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is it really fibro?

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Fibromyalgia
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Posted 11/15/2013 8:17 AM (GMT 0)
I was dx'd with fibro about 3 years ago. Of course that took awhile. I've had every test possible run a few times. Just having a doc put a name on it was a blessing. No more, "every thing looks normal".

I still wonder at times if i have ms. I know the symptoms are similar. Almost identical. I've been told that fibro isn't degenerative. I seem to be getting worse. More days with pain and fatigue. I also have some symptoms that point to ms. Numbness in my face, chest pain/tightness, pins and needles/ numbness in my thighs.

I had a spine MRI about 4 years ago to check for lesions. Of course, like every thing else, it was normal! So, should I ask to be checked again or stop being crazy!?
Posted 11/15/2013 12:53 PM (GMT 0)
have you asked on the MS forum? I think if you had the beginnings of MS it would have showed up on the MRI - or perhaps you should have a brain one just to be sure...also the neurologist does a check on you for balance etc have you had this? I know when a friend of mine got diagnosed with MS they knew from the first balance test she did
I would go back to doctor and ask for brain MRI just to be safe
Posted 11/15/2013 8:05 PM (GMT 0)
I never did the balance or coordination tests that i can remember. I have a doc appointment on Tuesday to talk things over. I'm sure its my imagination getting the best of me. After years of dealing with this, its still hard to accept sometimes.
Posted 11/15/2013 10:14 PM (GMT 0)
For me it took a long time to realize my symptoms were just fibro. I was thinking I had ms or lupus too. I had this rash on my cheeks which made it even more convincing. After years of driving myself and Dr's nuts I just accepted it was fibro. It so crazy how fibro affects something from head to toe in your body. Now that I have accepted I am much happier in life. I am taking all that energy I use to waste worrying and put it towards healthier things.

If you continue to believe that you might have MS it wouldn't hurt to get it recheck so you can stop worrying. I do know how you feel because I have been there too many times. Hope it turns out all well.
Posted 11/16/2013 5:46 AM (GMT 0)
I had accepted my dx. In fact i welcomed it. It was a burdened lifted to finally have a doc say this is what is causing your pain and we will treat it with this.
My wife and i are in the process of adopting our forth child (first adopted). She will be from China and have some physical special needs. Im concerned that if this sensation in my legs is ms, i may develop mobility issues myself. I could not ask for a better, more caring and understanding wife. that would be a lot to puton her plate. I'll get tested just to know for sure. Either way my life is blessed and there are 150 million orphans in the world. I'll continue to find ways to help and advocate for them either way!
Posted 11/16/2013 3:37 PM (GMT 0)
Be tested if you need to, and can afford the test. Peace of mind is worth it. There might be something else going on which is making the fibro symptoms worse.

IMO, FMS can seem degenerative since so many other daily issues can make it worse. Paint the house? You feel worse. Work those ten hours of overtime? Spend the afternoon Christmas shopping? Have a fight with the spouse?

But there can be something else lurking that causes an increase in the fibro symptoms. For many, food sensitivity play a large role. For others, a different condition can cause more pain. I was having more pain a few years ago, chalked it down to fibro, but it kept on and got worse. Then I was diagnosed with Crohns Disease, and then enteropathic arthritis, which can afffect a smallish percentage of people with Crohns.

So, check it out.
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