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how do you all deal with this :-(

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Posted 10/9/2014 9:29 PM (GMT 0)
Omg!!! Ever since the incident the other night at my home with the intruder I have been in soooooooooooooooo much pain!!
My hands/thumbs are real stiff and extremely sore almost feel bruised it's not just one hand although it's worse in the left they both are doing it :'( my elbows are extremely sore to the touch they feel like I hurt them on something? I keep getting really really sharp pains in my knees , and the top of my foot feels extremely tight.....I was driving stopped and got out and almost couldn't walk my ankles/ foot hurt so bad :'( I seriously want to cry and cry and cry cry cry!!!! The Robaxin I have is only "prescribed to me 1 twice daily and I already took one about 5 hours ago I like to take the other at night to help me sleep but I don't know if I can wait that long :'( I still have a norco but I'm not sure if I can take it after already taking the Robaxin this morning??? Ugh this is so hard with small children .
Posted 10/9/2014 9:56 PM (GMT 0)
You can take the two together, if need be. I would wait for bedtime to take the muscle relaxant.

It is very difficult when you are first diagnosed. The only way to learn what your limits are is to exceed them, and then change. it's hard, and it bites, but if you are paying attention, you will discover what is possible and what isn't. We have ALL gone through this.

Time will heal the beating your body took with the nerve rush of the intruder. Slowly and surely, you will start to feel better in a few days. Remember-this was an unusual event, so it might take a little time to start feeling better. The more emotionally charged or physically taxing the event is, the more the body will respond. When my sister died from leukemia, my body went into shutdown, and it took some time to recover.
Posted 10/10/2014 12:08 AM (GMT 0)
The first year is the toughest for us. You have to find your personal limit.
Do you have a good friend or relative who can babysit for a night or two so you can focus on yourself a little?

Are your kids young? Maybe you can do sit down things with them? Sometimes it's okay to let a little dirt accumulate. If your kids are able maybe make a game of cleaning. Races for putting toys away, teach them to dust with a duster wand, teach them to put away clothes in the drawers and hampers. When I was young I helped my mom clean, rinse, dry and put away dishes.
Posted 10/10/2014 1:33 AM (GMT 0)
Are you using anything topically on the foot...you need more tools than just pills... Some days our meds just are not enough. So we have to have fall back positions. I have been there, as have many of us with the foot pain...when my kids were little there were not awesome topicals to help woth that foot pain, now there are!
Posted 10/10/2014 1:33 AM (GMT 0)
Yes I agree this is very tough my kids are 9,6 and 8 months so it's still hard to get them to really do much especially my 6 year old and 8 month old of course :-( tonight my mother actually got a dose of what I'm going through and helped me with the baby. She said I never see you cry so I know your in alot of pain cause yes I was crying :-(
Posted 10/10/2014 1:35 AM (GMT 0)
No what is a good suggestion for topicals? I barely have pills I've so far only been given the Robaxin 1 tab twice daily and it doesn't help with the pain at all.
Posted 10/10/2014 5:32 AM (GMT 0)
I love Bengay, Austrialia Dream, thermacare heat wraps, bed buddy, heating pad, and a good piece of chocolate. Chocolate releases "feel good" hormones and can ease stress. The darker the better in my opinion.
Posted 10/10/2014 5:37 AM (GMT 0)
Thanks joy! I bought a body wrap pillow hoping it would help me sleep better and it does help , but it's so big I get extremely hot with it , so I have to let some of it hang of the bed. How big is a bed buddy? I've heard a lot of people suggest that one as well and I need to see where I can get one? I may have to get a new bed for my husband as well...lol. all these things are going to push him out of our bed.
Posted 10/10/2014 5:49 AM (GMT 0)
For me so far, soothanol x2 lasts the longest..its from northstar nutitionals...if i put this on my feet after shower, usually no pain til evening....however i cannot use it at night cause it has msm which can keep me awake...so at night i use pain erase...others have mentioned some that i have not tried. Warning ... Pain erase will come with an expired date...but they found out..it just does not expire..it still works well and even comes in a purse size...

For me , australian dream did zero...just sayin

Also it helps to have foot stretches and exercises..

If you google accupressure points for pain, some of them can really lower pain...

Over time you will learn ways to lower your pain from a seven to a three which feels awesome..but what works for one does not work for all.

Eventually try to look at the trigger point book that sherrine mentions...i was having to see a therapist for hip trigger points..but that is so time consuming so i learned ,with the book, to work on this myself...its a tough read but worth it..

Having said all that, you will still need your doc to find something to help you also...

