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Posted 9/23/2013 3:11 AM (GMT 0)
I have so many different dx I just don't know for certain where to post. This whole forum thing is new to me.

I just know today was and is an extremely high level pain day. I've cried and prayed...its like the pain gets so bad that it consumes my mind. I cant find a position that is comfortable enough to get relief. I have so many pillows you wouldn't believe. I know I'm rambling. Am I in the right place? I do have fibro and it seems to have popped up in my knees on the inside. New pain is always fun isn't it? Trying to figure out which dx it is attached to. Not that it matters. I have the pain and that's that. My breakthrough meds aren't lasting long enough anymore. But I have an appt w/my PM next Monday. Maybe he can adjust something else instead. I hate medicine. It is tearing down my body...just like the pain is.
Posted 9/23/2013 5:19 AM (GMT 0)
Hi, Stephanie.

Sure, by all means, you can post here about your pain! I have been where you are, and it's a desperate feeling. Sometimes it seems our different pains decide to go after us, all at the same time. It just gets to be too much, especially if your meds aren't working as they're supposed to.

Sorry, I can't remember whether you've been directed to "Fibro 101," our first thread? ( I can't remember much these days....) There's so much helpful info there...

I wish I could wave a magic wand and make your pain go away! Is your appointment with the PM tomorrow, or the Monday after? But, in the meantime, keep posting because we are here for you.

Debbie
Posted 9/23/2013 5:38 AM (GMT 0)
Welcome, Stephenie.

Wow, I understand why you're hurting. If anyone knows pain and understands it it will be us. We are the "I'm miserable and no one else believes us" group. ;)

Hang in there and ask, cry, vent all you want. We're here for you.

((((((((((((Hugs))))))))))
Posted 9/23/2013 6:32 AM (GMT 0)
Crying in pain, I hope tomorrow is a better day for you. I am sorry your in so much discomfort. I have been done that road before. Have you tried things such as hot bath or heating pad? I use to take heavy narcotics for the pain but it finally stop helping my pain. We adjust them and before you knew it, they stop workin well. It seem to be a viscious cycle of always chasing the pain away. So I decided I needed a change, I could no longer do it this way anymore. So I was able stop them and believed it or not my pain got less. I still had some pain, but not at that level. So I decided to take subutex for pain. It works great. I am so thankful I went this way.

The reason I mention my story was so many people don't realize some meds can cause more pain. I hope you can get some good control soon.
Posted 9/23/2013 3:31 PM (GMT 0)
Stephanie, you can absolutely post here. Members here have a wealth of information and a great ear for listening if you just want to vent. I haven't reached the point to where I don't have pain yet. I have RA, Sjogrens and Fibromyalgia. Most of my medication is for my RA pain and I have days where no medications work at all. On those days I take it easy, sleep when I need to, sometimes try and rock the pain away, cry and pray. But one good thing is the really bad pain doesn't last forever. I still have pain of some sort everyday, but I have come to realize that it is my new normal. I pray that your pain has eased today.
Posted 9/23/2013 5:26 PM (GMT 0)
Hi, Stephanie, and welcome!  You are welcome to post in any of the forums on HealingWell.  I see you have chronic pain and also arthritis and we have forums for that, too, if you think some days it's the arthritis that is affecting you.  It's good to visit all the forums that concern your health because you can learn things on each one of the forums.

 

We focus on fibromyalgia and the all over, weird pain we can have....not to mention the fibro fog.  There is a good thread...Fibro 101...at the top of the page that is filled with links to good info about fibro and you can learn a lot there.  Also our posts are filled with information as to what helps each of us.  Unfortunately, with fibro, what works for one doesn't necessarily work for another.  It's a trial and error process to find what helps us control the pain.

 

AK Angel has a point about the heavy duty medications.  They can cause more pain in some people.  I didn't get into those.  I did try Vicodin and then Tramadol but neither touched the pain I was having so I stopped taking these things.  I now use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a prescription muscle relaxer called Robaxin that helps me greatly.  I also keep moving since sitting and laying too long can make you stiff as a board and have more pain.  I walk and/or swim daily as my daily form of gentle exercise and I do stretches throughout the day and that helps, too.  I also pace myself when doing things.  Everything does get done but in a different time frame.

 

I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  Hope to hear more from you soon.

 

Sherrine

Posted 9/23/2013 5:54 PM (GMT 0)
Thanks everyone for the warm welcome.

Today is much better. My pain level is lower. Last night I was a out to flip out. I guess you figured that out though. :)

When I started with these issues they had me on Hydrocodone for about 4 years along with neurotin, trazadone, valium, I cant remember the relaxer at that time and Ambien for sleep. Now I'm taking Oxycontin, Oxyxodone, Methacarbamol, Neurotin, Valium, and Ambien.oh and Cymbalta. I never knew that pain med could make some pain worse. Thank you for sharing that. My PM appt is next Monday, the 30th. I want to discuss this with my doctor. Please shade any other stories that you think I might should mention to him.

I have a whirlpooll that helps from time to time. Of course, heating pads, a rice filled type of sock that I microwave for the arthritis pain in my shoulder, all types of creams for both the fibro and arthritis pains....my list goes on and on.
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