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New here. "...Fibro...huh?...Seriously doctor?!?"

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Posted 8/25/2014 10:16 PM (GMT 0)
Sky Blue

Yes I agree it is a bit expensive... But I feel that the change it has given me was worth every penny spent. It's been a week since I purchased my first bottle ... I am able to purchase it through a friend who distributes the product at a little smaller cost.

I have energy and my fatigue is 95% gone. I believe I'm going through a flare up right now... The tip of my finger again is very numb and sensitive at the same time. My right hip socket/joint is a little sore. I noticed it yesterday morning and today. It's manageable and tolerable though. Last night my back muscles were achey but not painful. I took muscle relaxers last night to help me rest comfortably and sleep. Did my morning walk and did very good at work today.

The tonic gives me a quicker step and makes my outlook on things much brighter because I don't have the fatigue or intense pain like before. I drink my tonic in the morning instead of night time because of the energy boost it gives me.

I can't tell you how long feeling this good will last..but I will ride the wave for as long as it will let me. The tonic is all natural, doesn't taste great, but the herbs it contains do good things for my blood and lymph nodes, and just maybe for my nerves, joints and muscles.

I hope you benefit from it like I have.

Ray
Posted 8/31/2014 1:49 AM (GMT 0)
Week two with JC TONIC and my fatigue is gone. The tonic is amazing. I still have back muscle spasms but while on the tonic what I feel is a tightness and slight tingling but not painful. I still have discomfort in my right leg socket at the hip but not overwhelming painful. I don't have brain fog or short term memory trying to find words to express myself. I still have chronic numbness on my left hand index fingertip, some days it's really numb and very sensitive but other days unnoticeable. I haven't felt this good in a very long time. The cymbalta side effects are completely gone...finally.

Wanted to ask if any one with Fibro has a twitching symptom either in your fingers or arms or legs? Sometimes a finger or two jerks or twitches on its own. Sometimes while sleeping I notice my leg will jerk or twitch. Any comments on that would be appreciated. Maybe it really is overactice nerves.

Feel well and stay positive :-)
Posted 8/31/2014 2:32 AM (GMT 0)
Also wanted to ask: is it possible that as a child in primary school that "a significant change" in ones well being (tiredness, sluggish) perhaps the very beginnings or onset of progressive stages of depression/fibromyalgia that your mother noticed as well and and made an appointment to have blood tests done but all negative results? This episode lasted about 1 month.

Going through puberty for me seemed normal and through my teenage years pretty much okay. Following that starting in my 20s I began to experience extreme fatigue, tiredness, the blues, telling my closest friends "things weren't quite right... Something is wrong". Every decade since the 80s I've had severe fatigue/depression.

All along if my life could be a time line running parallel with parents time line, I begin to wonder if through all the years of their marital strife of bickering, arguing, turmoil, very dysfunctional as a young couple raising 5 children on the lower end of middle class, that just perhaps the environment of growing up caused me to stress out physically, emotionally so much that family and friends would tell me to "relax ... don't be so tense ... Loosen up... Smile ... Be happy".

Really?!? ... I can't even stand the thought of confrontation even now without having flashbacks of hiding or locking up physically from fear of specific memories that are ETCHED SCARRED in me for life.

I guessing what I'm saying is ... It's been a long long journey for me in a life of emotional and mental misery translating into the physical now. The older I get the easier it is for me to be forgiving and not dwell in the past as much ... Like looking into the rear view mirror of your vehicle while driving ... but staying focused on the road ahead to arrive at a happier safer destination, but that didn't start happening until I reached 40. I tell my younger siblings going through this same journey to take it one day at a time and that over time it becomes a little easier to deal with.

Man... Sorry for purging like that ... but you know, I think I've reached a place in life where I'm ready to process and speak up about it. Now I'm left to manage the physical part of it.

Hang in there ... We can all make it together!
Posted 8/31/2014 2:45 AM (GMT 0)
Hi The Fifth Element:

It is wonderful that the Tonic is helping you some. You do have to be careful with mixing some herbal treatment with medications. I have a wonderful Doctor who I can, and do, ask about supplements etc. He will tell me if it is safe or totally unnecessary.