But when my pills just are not quite getting it..its amazing to know i have other things that make a huge difference!

We are here for ya...we'll give you ideas til you get it figured out : )

Lj
Posted 10/10/2014 5:57 AM (GMT 0)
Thanks so much Lj ! I will look into the soothanol as well I've heard alot of good stuff about that helping with the pain. I appreciate every word , every idea , every thought you all have to offer its great to have someone to talk to that understands everything that's going on. Sometimes I think just talking here with you all helps my stress level go way down . :-) thanks for all your kind words and advice . :-)
Posted 10/10/2014 2:14 PM (GMT 0)
It is so stressful to have an intruder in your home. The house we lived in before was broken into by 3 teens. My son was at home at the time but was upstairs. He chased them out.

Stress is a really big problem for anyone. Our nerves are not in great shape so it is much harder to handle stress.

I only had 1 son. 3 small children sure must keep you busy. Glad your Mom helped. I, too, have tried so many pain creams. When anything goes out on me, like my back, I use A-535. Nothing truly helps my neck and head pain but I am using A-535 with capsacin for my neck. My Doctor said go ahead and use it if it helps. I am not sure if soothanol is available in Canada.

I hope your pain comes down some. Yes, forgo on some housework - it is always there waiting for you.

Loring

Osteoarthritis in Multiple Joints, Fibromyalgia, Neuralgia, Chronic Daily Headaches, I.B., Hard of Hearing...
Posted 10/10/2014 6:38 PM (GMT 0)
I am not selling this, nor do I benefit.

http://www.footsmart.com/P-Neck-and-Shoulder-Wrap-30684.aspx?lsku=30684%20530%2000%20000&SRCCODE=WMGOOGLE&cm_mmc=goog-_-PLA-_-WMGOOGLE-_-012813&gclid=Cj0KEQjwh96hBRCnsefbvZrKrpcBEiQAF7oMdGmctCgGNFO4ogpmggcsOy0nUZFA_SMdS3ufMswAHBIaAhXI8P8HAQ&kwid=productads-plaid^59767812753-sku^30684+530+00+000-adType^PLA-device^c-adid^41429010277
Posted 10/10/2014 6:53 PM (GMT 0)
My neurologist called me and said my vitamin d level came back extremely low and called me in some medication, does that vitamin d cause all this discomfort?
Posted 10/10/2014 8:04 PM (GMT 0)
Yes. Low D can cause a lot of joint pains.
Posted 10/10/2014 11:14 PM (GMT 0)
Ok, any advice on gabapentin? My gp added that as well as vitamin d to the Robaxin I'm taking. He said the gabapentin is for the pain ? Just curious If anyone else has tried it and how they thought about it . I'm real nervous about taking meds due to before being diagnosed I had several sudden medication reactions so I like to know some good they have done if possible. Thanks :-)
Posted 10/11/2014 2:35 AM (GMT 0)
Ok sounds like you are getting somewhere here..thanks goodness....

I had always been able to manage with fibro, not always well, but managable.

After my d went to 19 last winter..it took me to a really bad place. In 3 months i got it to 46
And it made a huge difference.. I still have some of those symptoms but they continue to improve.
It was much worse pain, lightheadedness, forgetfulness, exhaustion, extreme muscle weakness.

I would have loved there to be just a vit d section on the forum. It was a desperate feeling .
Fortunately my dr heard me out and tested for it. He said that because of the bad winter almost all he tested
Had low d...that is making a big difference in pain levels..so i am happy they checked you

This is often a problem in fibro patients.

With some time and patience you can feel so much better!! You are on your way!

Thats exciting!

Lj
Posted 10/11/2014 2:39 AM (GMT 0)
Omg thanks so much for your encouraging post Lj !! My muscle weakness is crazy tonight ...I'm sure they rain / cold front that came in here this evening doesn't help but I can't wait to see if this helps! Thanks for the great encouragement I really appreciate it and can't wait for some healing :')
Posted 10/11/2014 2:55 AM (GMT 0)
Just want to say I am going throughmuch of what you are on the learning curve. It sucks but being on here has helped me not feel alone and the advice is great.
My guy sleeps in his own bed and I have my own next to his. Our friends call us ricky and lucy. I slept in another room for a few years and one day I asked him to move my bed into "our bedroom". So much better.
Good luck on your journey.
Gentle hugs.
Posted 10/11/2014 6:13 AM (GMT 0)
I take gabapentin. I use it at night so my bedsheets don't hurt my toes.
It does very well for me.
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