live my best life NOW!!!

Jerrie/FibroNana

Posted 1/19/2012 11:50 PM (GMT 0)
Thanks for much for answering. I know about the buttock pain, too. I haven't had any in my groin, though. I had to stop cooking twice on Thanksgiving because I literally couldn't stand. I felt like a red hot poker was stabbing me in the thigh. Mine is always numb, but the burning and the hot poker pain come with standing a long time or walking more than 20 minutes or so. It helps when I put ice on my leg. I'll have to find some Bio-Freeze and look up the topical magnesium you mentioned.

Meralgia paresthetica is pronounced "mə-rāl'-jə par-is-thet-ik-a."

I got this off medterms.com for those who don't know what it is:

"Meralgia paresthetica: Entrapment or pinching of the nerve that supplies sensation to the outer portion of the thigh. The lateral femoral cutaneous nerve becomes entrapped as it passes under the ligament of the groin. The pressure on the nerve causes burning, pain, and numbness over the distribution of this nerve, the outer and part of the front of the thigh.

Meralgia paresthetica is usually associated with enlargement of the belly, such as in obesity or in pregnancy. Treatment involves addressing the underlying cause. Meralgia paresthetica can also be treated by local cortisone injection at the point where the nerve crosses the crease in the groin. Infrequently, surgical release of the nerve is necessary.

Meralgia paresthetica is also known as lateral femoral cutaneous nerve syndrome."

FibroNana, I do hope you get relief from using the topical magnesium. Thanks so much for writing.
Posted 4/1/2013 6:52 AM (GMT 0)
Amazon has just listed a new book, Curing Meralgia Paresthetica. (I know because I wrote it after a 12-month struggle with Meralgia). 

It contains every cure, remedy, treatment, and therapy known to man, along with tricks, tips, exercises, and emergency strategies.

I sure hope it helps.

I took the link out because posting something that you're selling is against forum rules.

Debbie

Post Edited By Moderator (Acheybody) : 6/2/2013 9:34:11 PM (GMT-6)

Posted 4/1/2013 7:52 AM (GMT 0)
Well, since you can't post on here if you have something to sell, I'll have to look up the book and see if it works. I don't have the money to buy it right now, though.
Posted 4/1/2013 8:34 AM (GMT 0)
Great. All feedback is extremely welcome!
Posted 4/1/2013 12:17 PM (GMT 0)
i have severe burning on the soles of my feet from spring to midsummer and started looking at weather allergy medication could be to play now. I soak them in ice cold water and use a cooling gel but i really just have to not think about it, the best that i can.
Posted 4/1/2013 1:19 PM (GMT 0)
I have had pain in the out side of my left thigh for a bit now..but have to go to an orthopedic because they think it more related to a pinched nerve in my back. But I can only lay on my left side to sleep...so I think that has a lot to do with it also... if I lay on my back or right side it is extremely painful, and makes me sick..
So I will let you know what the ortho says next week...
And I do have the tingling/burning on my right foot..but only around the big toe, and the next 2..and about 1/2 way down the foot..have no idea what that is all about...
So, we shall see where it goes!
Posted 11/22/2016 6:50 AM (GMT 0)
I know that most of the postings are very old. However, I discovered that I had Meralgia Paresthetica on my own. When I mentioned this to my primary care physician he said absolutely nothing, so I left his office still in pain with no resolution or treatment. I went to so many chiropractors, acupuncturists, and other doctors, but not gave me relief. Except one doctor prescribed…..GABAPENTIN and trust me, that was no way to live. Gabapentin is very strong as least for me and I found that I just could no function……at all. However, given the pain that I was in I had no choice but to take it.

On day, while in a vitamin store there was a man in there offering Vitamin B12 Shots. I after about 20 minutes of saying NO, I decided to fork up the $25.00, bite the bullet and get the shot. IT WAS THE BEST THING I EVER DID FOR MYSELF. I went from literally not being able to get off the toilet without help, inability to stand up from any seated position unassisted, not being able to walk up stairs/steps, falling downing down because I had lost the use of my left leg and knee. It was horrible. for months I lived on GABAPENTIN and large doses of Advil and motorized carts when I went shopping.

All I can tell you is that I thank God everyday for that B12 shot. It took less than a month for me to get the function of my left leg restored and to be able to do everything I had been doing before MP took over. I still have the occasional twinge, but no GABAPENTIN AND NO ADVIL. SO GRATEFUL
Posted 3/28/2017 3:47 PM (GMT 0)
Hi, I self diagnosed that i have this condition just a few days ago.. thankfully my issue is pretty mild compared to yours..hope it stays that way. Though i certainly would like to get rid of it if i can. so.. why did you decide to take the B12 shot? I'm asking because if it suits my situation i can also think about getting it. Please reply if you see this.
Posted 12/31/2017 2:11 AM (GMT 0)
I was healthy and active until I graduated high school. I have been living with my leg going numb and pain my whole life. They said it was growing pains. I finally went to the doctor, an orthopedic surgeon I went to when I was in high school and healthy, but when I win again I was overweight and unhealthy but I finally couldn’t handle the pain anymore and the numbness in the tingling and then I had a small spot of my spine that felt the same way well the doctor just that I was overweight and I need to lose weight. I told him I wasn’t overweight my whole life look at the charts it’ll show you. But he didn’t care and he said come back after you lose weight. So I waited 2 1/2 hours her doctor tell me I’m overweight which hello anybody that’s overweight knows they are.
Posted 1/4/2018 1:21 PM (GMT 0)
I've been having burning pain on the outside of my one thigh. I do have bone-on-bone knee problems, so it might have something to do with that. But.........I think, for me, it has something to do with my lower abdominal pelvic organs falling. None of my docs think my thigh pain is related, but why wouldn't it? If our organs are laying on nerves to our legs, why wouldn't it possibly irritate them?

I'm wondering if this happens more in older women?
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