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In Denial of Fibro Diagnosis: Opinions

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Posted 11/24/2014 4:48 AM (GMT 0)
Almost a week ago my doctor seemed pretty convinced that I have fibromyalgia. He did some bloodwork (the same bloodwork was run 4-6months prior and all came back fine for RA and other factors). I had explained to him that Id been having deep muscle pain in thighs and arms, shoulder pain, lower back, and hip pain (all on both sides) for about 8 months. I said some days are ok, other days are harder and mornings are the worst. Pain/stiffness. I asked if it could be my physically demanding job-Ive been there 2 yrs, this has been going on for 8 months. OTC pain Killers and tramadol havwnt helped pain, but Vicodan has. Oh and bad sleep-hurts to move in bed. My denial comes from the trigger points...to touch me I am ok, but it hurts and i jump if for example i run my hand slightly into something while i walk-like a lightening bolt of pain. Opinions: should i go for second dr opinion or does this sound like fibro?
Posted 11/24/2014 4:51 AM (GMT 0)
Sounds like it to me.
If everything has been totally ruled out then it is most likely fibro. Did a rheumatologist diagnose you? They are the best for diagnosing this.
Posted 11/24/2014 5:05 AM (GMT 0)
Agree with tater. If they have ruled other items out, it does sound a bit like me as well. I have zero trigger points which befuddles both my docs, but they aren't up on the latest research, IMO.

Anyway, I would classify my pain like muscle pain from extreme exercise / exertion, without actually doing anything. I've sat at my desk before and my shoulders would suddenly feel like I just did 200 push ups. Weird, but that's how it started.

Other pain is like my muscles are "tight" like they haven't been used for a long time.

Like you, my mornings are the worst, and like you even rolling over in bed is very painful...
Posted 11/24/2014 5:20 AM (GMT 0)
Ty for the responses. It was my PCP that diagnosed me. Hes having me try Lyrica for pain--hoping it works bc nothing else has. I hate to ask for narcotics stronger than Tramadol bc I hate to feel like Im being judged for asking because other people have abused them. I want to be able to sleep and wake w/o pain! Play w/ my kids, climb the staires, & get out of the car w/o hurting...or worrying about my job or future.....but im preaching to the choir. You guys have your fears and wishes too!!
Posted 11/24/2014 9:58 PM (GMT 0)
Hi, Peme, and welcome. It sure sounds like fibro to me but I do hope tests have been done to rule out other illnesses like Lyme disease and lupus. They have many of the same symptoms as fibro so they need to be ruled out since there isn't a good test for fibro.

You do have pain in all four quadrants of the body and that is the main symptom. There are other weird symptoms, too.

I used to have the bad pain that kept me up at night. I was put on a muscle relaxer, Robaxin, and it made a significant difference in my pain! I was getting up at least five times a night but now I get up once a night to use the bathroom. The added rest had helped me.

I only take half of what the doctor prescribed. This way I don't get sleepy or groggy and can drive, etc. it works great for me.

Also I use magnesium malate and vitamin D3. These help me with pain and fatigue.

Please read Fibro 101...the first thread on the forum. There are good links about fibro and you will learn a lot there. Mood starting links for you would be Symptoms, What Else Could It Be, and A Thorough Explanation of Fibromyalgia. You just might see yourself there. There are links about the supplements I mentioned above and how they work in the body. All of Fibro 101 is good so do read it.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine
Posted 11/27/2014 10:08 PM (GMT 0)
Sorry to hear this about your diagnosis. Try to find a muscle relaxer that works well for you. Ask about vitamin d/magnesium supplements or tonic.
Posted 11/27/2014 10:10 PM (GMT 0)
Tom BSCS ... how have you been! Are you doing okay?
Posted 11/28/2014 2:50 AM (GMT 0)
Fibromyalgia is usually undiagnosed hypothyroidism (not enough thyroid hormone in the body). Chronic widespread muscle pain and fatigue are symptoms of hypothyroid and there are many others. Most all doctors will overlook this diagnosis because basic bloodwork will show "normal" for thyroid hormone, but there are many other factors and symptoms to consider before ruling out the thyroid. These doctors, for whatever reason, typically do not dig deaper and solely go by the bloodwork. Find a holistic MD or DO who practices FUNCTIONAL MEDICINE or find a holistic pharmacy and ask them to give you names of holistic doctors who prescribe Armour thyroid hormone which is all natural. Most doctors affiliated with hospitals will only prescribe Synthroid hormone which is a synthetic and not as good, according to my doc. It took many years, many different doctors, lots of my own research and lots of money to finally figure this out. God's speed to you!
Posted 11/28/2014 2:55 AM (GMT 0)
There are very good articles on fibromyalgia at Mercola dot com. Dr. Mercola is a holistic DO and his website has thousands of free articles on health and fitness all from a holistic view. It's been an amazing source of information for me!
Posted 11/28/2014 9:55 PM (GMT 0)
peme, If the dx was from your PCP I wouldn't have an issue with asking for a referral to a Rheumatologist for a second opinion. Plus, I'd rather have someone who deals with Fibro more treating it than just a PCP. I'd ask around in your area for who is the best for Fibro, and get a referral (if needed).

As for the tender points they do vary in tenderness from person to person, and even day to day. So, it's entirely possible that they didn't react to your PCP (he may not have even been hitting the right spots). This is why the new criteria as of 2010 takes into account other aspects like sleep issues, chronic general body pain, migraines, ibs, etc that tend to interplay with Fibro.
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