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Reminding myself I am disabled

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Fibromyalgia
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Posted 11/6/2013 8:39 AM (GMT 0)
This week I had to remind myself that I am disabled and have permission to rest at any time. Even if it means napping or sleeping in. I have been feeling tired and having frequent pain. I realized I wasn't giving myself these opportunities to rest more. I guess I felt guilty when my husband called from work to check in if I was napping. So today he called and ask me what are you doing? I am taking a nap. He took a pause because he hasn't heard that in a long time. This time I didn't feel guilty. I actually enjoyed it. I am going to take care of myself better!
Posted 11/6/2013 9:00 AM (GMT 0)
Angel,

Rest, don`t feel guilty because you are not responsible for this painful condition.

I know what you mean. Resting for me means also avoiding all kinds of anxiety, stress and emotional overload.

For a month i`ve been feeling like you- morally and physically. I`ve been doing very few things and try saving my energy for being able to go to work. I don`t want to retire on disability, i`m not ready for this, not yet. So i struggle to save any single drop of energy on behalf of my profession.

hugs
Posted 11/6/2013 5:18 PM (GMT 0)
I have the same problem. I guess it was the way I was brought up by very strict parents. But I am 57 years old now and can do what I want and I do rest when needed. Good for you! I am proud of you!
Posted 11/6/2013 5:36 PM (GMT 0)
Angel, how old are you if you don't mind me asking? And are you getting disability? Because I have been trying to get my disability since 2011. Mine is because of back problems. But now I seem to have fibro. Which I guess could have been around a lot longer than I thought. Because some of my pain goes along with fibro.
Thanks, babyblue
Posted 11/6/2013 10:32 PM (GMT 0)
I just joined this forum today and I noticed this right off! I am retired and I often forget that I can just say no. wish I'd done it this week in fact. Must work on saying no...must work on saying no...
Posted 11/6/2013 10:40 PM (GMT 0)
Ladies,

Just want to say it is so comforting to speak to people who know what you mean and how you feel.

hugs
Posted 11/7/2013 7:06 AM (GMT 0)
Great thread, Angel. I couldn't agree more.

Why is it so hard for us to get this through our heads? We really need to listen to our bodies. Just because we look just fine - - - you know the rest!

Debbie
Posted 11/7/2013 8:00 AM (GMT 0)
Baby blue- I am almost 50 in one month. Yes I am on disability. I got my disability 4 years ago with no problem. I had numerious health problems beside fibro. I think fibro was my least of my problems at the time I applied. It has been the best thing for my health not working. I was being hospitalized many times in one year and over hundred times throughout my sickness. I haven't had to go to the hospital since I stop work. My work was killing me.

Baby blue- how many times have you applied for disability?
Posted 11/7/2013 8:18 PM (GMT 0)
Good for you!!! I love to hear it when we actually take the time to take care of ourselves - and choose not to feel guilty about it. :-)

Blessings!
Posted 11/8/2013 1:56 AM (GMT 0)
Achey - because we are perfectionists. That's what got us here in the first place, probably. ;)
Posted 11/10/2013 2:03 PM (GMT 0)
Thanks for the reminder! I was just sitting here feeling guilty for staying home from church. My wonderful wife could tell I was having a bad morning. She got the kids ready and headed out. Now to do what she would tell be to do. I'm of to take a nap!
Posted 11/10/2013 4:21 PM (GMT 0)
Hi Angel, yep this is a great thread...a reminder that we need to pace ourselves and take time for some rest. Fibro can sure be so finicky...it can zap us of our energy at it's will. I used to feel guilty too about not being able to get things done like I used to. Now it's about prioritizing. What really needs to get done? I think we are all strong and courageous. We all are learning to take control and live a good life. It is important to be kind to ourselves...no negative self talk. We are strong fibromites :)

Hugs, Robin
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