any input will be appreciated

Hi All,

I have been following this board and the lyme board for the past two months. At the beginning of september both of my arms started burning while i was at work. Burning like i had just worked out...but hadn't. that night when i went to sleep both my arms and hands went numb pretty quick...this is when everything started. the next day more burning and numbness. even when doing nothing my arms would seem to burn. Then it went to my legs...just the numbness...super scared at this point. So I went to a chiro and got relief from the numbness in my legs. so then at night i would wake up with my heart racing and my insides vibrating...only the top part of me. So I am taking some supplements and some of the issues have eased up. Sometimes my skin is very sensitive...like when i scratch it it feels sunburned but is not...this is not all the time. I also get muscles twitches randomly in my legs mainly. My right leg is very achy...my thigh burns (like work out) but my whole leg just aches. Twice since september my elbows have felt on fire and sore. I have been to rhemo and a neuro with no help. I have a positive ana with a very low titer. My sed rate was slightly elevated. All my other levels (like vitamin deficicenies) were fine. I am leaning towards fibro or lyme. somedays my arms feel better then others...but my leg always seems to be achy. Any thoughts?

Hi luv...sorry should hve mentioned I did have a mri that came out clean and the neuro did a cpk blood test which was ok and a nerve conduction test which she said I had mild carpel tunnel...does that help at all? For fibro there really isn't a test is there?

Leap year welcome! Sounds like you been through many test as usual for most fibromites trying to get diagnosed. It can be very frustrating and scary at the same time. Many of your symptoms do fall under fibro but as you know we can't diagnosed. Lyme disease has similiar symptoms as many other diagnoses too. This is why it takes someone that can figure all this out. I am surprised your rheumatologist wasn't very helpful. Maybe you went to Dr's that really don't believe in fibro. There are many out there still. You just have to ask the questions before making the appointment. It doesn't necessarily have to be a rheumatologist to diagnose you. Sounds like they did all the normal test most of them do. Did they do a tender point exam on you? This is where they push on certain areas of your body to see how much pain you respond to. It's as old of hills, but I think it's very helpful. You can look it up on line to see the areas.

I would look into the Lyme disease. I am not as familiar with it but as you said you have been on the Lyme forum already. I know many members here are well informed about it and hopefully they will way in on it.

I always tell people educating yourself if so important. Reading books on line can be helpful. Just becareful not to diagnosed yourself when reading so much. It's easy to do then it might not really be what you have. If it's fibro just remember it can be managed and symptoms can be reduced. We all respond different to treatment. You can still enjoy life and do fun things. It's all about learning how to managed it well.

Hi,

Did they test you for lyme? I know fibro is more when the rest have been ruled out....i have a genetic form of fibro and my drs wiife has fibro so he knew really early on...and our symptoms can come and go and be different at times...

It takes a while to see what helps us and what we do not react to medicine wise...very trial and error...just ask questions and talk it out when you need to...

Lj