After months of testing I have been told Fibromyalgia, still unsure though!

Hello,
For about 1 year in a 1/2 I had been getting dull achy pain on my lower body, from hips to ankles, from time to time. I didn't think much of it since i had been dealing with Anemia due to low iron and also low vitamin D and according to the doctor both if these can cause bone pain. My fatigue I assumed was from the anemia as well. June of this year I was hit with really bad pain all over my body, went to the doctor and she decided to take a few test for strep,( just so happened the day I went in I had came down with a sinus infection) mono, and RA. I then ended up in the ER with severe neck pain, and dizziness. I was given a catscan and they told me it was bad sinus infection. Later that week I got a phone call from my Doc saying my result for the RA was high positive and the catscan shows my lymph nodes were really enlarged, she also sent me for iron fusions. Now all the testing began and meanwhile I struggled to get out of bed every morning and I began getting sick every 2 weeks and given antibiotics every 2 weeks. All my test came back fine except the RA and a neck catscan showed straightening of my cervical spine. I got my tonsils removed last month and I saw a rheumatologist and she said I do not have RA but she can't guarantee that I won't have it in my future or some auto immune disorder. I saw my doctor on Monday and she said I'm going to treat you for fibromyalgia. I started therapy for my neck yesterday and took my pill she prescribed for the first time and today I am miserable. I still feel like it is something else. After months of family being scared for me and I thank God it is not something life threatening, I have to admit I feel sort of embarrassed to say I have FM because they view it as psychological.

Sorry for the long story....Can anyone help on how not to feel like it is not all in your head? I tell myself, snap out of it your fine all the test say so, but then I have days like today and I'm lost! Does or did anyone else feel like this?

The rheumie said I have no signs of RA, no inflation if the joints. Although i told her my wrist hurts a lot and is weak, my neck and lower back as well. She said RA starts usually more in the fingers and inflammation and joint disfiguration is noticed. I am on nortryptiline, mobic, and tramadol.

Is not that i don't believe it because there is obviously a problem. No one just randomly starts feeling horrible out if no where without explanation. I have been told so many times that stress can do this and it could all be in my had. People/family think that I'm overwhelmed, stressed, depressed because i have 5 children , homeschool and am only 28. My stress levels are much better now than when they were smaller and I have an amazing husband. They just don't understand.

Thank you very much. My regular doctor did lupus test and lyme, both negative. I see the rheumie again Nov. 4th and she had said she would run test again. I just did blood work again and my doctor told me still positive for RA for the 4th time she was going to run the CCP as well she said, this was on Monday haven't heard back so I'm assuming that was negative.

Ask her to refer you to a rheumatologist.

Jai5 welcome! Don't ever think your fibro diagnoses is a trash can diagnoses. Your pain and health troubles are real. As you continue to read hunderds of other post, you will see your not alone in this. You will be amazed how many others are going through similiar circumstances. This is a great place for supoort and to learn how to manage your fibro.

Getting a good book on fibro and educating yourself will help you accept it better. You can read post here and get some great ideas on how to manage fibro. You might be amazed on how simple some of the treatments are. The vitamin supplements really work well. Most of this info you learn here and the books are never taught to you by your Dr.

I know you must be a very busy mom and wife, but don't forget mommy time. If mom is down then the whole family is down too. I remember those days, so try to give yourself some time. I hope you continue to be on the forum. My health turned a 360 due to this forum. I still have some painful days, but so much more manageable.