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This is overwhelming. How do y'all cope?

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Fibromyalgia
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Posted 9/3/2014 12:41 AM (GMT 0)
That's good news, Mandi! Antibiotics are used a lot for Lyme. Lyrica is used for fibro.

Yes, there is a lot of misinformation out there. We try to keep things as accurate as possible on HealingWell.

Sherrine
Posted 9/3/2014 12:51 AM (GMT 0)
You all do a great job. I can't begin to tell you how helpful you all have been. I felt bad coming on here and freaking out haha. But when you first start dealing with this there is so much information and you dont know where to start. Lyrica is definitely helping so I am going to take that as a good sign especially for the first day and hold on to that. Honestly I think I need to just RELAX.. the hubby is talking about a trip to Disney tomorrow... If Mickey can't make you relax what can lol
Posted 9/3/2014 1:19 AM (GMT 0)
Yes, stress is horrible and just relaxing can help you so much. I think all of us were frightened when we came here. It's such a weird illness! So don't feel bad. We are only human.

I'm so glad we have helped you. I'm sure you will have more questions or comments as you learn to live with fibro. We are fortunate that we have a wonderful group of members who love to help one another and we really do care about each other, too.

Sherrine
Posted 9/3/2014 10:04 AM (GMT 0)
Candida overgrowth most probably.
Perhaps do the candida diet?

Candida overgrowth are often misdiagnosed as fibromyalgia..
Posted 9/3/2014 10:06 AM (GMT 0)
Peach,

I moved your thread to the Discussions of Diet thread.  We do that to keep them all together.  Thanks for understanding.

Debbie

Post Edited By Moderator (Acheybody) : 9/3/2014 5:14:47 PM (GMT-6)

Posted 9/22/2014 1:01 PM (GMT 0)
Hi there everyone. I am a new member recently diagnosed after waiting 3 years for a diagnosis. I figured this was the best topic for me to post in. I am really struggling on coping with this not so lovely disease. At first I felt overwhelmed. After suffering for 10 years with endometrosis and finally getting 7 decent years here I am now with Fibromyalgia. The hardest part right now is dealing with the pain and exhaustion. For example last night I got 8 hours of sleep but I still feel exhausted. Of course, because I had a pretty decent day yesterday I went overboard as I am getting ready to move and did a bunch of packing yesterday. I would love to hear from some of you on how you cope with this. Feeling overwhelmed and frustrated.


shakehead
Heather
Posted 9/22/2014 1:47 PM (GMT 0)
Heather, you might want to post a New Topic, so that members will know to look for you.

It takes time to figure out how to cope and how to manage. You need to discover what your body needs and what meds it responds to.

It's okay to work some and then rest some. It is okay to say "No." It really does help to do daily gentle exercise. Most fibro sufferers have sleep issues, as they never get to deep sleep, and then their body doesn't 'really' rest and recover.

I generally schedule my day(s) so that I can get done what I need to get done. But then I am very goal-oriented. For instance, when I moved, I starting packing several months in advance, a little each day. This prevented me from overdoing too early, and therefore making it to the end of the move with a moderate flare, rather than a severe one.

Are you taking any fibro meds? Sleep aids? Pain killers? Any other concurrent conditions? Everyone varies so much that each case needs to be addressed specifically.

Welcome! You too will figure it out, I promise. Management is key.
Posted 9/22/2014 4:03 PM (GMT 0)
Thank you I did post it as a new topic. I have arthritis (since childhood)-Acid Reflux- Degenerative Disc Disease and Migraines. Currently the doctor started me on Robaxin, Trazadol (to sleep) and Eflixer (I think that's the name of it) for my depression and severe anxiety attacks. Thank you for the encouragement.
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