Has anybody considered a chronic pain/fibro life coach?

Well, it does seem like you want it all. We all do. I have no idea where you get someone to do all the things you desire. As with our medical problems, being bounced around between several Specialists, I imagine you would need a number of people with various skill sets to achieve it all. Hired help is costly.

Maybe Hospitals or Doctors need to set up Fibromyalgia training. They do teach you how to deal with Diabetes, why not Fibromyalgia.

I envy anyone who can continue to work with Fibromyalgia.

Your desires are logical. One step at a time.

Loring

Osteoarthritis in Multiple Joints, Fibromyalgia, Neuralgia, Chronic Daily Headaches, I.B., Hard of Hearing...

I think this is a great idea. I come here for my sanity check. The support group I attended made me a bit depressed. I still work too and they actively pushed me to go on disability and to get an internal stim which made me uncomfortable. I don't have issue with anyone who doesn't work. It's an individual thing and everyone is different. I am fortunate to work out of my house and have some flexibility with my schedule. I count my blessings there.

Sometimes, though, I want to talk face to face with someone who doesn't roll their eyes if I even remotely mention Fibro or CRPS. one of my friends is a doc and she leads the pack with this. I am proud of what I have done and how far I have come. It would be nice to share more ideas face to face. The other people I talk to face to face want to TELL you about what they JUST KNOW will fix your problems. A sharing, suggestive group that is a face to face version of this would be fantastic.

I started a blog/website about tools, but haven't had the enthusiasm to keep it up. Would it make sense for us to share our best tricks here in lieu of face to face?

I am in the process of rearranging my house in spurts to make it easier for me. I cut back on entertaining and started prioritizing activities. I have up days and down days, but am trying to work with both to get more done. My goal is to have fun with my daughter and husband as much as I can.

Having someone to share these with who gets it would be nice.

I can help you with keeping track of bills. Use the automatic bill pay with your bank for the regular bills that don't vary.
Have a special basket for your bills with a calendar next to it. As you get a bill write a check for the bill and prepare it to be mailed. Write the due date on the calendar and place a post-it on the envelope with the date you need to mail it. Check the basket daily and send out the bill accordingly.

Yoga can be found on the internet.

For house cleaning, it's tricky, but do-able, divide your house up by what's important to you. Maybe keeping the livingroom presentable. Clean the toilet once a week, wipe down the sink after using it, and use a vacuum sweeper once a week.

Forgot to add one thing. My husband took over the regular bills. I take care of the things like taxes and charity and medical. I can't remember daily, but that seems to track well with us.

Good tips here. I've about quit telling "normal" people I have The Mess. They can't help that they canno' understand. I do wish there was a local The Mess group, I think. I don't know.

The site here helps because at least we here know what each other is talking about. I'm on today a lot because I remembered the site again! I'd about forgotten it, but the daily pain, etc. hasn't forgotten.

Oh, as for medicine help (y'all probably already know this), a tramadol in the morning, a cymbalta at night has helped me now for about three years. I know, because I ran out of each at different times for about a week with each one. That, and flax seed oil pills, baby aspirin, vitamin D, and a betasitosterol thingamajig is all I take. Let's hang in, we're gonna make it.

Glad you remembered, gene! :)

When i first called the moderator of the suppot group, it was perhaps the second thing she said to me. Something about getting used to the idea that I would have to go on disability. Plus she kept pushing it and making it clear I hadnt accepted the inevitable. It was disheartening.

The other thing it felt like they were pushing were the internal tens machines. That idea bugs me a bit. They even wanted me to feel theirs. It goes a little outside of my comfort zone with strangers.

I admit that some days there are thoughts Are have about this. However, as long as I can fight through it, I will. I need the stimulation and worked to the point where I could do good things in my job. I want to enjoy what I di, and i do, I would be lying if I didnt say it was very hard some days. Other days are easier. It is just the right thing for me right now. Everyone is different.

The group is full of nice people and it was fun to compare notes for a while. We just have different viewpoints on some things.

Jenni,

That does sound like an interesting group...does the internal tens company, sponsor the group? Lol..

I would not find it helpful , for others to try and tell me what to do.

I share with others, things that help me..but we are all different and respond to different things..not clones....

I just realized after that post that I've already spent years learning how to deal with my fibro, long before I'd even heard of it.

Also: Mattie that sounds like an awesome system. I think I may try it (if I remember when I get home, lol). Thanks for sharing. :)

Inspiration, "

I had the same thought as you and started as blog. I had a bad patch after the first month or so and didnt update for a while. There is a group named Chronically Awesome. On good days I read what they are doing and try to figure out how to participate. I like the idea of being the best version of you that you can be and that is great. Its the only other group I have found that has had a positive attitude towards illness. They have a podcast too. I have bee powering through the old ones a getting a feel for them, but havent made it far yet.

AnnaBannana
Yes, let's talk! I have many ideas stored away, have run numerous groups and workshops started community programs home schooled etc.
A team effort is a perfect way to go. We just need to start, plan, respect, all the jazz that goes with good teamwork and taking advantage of each others varying leadership strengths.
How do we talk offline?
Blessings