Newbie here - Post Polio Syndrome

This is my first time on this forum. What a wonderful supportive place it is!

I have post polio syndrome from having had polio as a child. Thirteen years ago I was told I would probably be in a wheelchair permanently within 2 years.  I had serious, frequent, life threatening heart arrhythmias that would last for days, severe foot pain and terrible fatigue not to mention depression. I had to give up my 25 year career as a Personal Trainer / Medical Exercise Specialist and basically 'stop exercising'!  It was horrible....all that I loved had to stop.

In the past 13 years, my education went far beyond nutrition and exercise. I learned how to think differently, eat far better (raw plant based), exercise very specifically and somatically, meditate, rest and visualize....every day.  I have learned so much that I feel I can now truly give my body what it needs to heal every day no matter what it is telling me.  I have very few symptoms now. When they do show up, they are mild and don't last long.  I know how well a body can heal itself given the right nurturing but nothing else is to come first.  You have to come first every day.

I know I can learn from you as new symptoms will come, I'm sure. I'm not getting any younger!!! 

I just want to say that no matter what is happening to you now, just be patient and loving towards yourself.....learn as much as you can about healing your body, rest and be patient.  Nothing happens overnight.

I added "newbie" to your title so your thread would get noticed more.   Debbie

Post Edited By Moderator (Acheybody) : 9/17/2013 9:36:23 PM (GMT-6)

Lovely to talk to you and thank you for your reply.

When my symptoms started appearing prior to 2000, I had many Physicians and Specialists mis-diagnose me and was told I had everything from fibromyalgia to arthritis to plantar fasciitis to "there's nothing wrong with you".  This went on for over 3 years. 

As a Medical Exercise Specialist, and one who attended 'every course and workshop going' through the fitness industry and medical industry over many, many years, I had figured it out and eventually decided to find a Dr. who comes from a country where polio was in existence.... which was India.  I found a wonderful Physician who referred me to the Post Polio Clinic in Toronto but not before we tried several weeks of acupuncture which didn't work.

The rest, as they say, is History.....a bumpy 13 years to say the least but I feel amazing now even though my polio affected muscles will continue to weaken. Even that I believe I have been able to slow down considerably.

I knew that fibromyalgia wasn't the cause of my symptoms as I had no tender point sites, no sleep dysfunction and no memory issues although symptoms of fibro and PPS are very similar as are those of Chronic Fatigue Syndrome. 

While they are mysteries somewhat....it doesn't matter. There is so much we can do to heal ourselves and I hope to offer some useful suggestions on the forums. Hopefully someone may say "wow, that's a great idea....I can't wait to try that!"   That would be great!  I'm here to learn and to try and help....looking forward to sharing especially as I know as I age further, there will most likely be new challenges ahead for me as well.

Talk soon Debbie....have a wonderful day!!

Sue

So sorry to hear your hubby has this too.  Mine has affected me on my left side also.

Has he tried any exercise in terms of pain relief? I find it is very useful as long as it doesn't overuse motor neurons. It must be specific to his symptoms....please let me know if he has questions about that.  I am a certified medical exercise specialist as well as a polio survivor.

Also, what might be worth reading is "The Mind Body Prescription - healing the body, healing the pain" by John E Sarno. 

Also, try this CD: Mary is wonderful to listen to.  I have 2 of her visualization CD's that I listen to every day.  I think this may help you also.

I hope this helps Linda.

Hugs back to you and I wish you both well in your healing journey.

Sue

I took out the link because this site is selling its tapes, etc.  That's against forum rules.  Please read them!  Debbie

Post Edited By Moderator (Acheybody) : 9/18/2013 11:24:35 PM (GMT-6)

I just realized, I didn't give you the link for the cd's......www.newmindrecords.com   Her is a link to the one on pain management:

If you look at Mary's other CD's, she has some that have 10 minute guided visualization.  I have 2 of them and they are wonderful.  I find that my energy always goes up when I take 10 mins to listen to one of these.  I think your husband will find them very useful and enjoyable.   Sometimes work can get a bit too much and so these are well worth the time just to be able to be calm and energized.

Chin up!!  I always say that.  Life is still good!!

Please, once again, read our forum rules, which include: no links to websites selling anything for profit.

Post Edited By Moderator (Acheybody) : 9/23/2013 12:10:00 AM (GMT-6)