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The sudden fibro (Venting)

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Posted 6/2/2014 9:34 PM (GMT 0)
I just need to vent a little bit. For the last week or so I rested, took my time, did everything I could to sleep well for an upcoming weekend getaway. Something that was suppose to be fun and relaxing. I did walked more than usual yesterday.
Did the check in at the hotel last night, rested in my room, went out for an hour, came back to my room, went to bed early. And last night the pin and needles feeling woke me up, as well as more twitching than usual. Arms, legs mostly. (Still have it but less than last night) But also everywhere, like right now. But less intense.
Unable to sleep because I felt like someone had thrown me in a ants pit. I looked up pin and needles on my phone, found a bunch of posts about MS. Started getting parano, was able to go back to sleep. And I've been dealing with them all day on and off.
They happened before, part of my flare ups, I'm 95% sure it's not MS. As I was told by a neuro it's not that, but the same neurogist told me it wasn't fibro either, and I had to push to many doctors for answers before getting my DX. So now when I have something related to MS, my mind go crazy and I start wondering if it's really fibro and not something else :(

Thanks for listening
Posted 6/2/2014 10:09 PM (GMT 0)
This is not a sudden flare. You traveled, new bed, more walking. Then anxiety. You are just having a flare. MS can be diagnosed easily; Fibro is difficult to pin down. You do not have MS.

Sometimes, we do have to pay a little for our fun. It's good you made a plan.
Posted 6/3/2014 2:33 AM (GMT 0)
I think at times we all wonder , can all this be from fibro?

I tend to say everything is the fibro...and realize it would be hard to know at times if anything else is going on....

Its great that you had the.ms ruled out..
Posted 6/3/2014 7:30 AM (GMT 0)
I know it so frustrating what our bodies do! I go through the same thing. I have the same problem with the tingling and numbness. I wake up almost every night with something almost dead feeling. I have to shake the limb to get that tingling or dead feeling away. I have had my brain scanned recently. I do have back issues, but who knows where it's coming from. I just give up trying to explain to my Dr's. This fibro is so understated to Dr's knowledge. I don't think they grasp the whole true symptoms of fibro.

Try to enjoy yourself the best you can. Don't let it take your joy away. I hope your having a better day.
Posted 6/3/2014 10:49 AM (GMT 0)
I get these pins and needles a lot especially in the morning when I wake up, I've been diagnosed as having fybro but have'nt had tests for MS which is also hard to diagnose as you get flare ups like with fybro. As said not much point in going to the Dr as they don't take much notice of fybro.
Posted 6/3/2014 11:49 PM (GMT 0)
I have fibro and I have neuropothy. I have pins and needles ALL day everyday 24/7 I take meds but they only help some. I can't sleep at night until I am so tired I finaly fall asleep. It is painful, it started in my Big toes 6 years ago and now it goes almost half way up my legs. I hope you don't end up like me, the doctors at Loma Linda said it was neuropothy. Good luck
Posted 6/3/2014 11:56 PM (GMT 0)
Oh, I forgot to add I also have the numb feeling i sometimes don't know my sho came off and I am walking around barefoot. So maybe you might want to check to see if you have neuropoyhy too, besides fibro.
Posted 6/4/2014 5:29 AM (GMT 0)
That's too bad, Anna. I just got back yesterday from a weekend trip, too (extra walking and carrying and all that) and wasn't doing too badly until I tried to open a big window that I KNOW I have no business opening. My left side is now giving me fits. Of course.

Try not to worry, since you've been checked out for MS - though of course, that's easier said than done.

Hope you have a better night tonight.

Debbie
Posted 6/4/2014 4:32 PM (GMT 0)
My pain doctor says a lot of these strange feelings that we attribute to fibro really aren't fibro symptoms. I am older and I have aches and pains of aging so I can't tell what's fibro and what's aging. It all sucks for sure but consider yourself lucky it isn't MS. Fibro is manageable. It takes a long time to figure out your limits. I used to only be able to park my car, go into Penney's, pick up socks and get out. I love to dilly dally at the mall. Over time with walking as much as I can I'm now able to spend time browsing again.
A relative who has exceptional terrific health insurance spent 6 weeks at Mayo Clinic to learn about, and how to treat fibromyalgia. I'll see her mid-June so I'm anxious to hear what it took 6 weeks to teach her.
Best wishes to figure out how to overcome and have the life you want.

Barb
Posted 6/4/2014 9:18 PM (GMT 0)
As someone who struggles with health anxiety, what I have found most helpful over the years is to give myself a time limit of experiencing a symptom before I allow myself to be concerned. Barring anything posing imminent danger, I give myself 2 weeks; if the symptoms persist and are troublesome, I take further action. Nine times out of ten, the mystery symptom is gone long before the two week mark.

Also try your best not to look up your symptoms obsessively; this is the hardest part, but I guarantee you will not have a good time. Try your best to enjoy your trip! Like Myself said, a flare right now makes perfect sense, and you have had the symptom before.

And this may be a bit morbid, but as another important part of my mental process: if all else fails, if you've got something, you've got it. Worrying about it won't make it go away. Give it some time, and if it doesn't clear up, you can take the next steps, whatever they may be.
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