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Ways to soothe aches? also i'm new and hello to the fibro board :)

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Fibromyalgia
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Posted 4/4/2013 5:44 PM (GMT 0)
Hi i was diagnosed with fibro in 2008, i am 21 now.

2 days ago i went on a big shopping trip to an indian grocer and health foods store... and if that were not enough to wear me out, the indian grocer sold all their spices in bags so i had to bend over trying to find containers for all of them.... i've been in a lot of pain for the past 2 days like my body is punishing me :<. My fibro tends to come and go (its weird) and it seems to have come back for sure! what's the best way to soothe my body and at least lessen this pain so i can function a little? (i'm out of pain pills cry..... not like they worked in the first place)
Posted 4/4/2013 7:55 PM (GMT 0)
Hello, Kitty Lizzy. Welcome!

If you take a look at Fibro 101 (1st thread on the forum) you'll find tons of information. THere are threads on symptoms, what docs think is going on w/Fibro, treatment and other coping mechanisms, etc. I'll bet it would help you.

So much w/ crazy Fibro is trial and error. Pain meds help me, but not everyone. Same with antidepressants, muscle relaxers, and everything else.

Tomorrow one of our moderators, Sherrine, is having a virtual pool party. It's really fun! I hope you'll join in, even though you're so new. This fact might also mean that you'll get fewer answers here right now, because a lot of time goes into this when it's going on....but we do care - keep posting!)

Debbie
Posted 4/4/2013 8:01 PM (GMT 0)
What's a virtual pool party? sounds fun! :-) how do i attend?
And i'll look through the 101 :-)
Posted 4/4/2013 8:17 PM (GMT 0)
Hi, Kitty, and welcome! As far as pain goes, I use ibuprofen with food, Tylenol, malic acid/magnesium supplements, vitamin D3 supplements, and a muscle relaxer. I also walk daily as a gentle form of exercise. I will swim, too. Gentle stretching exercises help along with warm baths and showers and Bed Buddies. You can find Bed Buddies at Walgreens and other places. You put them in the microwave and they give off moist heat. Also, you need to keep moving with fibro or you will be stiff as a board and have more pain. Lastly, I pace myself when doing things and that helps me too.

As Debbie suggested, read Fibro 101...the first thread on the forum. There are good links all about fibro and you will learn a lot there. There are links about the supplements I mentioned, too. You just might see yourself there.

Now about the virtual pool party. The party is carried on via our computers. We use our imaginations and just have a fun time. Look for the thread called "It's Party Time" and start reading it. You will get the gist of it and then join in yourself. Right now we are in the process of getting our food together and getting to my home in Florida. Rev up your imagination and just sit back and have fun!

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope you join the party and I hope we hear more from you soon.

Sherrine
Posted 4/4/2013 8:31 PM (GMT 0)
Sadly i am severely allergic to NSAIDs, i used to take prescription strength ibuprofin a lot and then one day i broke out in hives and my lips swelled, it looked like the flu at first but we figured out it was the medication and my PCP confirmed it. She told me not to take ANY of the drugs in that class because if my lips were swelling it was very dangerous and then my throat could be next. I CAN take tylenol though. I was on Vicodin for a while but it stopped working so i stopped taking it... I'm on neurontin (as you can see in my signature) and its helping a little. I am looking at trying Hatha Yoga (as much of it as i can do). I'll look into bed buddies :) and i'll take a look at the pool party. I read some of the articles on the 101 and didn't find much on getting rid of pain but maybe i missed it
Posted 4/4/2013 8:41 PM (GMT 0)
Everyone is different, Kitty. What works for one might not work for another. Those supplements I mentioned help with pain and there are links about them in Fibro 101. The gentle exercises and moist heat help, too. The muscle relaxer made a significant difference in my pain, also.

Ibuprofen helps mainly for other things I have that causes pain. It's an anti-inflammatory drug. But fibro is not an inflammatory illness so most people aren't helped with it.

I was never helped with Vicodin or Tramadol but others get some relief. Still others like Cymbalta or Lyrica, or Savella but I chose to go as natural a way as possible and this has helped me be in control of my pain. Not pain-free, but in control of the pain and I've lived a full and enjoyable life in spite of this illness.

Sherrine
Posted 4/4/2013 8:49 PM (GMT 0)
i'll ask about a muscle relaxer. the vicodin worked for a while... i just built up a tolerance. i was on tramadol once too, same thing happened. I am on a D3 suppliment (1.25mg every saturday) by prescription. i'm gonna ask my dr first about the magnesium because i'm on a whole pile of meds....
Posted 4/4/2013 9:54 PM (GMT 0)
I'm on tramadol, gabapentin, fish oil, paxil, and tylenol.
Heating pad, spa wrap, moist heat, and hot showers are my helpers.
Posted 4/4/2013 10:12 PM (GMT 0)
Heating pads are the best :-) what do you mean by "spa wrap"? can't do fish oil but i can do flaxseed (i'm vegetarian)
Posted 4/4/2013 10:20 PM (GMT 0)
Walmart sells a mini electric blanket that heats up like a heating pad called a spa wrap. It gets very hot and it's flexible like a blanket. I love it on my shoulders and back.
Flaxseed is a good sub for fish oil.
If you have issues with hairloss from the UCTD biotien will helps with the strengthening of the hair.
Posted 4/4/2013 10:33 PM (GMT 0)
ooh ok! and i didn't know UCTD could cause hair loss... that explains some things.............
Posted 4/5/2013 4:50 AM (GMT 0)
Make sure to post on the Lupus board too.

When my Systemic Lupus is flaring I find my hair thinning. The nice thing is it comes back eventually. Mine actually came back in curly on the back of my head. :)
I haven't had curls since I was a baby according to my mother.
Posted 4/5/2013 8:18 PM (GMT 0)
Welcome Kitty...

Well, for my body to relax I saok in a hot, tub almost everynight..not a jacuzzi, but in my bath tub (although I do have jets in it :) )
That is the only way to stop my body from that all-over shaking /spazzing thing when I get cold..and when I am over tired, it is HORRIBLE!!
I do have a hot pack, but now I am going to look for a spa wrap too!! Thanks for the idea there..while I don't shop at Walmart, I will look at Walgreens..

Couch tater, just curious, if you throw the lemons back at life however do you drink your tequila??? lol...
Posted 4/5/2013 10:57 PM (GMT 0)
Couch tater_ OMG thank you for the info on the spa wrap.. I will be looking for one after work...

Mrs. Bugsy - maybe she sticks to limes for the tequila... smilewinkgrin
Posted 4/6/2013 1:18 AM (GMT 0)
Hello to you ALL i have just joined,this is a great forum loads of info re fibro,i was diagnosed with fibromyalgia syndrom 2011,was diagnosed with depression 2008,when active have veriegate porphyria ,ibs and the terrible tinnitus non stop,as fibro is enough to cope with also the horrible symtoms,dont really have a life now,i am @ the point i recent fibro so much,since i dont want to go out much,its really going for my joints now,i try to sleep alot to get away from it,as no energy to do anything,had a great social life before and family life was much beter than it is today,its just ruined everything having this fibro,its great to msg other fibro sufferers as alot of understanding,hope you are all fine and in not to much pain

Post Edited (maitland) : 4/6/2013 5:08:47 PM (GMT-6)

Posted 4/6/2013 1:31 AM (GMT 0)
Welcome, Maitland.
I'm afraid of you getting lost in this thread. Can you post an introduction thread? That way everyone will see you're a newcomer and will welcome you.

Mrs B & Yevette, I'm a teetotaler so I don't need the lemons or the limes. :)
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