Sore to touch

A lot of others with fibro have this. Our pain sensations are on overdrive at times.

In my case this is more rare..like if i am heading into a flare...i might have a day like that.

Our symptoms can come and go..so its good to remember that just because that hurts today, it doesn't mean it will always be that way.

In November, right before the Kyrica, I thought I was going crazy and might have to go in an isolation tank. Every nerve on my body was crazy. Noise, touch, etc. they put me on Lyrica and it made a huge difference.

Even before that, I learned not to accept party invites in
January or February. I generally dont like being bumped or touched through that time and am embarassed when I seemingly overreact. People dont understand.

It took a while for my husband to figure out the ins and outs of affection. We had to work out a deal that he wouldnt have his feelings hurt if something hit me wrong and I had to learn to tell him calmly. It changes per day so it can be frustrating. However, sometimes, I am positively receptive to very light gentle touch the right way.

I think it is hardest on kids to see Mom or Dad like that. My daughter is a cuddler and is 16. I worry about letting that closeness go, but sometimes, i cant take her leaning on me and cant make my fingers work to scratch her back.

My arms are the worst areas. Near the elbows are sections that dont seem to ever fade. Lately, I have been using TENS therapy a lot to help with the pain there. It helps right before a holiday gathering so I am not quite as sensitive.

Seb, I have to cut labels out of my clothing. Everything bothers me. Soft clothing is a must. The fabric on my furniture is even too rough and made my arms bleed. So, in the summer, I drape velour beach towels over the pieces of furniture that I sit in regularly since I'm in shorts and short sleeves. In the winter I can remove them since my slacks and sweaters protect me.

When my children were younger, they would give me a playful swat and I would shout OW! since it really hurt. The kids kept saying they didn't swat me hard but I swore I would have a bruise soon. Nope, no bruise. Just sensitive.

Sherrine

I never really thought about clothes being a bother until now. I always have an issue with tags from shirts, especially the ones on the sides, driving me crazy. No matter how much of the tag I cut off, it feels like it is poking me. The cold weather is the worst. My doctor told me that if you think about it, having fibro is having you muscles scrunched up like you are shivering all the time, come winter, you are trying to scrunch up muscles to stay warm that are already tight and scrunch. The muscles are very unforgiving and stuck in their memory position.

My doctor also recommended the myofasical massage and I have been seeing his guy. I have gone three times since November. Each massage is painful, but I figure the deeper he massages eventually the muscle with relax a little. Right now, my right shoulder blade area traveling up to my neck is what is bothering me the most. It feels like the nerve pathway is congested and inflamed. I think combination of massage and the meds have been helping because I have had about a week of feeling little pain during the end of the day, but start getting more sore at bed time. I want to continue the massages, I just need to make room for them in my schedule and look at it a necessity rather than a treat. I have thought about getting something like a tens unit. My old chiro use to do electric stim on me and it really did the trick.

Thank you for continued and previous responses!!