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Fibromyalgia
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Posted 4/12/2015 12:31 PM (GMT 0)
Hi, pain is now all over body and much more severe than ever before. My GP has been kind enough to give me lyrica which i asked for, since rheumy thinks the problem is not fibro now, but inflammation of tendons in my hands (and that explains foot pain, knee pain, fibro fog, and a ton of other things how????). So he wants me on anti-inflammatories….uh, all blood markers showed zero inflam. Not going to happen. I told him lyrica at a higher dose worked, but can't take higher dose so wanted similar med.

No more seeing him.

Got a # for a different rheumy….however, on the clinic website and his personal page, they mention things they treat and nowhere does it say fibro. feel deflated. gonna call tomorrow and find out for sure. seems like not many around here treat fibro, very frustrating. sometimes i wonder if they are right, there's nothing wrong. i must imagine the pain, etc.

typically if docs don't list fibro on list of what they treat, is that a no-go???? not sure where to go, just need my pain, etc, treated asap.


sorry to be negative. gotta find a doc who believes in fibro. a few days with the illness and every doc would know it's real. angry.



hope u all have less pain/symptoms today and every day.


Sunny.
Posted 4/12/2015 2:46 PM (GMT 0)
This doc may work with you with the fibromyalgia. Try not to feel defeated until you know one way or the other. Pain is pain, no matter what it is. I hope you can get the amount of lyrica that you feel you need. I Hope you feel better soon.

Hang in there Sunny,

Praying for you...

Hugs, Karen....
Posted 4/12/2015 4:43 PM (GMT 0)
I take lyrica it helps reduce my NERVE PAIN 40-60%. There is anthr med that's a multi use for diff. health issues.
I had used max for PT w/ins med auth dept i talking to CSC msgd person wrkng my req for addtl visit msgd back has FIBRMYALGIA & was denied on date OMG denial was for difnt part of my bodypart & DR. DID NOT EVEN open TO READ. The "FIBROMYALGIA" is the name Medical put all with unexplained CHRONIC PAIN...since 90'. We are HUMAN & I WISH I DID HAVE FIBRO, but I do & boy every day or hour can CHANGE IN A BLINK. I count to 22 (only get to 3) I hope you find RELIEF. How is your vit d?
Posted 4/14/2015 1:28 AM (GMT 0)
sounds like Dottie and I have the same results from Lyrica.

I had the same issue you did with docs Sunny. My new PCP finally ran the tests I needed to verify. The Rheumy I saw told me I had Fibro, shoved a Lyrica prescription in my hand and told me to find a doc to take that over and I wouldn't need to come back. (Was it something I said?....I did shower....). I see a pain doc and that makes me untouchable it seems...

Don't be hesitant to stand up for yourself and be firm with the doc. It took until I found my new primary to get someone to listen and pay attention.

I will keep my fingers crossed for you. Let us know how it goes.
Posted 4/14/2015 12:57 PM (GMT 0)
angry. doc i was referred to doesn't' treat "that". But they were willing to take my $$$ for tests i told them i had already had done. she said "well maybe we can find something else you have" !!!!!!!!! Crazy b!!!! I don't need more dx, just treat the ones i have.

stuck. no idea how to find a rheumy that will tx me without going nuts making phone calls. i feel very hopeless with a number of medical issues and personal issues and don't honestly think i can call tons of docs offices to get info and turned down and stuff.

wish this life was gone. i think i already am.
Posted 4/14/2015 1:29 PM (GMT 0)
Sunny. I am so sorry to hear about that. Some days I think they remove all human kindness and sensibility from specialists.

I did find a couple of good Rheumies, but ended up not needing them as My primary took care of my needs. It was a process, but I kept the names in case it came up again.

I don't know what health care you have. I have Univera POS. (I will be good and NOT say what I think POS stands for some days 😜).

They have a website of all the specialists that you can look up by area. Most healthcare companies have them now. I looked them all up and picked all the ones that were within a range I was willing to work with. Then, I looked all of them up on the Internet. I mostly used healthgrades, but found other sources when I drilled down.

I found two whose patients reported they were not just pill happy and were genuinely interested in their patients. One had won a patient voted care award 4 years in a row. I have them set aside in case things get worse and I genuinely need to go through getting a Rheumy.

I admit it took me a few hours. I just felt the need to know that there were decent doctors out there. I also felt that the 3 hours I spent was easier for me than building up to go to a doc for a 3 month waiting period only to have them make me want to scream at them. (Am I the only one that finds their temper harder to control now? Central nervous systems unite! Lol)

Whatever you decide to do, i would make a recommendation that you go to the patient rating websites and add a rating for that doc. I found them valuable when looking for info. It was pretty easy to tell the whacko ratings from the genuine efforts of real patients. I found immense personal satisfaction from putting a concise evaluation out there and removed as much emotion from it as possible. It really helped me let go of my frustration.

Good luck Sunny.
Posted 4/19/2015 10:24 PM (GMT 0)
Thanks Jenni-

Have not read any responses until today. Just exhausted and hurting lately, but finally up to doing some reading.

Thanks for the suggestion of looking up the docs. I will check that out tonight for a while. Thanks!!!! I will let you know how it works out!!
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