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Unbearable Fatigue

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Posted 4/1/2013 11:14 AM (GMT 0)
Hey guys - it's been awhile since I made a post so I figured I'd make one today.

I have always suffered with fatigue majority of my adult life and some of my childhood also. When it got really bad I was told I was depressed and was put on meds. They only helped for a short time.

I was diagnosed with FM in January, but had the starlings of it in Dec 2011 until it got unbearable in Aug last yr (2012). Since 2010 my fatigue got worse, and right now with my FM it's horrid. Some days I dread getting up out of bed firstly because of my aches, then because I know that once I've finished work for the day I will feel like a zombie - my arms/legs will feel like dead weights, even lifting and holding my head up is hard. Some days it does bring me to tears, as I was very active prior to FM.

My Rheumy thinks that I may have sleep apnoea, but with struggling with fatigue majority of my life I'm unsure as to whether that is the root cause. But alas, I have a sleep study test booked for the 20th of this month.

I know fatigue is common with FM, but how debilitating is it for other sufferers of FM? Or maybe I have CFS? No idea, but I know I'm frustrated as hell.

Ty for letting me vent :)
Posted 4/1/2013 12:52 PM (GMT 0)
Hi Sexyeyes,

I have chronic fatigue too. I take Adderall to combat that. It helps. Though I still feel tired a lot. But something is better than nothing to help you. I also take green coffee bean extract and that helps a little, though I am not sure if I am going to continue to take it. I will continue with the Adderall though, if it weren't for that, I would be in bed. I slept for the first two years of fibromyalgia. I missed out on a lot of life.

I wish for you the best. Keep moving. Sometimes a walk helps me in the afternoon. Gives me some energy. I know it sounds like it would make you more tired, but it doesn't make me more tired.

Hugs, Karen...
Posted 4/1/2013 2:08 PM (GMT 0)
I get bouts of extreme fatigue, but not chronic fatigue. When it hits, I take short rests, but try not to sleep long at all, or I'll still be up at night.

Like Karen, I think a little activity helps, and it helps me to alternate sitting activities (writing bills, going through papers, sorting mail, cleaning out a drawer, etc.) with standing activities--helps me 'last' longer.

Having a regular bedtime helps me, too, and when the fatigue bouts hit, I try to add about 15-20 minutes of sleep per night. Even that little bit seems to help me the next day.

Hope this helps a bit and best wishes.
Posted 4/1/2013 4:06 PM (GMT 0)
 

I don't have a huge problem with fatigue and I think it's because of some supplements I have taken for years.  I take 800 mcg. of folic acid once a day and 100 mg. of CoQ10 twice a day.  I also take malic acid/magnesium supplements that help with pain and fatigue, too.

 

There is a link in Fibro 101 about the malic acid/magnesium supplements. 

 

Here is a link about folic acid and fatigue.

 

http://www.livestrong.com/article/483869-folic-acid-and-fatigue/

 

Here is a link about CoQ10 and fatigue.

 

http://www.livestrong.com/article/488130-fatigue-coq10/

 

The great thing is these supplements help with other problems we have...like brain fog!  You can google the info and learn all about these and talk to your doctor.  I was put on folic acid 23 years ago because it helps with absorption and I have issues with that because of Crohn's disease. 

 

Here is another link to a thread I posted a few days ago about these supplements and brain fog.  No one seemed interested so it slid to the second page in a hurry.

 

https://www.healingwell.com/community/default.aspx?f=24&m=2684815

 

I do walk daily as exercise and do other things too to keep moving.  That helps me.  I pace myself but still get a lot done.  This morning I scrubbed the master bathroom and kitchen floors but I also was using an electric scrubber.  Then I mopped them.  It took me about an hour and I was pooped but now I'm getting refreshed again.  If I keep moving I'm far better than if I'm sedentary.  Hope this info helps you.

Sherrine

Posted 4/1/2013 5:06 PM (GMT 0)
Everyone is so different in how they react. I have a huge problem with fatigue. In the past, I could manage it somewhat effectively with proper sleep and regular exercise, eating properly and avoiding caffeine and sugar.

Now, since other conditions have become involved, I have less of a handle on managing the fatigue. What I used to do doesn't work anymore. This is very frustrating. So, I am back at square one. I am not completely sure that all the new 'stuff' has even been properly diagnosed.

I still believe that a healthy lifestyle plus supplements plus the judicious use of medications can help most people a lot. However, everyone needs to find the sweet spot, since our bodies, conditions, environment, lifestyles, and needs are different.
Posted 4/1/2013 10:04 PM (GMT 0)
I realized when I have good days and over do it, I hit a brick wall the next day and CAN"T move off the couch!
That happened this week..I spring cleaned my kitchen for 2 days, then had a big Easter party..then hit my brick wall Saturday night.
Of course, it could be because I overloaded on cookies :) hahaha, I don't eat many sweets..
Anyway, back on track, fatigue..yes, and lots of it! Not always, but lots..and then I feel like I over do it, then I am tired for days..
And find so much sorer than usual...
Posted 4/2/2013 12:22 PM (GMT 0)
I have bouts of extreme fatigue, mine seems to be diet related especially if I happen to have something containing sugar.

I have sleep apnea, I tried the CPAP machine and couldn't handle it due to my neck injury.

On Easter Sunday I had a small piece of cake and even with my sleep supplements I had a painful night with only 4 hours of sleep. I was a pained zombie yesterday.

I take melatonin, benedryl, and l-theanine, and tylenol to help me sleep. Sleeping pills did little for me and they caused me lots of side effects.

Good luck to you.
Posted 4/3/2013 4:34 AM (GMT 0)
Thank you all for your comments.

I am suffering still today, only woke up twice but I still feel so flat and tired. When I mentioned the fatigue to my Dr he seemed to think it wasn't from my FM. I told him my work hours are increasing which they are, I'm working 4 days a week now and he told me to consider that as my "exercise" for the day, as I'm up and down all day from 8am-5pm.

In saying that though, I do have a few other health issues atm. I have a tear in my right hip, which makes things harder for me, and also a rotator cuff tear in my left shoulder. So I think I'm screwed up right now haha
Posted 4/3/2013 7:52 PM (GMT 0)
Hey
sorry to hear you are still suffering.
No drugs helped me, but I do have a great melatonin supplement I take at night and a very gentle energy drink during the day and both help me.
I am a work from home mom of two and I have to keep going most days - these really help me.
Best
Becky
Posted 4/3/2013 8:16 PM (GMT 0)
I had to reply.. I have fatigue so bad, almost daily, that I want to simply sleep. I work 5 days a week, but sometimes I miss a day or two in a row because my fatigue is so severe. I was only recently diagnosed with FM, so I am not yet on any kind of regimen, but I wanted to let you know you are not alone in this fatigue problem!!
Posted 4/6/2013 2:31 PM (GMT 0)
Hello read your msgs,yes agree the fatigue is so bad 24/7 and when you get up you just want to go back to bed again as we feel so tired non stop,will look up Adderall,i am only taking vit D3,so will have to start these other supplements,said to my doctor awhile ago re supplements,he said just eat a healthy diet,but going to start other supplements as my diet is not that great since i have had this fibro,everything has gone down hill,when i was reading what you all said,my heart goes out to you,to work when all this is going on in the body must be a total strain,as i struggle with just a small task indoors,i hope you are all ok today with not alot of pain,xox

Post Edited (maitland) : 4/6/2013 8:35:55 AM (GMT-6)

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