I took Lyrica for a couple years and was up to the max dose before the Doctor took me off. It was a lot to do with weight gain. Once off, I was having a hard time coping. I thought I was better off with Lyrica and some Tylenol every day. I read some cautions about Lyrica for long-term use and asked the Doctor about them. I have chronic daily severe headaches, Neuralgia. I stopped using Tylenol also due to possible rebound headaches. I thought Lyrica caused me no bad symptoms. For me it was much better than Topa Max that was tried before. You must come off Lyrica very slowly. I had withdrawal symptoms.

When I was totally off I began to get crazy nerve spasms at nighttime. It made sleep impossible. Nerve spasms in my back, behind and legs. Just chance, I was put on Nortriptyline to help Neuralgia and it has stopped the spasms. It for the most part helps me get a deeper sleep. I am, however, very tired in the morning. It is not doing enough for the Neuralgia.

Since I have osteoarthritis in multiple joints, the worst in my neck, I take Naproxen. I was taking Losec/Omeprazole but for the last month I stopped. I have been on NSAIDs for 12 years. The Omeprazole just as long. This year I have been having stomach issues. I read about long term effects of Omeprazole and thought I should try stopping it. I do find Magnesium helps my stomach. I use Magnesium Glycinate in the day and Magnesium Calm at bedtime. Have not tried the Malate yet.

I do get buzzing in my hands. I have no idea why or when. It just out of the blue starts buzzing. I try to exercise and shake up my hands a bit. My hands were going numb when I slept but it is due to Carpal Tunnel and now OA in my wrists. I wear wrist braces and the numbness stops.

I have pain in many different areas. Constant pain in my neck and head. The other areas come and go.
I do a Physio in a heated pool. Messed up now because of a car accident. Hope to get back soon.

Take care and Welcome.

Loring

Osteoarthritis in multiple joints, Fibromyalgia, Neuralgia, Chronic Daily Headaches, I.B., Hard of Hearing...

Post Edited (Loring) : 8/30/2014 8:49:28 PM (GMT-6)

Posted 9/6/2014 3:13 PM (GMT 0)
Week 3 and still taking one ounce of JC TONIC daily, a corrective and digestive herbal and mineral supplement including good things such Calcium, Iron, Iodine, MAGNESIUM, with an 18 herbal medley mix. The extreme fatigue and the 7-8 level pain is gone. My symptoms still are numbness in outer extremities, minor joint soreness in my hip leg sockets, muscle tingling in the muscles of my back, occasional minor soreness getting up in the morning but goes away quickly. I continue to walk daily in the morning after drink the tonic, it puts a bounce in me that I like. No longer on Cymbalta. I do take occasionally a muscle relaxer or two at night to help me relax and fall asleep (Flexeril). Have a Rhuematologist appt on this Thursday to review all lab work taken. Hope all are feeling better than previously, stay positive and focused!

-Fifth Element turn
Posted 9/6/2014 5:48 PM (GMT 0)
Hello everybody !
JC Tonic ? It is interesting. Never tried. But I found solution for my symptoms. I was suffering with fibro for years, I am 60 now. I was taking different meds and supplements for years, but the Golden Sea Cucumber powder is the only one thing that really helps me to feel better. You can find a lot of info on internet. Really a good thing.
Posted 9/6/2014 11:56 PM (GMT 0)
Hi,
I have been on cymbalta and had that exact mind-numbing feeling you described. I did not like it either…it was making me feel like I did not care enough about anything.
I have found the similar medicine, Savella, does not do that to me at all…and it was much easier to get off of it than the Cymbalta, which left me dizzy and nauseated for months as I titrated off of it.
HEART
Posted 9/7/2014 3:00 AM (GMT 0)
Update:

This evening I had a neck/back shoulder muscle spasm, pain level 4-5 Maybe it's connected to the brief rainstorm that developed here and left quickly. Using extra strength heat rub for some support.

FifthElement
Posted 9/7/2014 3:05 AM (GMT 0)
Heart

I will try to remember SAVELLA as a last resort. My rhuematologist offered to refer me to a colleague of his if I wanted pain management steroid injection near muscles of the spine, but I don't know how many I would need.. maybe isolate areas that need it the most??

FifthElement
Posted 9/7/2014 3:26 AM (GMT 0)
Annaz

Thanks for the Golden Sea Cucumber referral.. I will look into it.

FifthElement
Posted 9/7/2014 11:11 PM (GMT 0)
Update: Neck/back shoulder pain level up to 8-9 very lumpy knots ouch shakehead
Posted 9/8/2014 10:17 PM (GMT 0)
Do any of you get sore or scratchy throats as a symptom of Fibro?


