Remember me?

Yes, jakes, I remember you.

Wow, I'm sorry you are going through so much.... :(

I hope you get some answers.

In this day in age when amazing brain surgeries are done and hearts replaced, so many mysteries can remain.
That tells me that money isn't invested in research. But then, if Big Pharma can hog all the money in pain pills, I'm sure they block money going to any research.

I'm turning into a conspiracy theorist...

Are you having to work in a job through all this?

(((Hugs)))

T


I get the same fibro fog.

Hi Stacey: Welcome back! :) So sorry you're dealing with so much right now.

I get odd symptoms at times that make me wonder if it's fibro or something else. Mostly, this is because I was told by my neurologist that there's "something else going on also" besides the fibro, but he couldn't make an exact diagnosis. His best guess was possibly mild CP because of my "sloppy" reflexes. This really surprised me, but it also explained why I'm sometimes uncoordinated and always have been. However, I never realized that I had poor reflexes, so it was quite a surprise.

Do you feel this neurologist is doing all he/she can to find out what's going on? Would it be worth it to try another neurologist? Sometimes it helps to switch doctors, though it can be a pain and also another expense. It sounds like you've seen lots of doctors and you're probably tired of seeing them. Been there; done that!

Also, is there a fibro support group near you? I always hoped there would be one in my area, but I'd have to drive a good distance. This forum sure helps, though.

Whenever I feel overwhelmed by problems/health issues, I stop and decide on only one thing at a time and work on that. This has helped me prioritize, while also helping me to move slowly ahead. We can't fix everything all at once, but taking one issue and working on it will get us there eventually.

I hope and pray you get answers soon. Remember we're here for you!

I hope this neurologist is better. There can surely be a huge difference in doctors. I think they should be willing to sit down and listen to our concerns, then do what they can to help. And if their advice doesn't work, they should continue to search for solutions. Not every doctor is like that (though that would be ideal!), but really, I think that's a huge part of their job.

I'm sure the anemia is making you very tired, too. You're dealing with a lot! Are they checking your iron level regularly? It's hard to feel positive when you're feeling tired and weak.

Also hope they can zero in on your heart problems.

You poor girl! You're carrying a big "load" right now, but keep us posted. I know we do care here, and maybe as you get more info (if you want to share it here--up to you, of course), you'll find some helpful advice from others who have dealt with some of your issues.

Be good to yourself. I hope you have a nice, relaxing weekend. Hugs and blessings!

Glad you will see a new dr.. Sounds like a lot of issues to address at once..my primary oversees my medical care..

Hows your vit d levels? That forgetfulness was how i was when my levels were low...

Sometimes medications can affect the bowels, hoping your dr..is helping you think through that..

All we can really do is one step at a time, but try to make sure at least one of your docs is seeing you as a whole person, not just issues piecemeal? If that makes sense?

Saying a prayer that your new doc will be guided to help you..

Lj

I too remember you. I understand exactly how you feel right now! My health problems are different but they are overwhelming. I have had fibro for 16 years now. Two years ago I was rear-ended at 30mph by a van while I was stopped, at a red light. The gentleman was, ready?, on his cellphone. Since then, my right knee, which slammed off the brake and hit underneath the steering column, has had a limp, then locking and grinding, went to PT for months, then arthroscopic surgery to remove the torn pieces of meniscus and debride the damaged chondra under the femur, then PT, with a cane, now, chondra patella syndrome, locking and grinding knee pain as the patella doesn't move in the femur grove creating grating on the bone and tendons, additionally I now have osteoarthritis in the knee so am getting 3 shots into the knee to create synovial fluid while wearing a special knee brace, and PT in the water. It increased my fibro by 40%. I have post concussion syndrome, still get headaches and my brain doesn't connect to past memories or get the words right. I have PTSD, anxiety and depression so will begin therapy soon. And, really, and, my gastric system went wacky. Attacks of pain so horrific that I went into the ER twice in 10 days. First time I thought I was dying, pain at 10! Second time, pain at 10 but knew I wasn't dying. So, in 2 weeks, I am getting a full endoscope to find out whats wrong. It's not GERD, sigh.
I just take each day as it comes. I distract myself with filling in Mandala coloring books, blogging for chronic pain every day and continue walking my dog. I also keep up with my household chores as a organized house makes my mind fill better. I am overwhelmed with doctors and paperwork!
So, I feel for you. Please keep us all updated. Keep it simple and ask for help from anyone you can during this time.
Lots and lots of hugs