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Posted 10/16/2013 10:52 PM (GMT 0)
I would like to know if anyone has gone gluten free? I recently did completely about a month ago. I have lost ten pounds, my skin looks great, and my flares are shorter and less yucky.

Still looking for magic bullet for fatigue tho. :(
Posted 10/16/2013 10:54 PM (GMT 0)
You're probably one of those people who are gluten intolerate. I'm glad it is helping you though.
Posted 10/17/2013 12:37 AM (GMT 0)
Diets have never been proven to help fibro. That's why we don't discuss them on the forum. As Joy said, you probably have a gluten I tolerance. I'm glad you discovered this and it's helping you feel better.

Sherrine
Posted 10/17/2013 2:05 AM (GMT 0)
I think it's important for all of us to remember that fibro enhances ALL intolerances - food, allergens, stress, pain, fatigue. So while food's impact on fibro is not discussed here as an alternative treatment, I do think the relevance of a heightened allergy (that previously wasn't nearly as obvious) should certainly be discussed.

I found that it wasn't gluten specifically that made the impact, but actual grains. I naturally avoided these foods growing up because they made me sleepy and now - wow, skin pain galore! Likewise, I also have sensitivities to chemicals whether they are on my skin or somehow get in my body. I smoke on occasion and I notice a significant difference in my overall pain and it was like the opposite of a triple latte. Always pooped!

Fibro....ain't it a pain in the booty?
Posted 10/17/2013 5:20 AM (GMT 0)
Since I've gone gluten free my pain level has gone way down. Like 75% better. My fatigue and stamina are still shot but probably would benefit from more exercising. Every time I have a slip up and eat gluten I hurt again really bad for at least 2 weeks and it gradually starts to get better.

I also notice that just staying away from processed foods in general help with headaches and the pain as well. Regardless of the condition it doesn't hurt to examine what we put into our bodies and make wiser decisions that help us regardless if it has an immediate effect on our pain. I never even considered watching my diet until my pain got so bad and all the Meds made me sick, it's amazing to me what it has done.
Posted 10/17/2013 6:54 AM (GMT 0)
Going gluten free made my tendency for constipation go into overdrive! Seriously, I've never had so much abdominal pain. What helped me? Eating MORE refined grains! No kidding.

Yes, a good diet does make a difference in how we feel. But that diet is different for each of us - that's why we don't discuss it on this forum.

It's important to keep a food diary if you're having problems and note what occurs when you eat what. Good luck to everyone on figuring it out!

Debbie
Posted 10/17/2013 12:07 PM (GMT 0)
Gluten free here, but that is due to my celiac not my fibro...
And I LOVE it when people ask "Does it matter?" my answer is nope, I will let you decide, do you want me vominting on the floor of your restaurant? Or in your parking lot RIGHT outside the DOOR? So, does it matter to me? Nope, but it may matter to you!

Eventually they get it...lol
Posted 10/17/2013 1:57 PM (GMT 0)
I do selected carb for Crohns, and it seems to be helping that. When I feel bad with Crohns, I feel worse with fibro.
Posted 10/19/2013 1:02 PM (GMT 0)
I have been studying and for a full week I went Paleo. I thought that I was doing it to control my type 1 diabetes and insulin output, but instead I found that I had to take less pain medicine for my fibromyalgia. I was more alert and more active. If I took a nap it was because I wanted to, not because I had to. Know what I mean?

And I ran out of food.....and ate what we had on hand....!= and there it came, the instant return of all of my symptoms. I couldn't believe it. Today I'm paying for the dinner out of pizza with regular wheat crust, tons of dairy cheese, 2 beers, and yogurt. I am sore all over and lying in bed promising God that I will stick to this Paleo diet until I see that it doesn't work.

As for constipation issues, before meals once a day I try to take 1/2 a tablespoon of orange psyllium powder in water to provide bulk and fill me up before a large meal. It does help. I also eat flaxseeds.

Do your research. I am always studying how I can find ways to balance all of my many health issues. And also, as I found out- be prepared with the right foods in your kitchen.
Posted 10/19/2013 2:03 PM (GMT 0)
Keep a food journal to see what foods you have sensitivities to. I can eat everything you listed, Dontforget, and have absolutely no difference in my fibro. It's allergies, sensitivities, etc. to food causing your problem. Fibro is a muscle, tendon, and ligament problem...not a food problem.

Stinky, you are most likely allergic to gluten. Can't eat it if you want to feel better.

Don'tforget, it looks like gluten and lactose allergy to me. Keep a food journal. When we eat things we are sensitive to, our body reacts. This happens in people that don't have fibro. My friend ate a lot of dairy and felt awful afterwards...upset stomach diarrhea which in turn tightened her muscles and she was in pain, BUT she never had fibro. It was the lactose allergy. When she cut lactose out of her diet she was fine. It's not fibro. It's an allergic reaction to certain foods.

Sherrine
Posted 10/19/2013 6:42 PM (GMT 0)
I might agree with your dairy observation, but I never get diarrhea or upset stomach. I get total body aches and pain and fatigue. It will probably be another 24/48 hours til I can purge my body of of those elements of last nights fiasco dinner- at least.

Can my internal medicine doctor check me for this in blood work? The only allergies I've ever acknowledged are certain tree allergies which in the South seem to flare up in the winter.
Posted 10/19/2013 6:45 PM (GMT 0)
I'm going to send out a new thread and see if anyone else is using The Paleo diet, and if they have seen a reduction in symptoms as a result.

Thanks
Posted 10/19/2013 6:51 PM (GMT 0)
If you want to talk about diets, head to the IBS forum. We have forums on here that deal with diets. I have requested that food not be discussed on this forum. We had a problem a while back. Mi will have yo start locking threads if this starts again. Thanks for your understanding.

Sherrine
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