My neck/back shoulder is up to pain level 9-10 mad No other places hurting just that for today.
Posted 9/8/2014 11:54 PM (GMT 0)
Hey Ray!

I'm new myself, just read the spoon theory on the Fibro 101 - well worth the time reading. To be honest I didn't want to join any type of forum at all, but lately my pain and other symptoms of Fibromyalgia have gotten worse. So, I thought this would be a good time to find some people with similar problems to learn more about myself.
I'm 24, have Rheumatoid Arthritis for almost 20 years along with Uveitis and Glau Coma. I was diagnosed with Fibromyalgia a lil over 5 years ago, but I believe I probably had it for longer. Due to the eye illnesses, I have been blind in my left eye for some years now and I can only see with my right with special glasses. Over the years I tried all sorts of medications, recently I tried Lyrica but I didn't notice any changes. Now I'm trying Duloxetine, only 30mg at night. My pain has been incredibly bad, I usually take 1-2 50mg Tramadol each 4-6 hours and it's hardly helping at this point. My Rheumatologist recommended Managing Pain Before It Manages You by Margaret A. Caudill to me. It's a very good book and I hardly ever read anything. I don't want to start taking opiods, but at this point I'm about to give up. I wish everyone the best.

Post Edited (MrPootytang) : 9/8/2014 6:06:05 PM (GMT-6)

Posted 9/12/2014 12:59 AM (GMT 0)
Update:

Went to my dr appt and he says that all my blood work is fine ... "There's nothing in the results that I can see that says your positive or deficient in ... So ... you can consider taking glucasomatie supplements for pain and vitamin D 1000 iu daily ... But did you ever decide on Cymbalta? ... (No)... Why? (Because it didn't agree with me) .. What specifically? (This isn't my first rodeo doctor) ... Will you reconsider? ... (No I won't) ... How are you feeling now? (My fatigue is gone but I still have soreness and pain) ... And how's your depression? (Like I said its like a weight lifted... I got my "step" back thanks to my tonic) .. I shared the content list of what it contained) ... It has iron and and additional iron in men is what causes heart disease... ( I will confirm that with my primary doctor thank you). ... Well that's all I can do.. If it gets worse come back and see me".

understand while i was waiting to be seen the assistant comes out and announces that the doctor is running behind that you will have at least an hour wait time .. who wants to reschedule? No one rescheduled because we all had rescheduled in the first place. I waited 1.5 hrs.

So officially I do have Fibro and the preferred medicine of treatment is still Cymbalta.

... My fingertip is no longer numb tingly or sensitive ... It's back to normal turn

Post Edited (TheFifthElement) : 9/11/2014 7:27:43 PM (GMT-6)

Posted 9/13/2014 3:06 PM (GMT 0)
I got a new location for pain ... My right knee.

I can still walk but each step is sore enough to notice it.

Does anyone get that with your Fibro?

Or did I maybe just sleep on it wrong or stepped off a curb the wrong way.

Fibro is like the arcade game Whack-a-mole... It pops up randomly sometimes in new places.
Posted 9/16/2014 5:15 PM (GMT 0)
Lately Ive been having a lot of knee pains/aches as well, but my RA started on my left knee and ankle. So, it could be either in my case. Sometimes i wear a thick kneebrace (not the expensive ones from the pharmacies) and that helps even if just for a lil while.
Posted 9/17/2014 1:26 AM (GMT 0)
Yes, our pains can pop up almost anywhere...today for me its stiffness..from i think a weather change...
Posted 9/18/2014 10:48 PM (GMT 0)
UPDATE

Went back to my pcp to discuss my new diagnosis. I showed him my herbal/ vitamin health tonic and asked him if I had to stop taking it due to the iron ingredient. Was really glad to hear from him that the amount it contains is nowhere near the amount to cause alarm or need to stop. He says the magnesium part of it is good for the symptoms. I explained that it does not eliminate my pain and soreness but it did a WHOLE lot for my fatigue/depression. He advised not to stop if it is doing well for ME and to call him if the symptoms got any worse. He will also support me with muscle relaxers when I use them moderately. Said to visit from time to time to analyze that the Fibro by chance doesn't cause malformation like arthritis or change in any way.

FifthE
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