Posted 4/21/2015 9:16 PM (GMT 0)
After four years on LTD, I am being forced to return to work. They figured out a way to cancel it and so they did. I have psoratic arthritis as well. Some days the pain is just out of this world. I finally got a sympathetic rheumy, and the arthritis was finally diagnosed. I was finally put on savella and it worked as long as I kept my dose low, flares were kept to a minimum. I still suffered with arthritis, but it was heaven to finally be somewhat pain free. ( the savella and arthritis med together are a bad combo)
I was ticking along, enjoying life when I found out that the "trial work" period they suggested in "another occupation" that was "okay" was being monitored. I only was able to work five hours a week before having to quit after a month. I had tried to do light cleaning for seniors.
They taped everything I did that month, and then held all of the evidence for two years. Last week they notified me of their decision. They sent me to a "doctor" they paid for who said I was "fine", and instead of having fibro and arthritis. I am mentally ill, and "faking" my pain as was proven by the "work" I did years ago.
The awful news is that because of this, I am now no longer to afford the medication that radically improved my life. Yet, I am expected to return to a full time job of the same caliber as the one I did prior to leaving for LTD. I was forced to go on my leave because of my cognitive issues and pain made performance and attendance poor. I was about to be fired, so thought I'd take a graceful exit.
I have no idea what I will do. I've gained a ton of weight from all of the different meds, so none of my old "work" outfits fit. I can not even begin to think of how I am going to function in this situation. It will be an unbearable hell riddled with pain and embarrassment, as the arthritis makes me incapable of walking with NO warning. I would have "episodes" at work years ago that I would blame on "sports injuries". Now it's too bad to just "make up" an excuse.
As for SSDI dont even get me started. If you're under 50 you could sever your arm with a chain saw in front of an administrative law judge, and they'd still say you can duct tape it up and run a copy machine.
So frustrated, I really wish more attention was given to this horrible disease. The perception that it's all in our head reeks of 1950s era medical wisdom.