New to this forum and needing help!

Hi everyone,

I am desperately in need of help. Exactly 4years ago after my daughters birth with (spinal epidural for pain relieve), I started to have muscle spams on my vertebra column. The spasms would come when I change my posture or move or when I feel upset or shocked. the frequency of the spasm slowed down as the years went by. However other symptoms started creeping in like waking up with stiff neck, and leg spasms and pins and needle. I always endured and never really complained. But recently in Aug, I got sick with a flu like illness and shortly after I started having muscle twitching all over my body. nerve pains, and now excruciating pain in my ear down through my throat. It feels like my ear and throat have been on fire for 3weeks. My Primary Care Physician says I have no ear infection and they are starting to be bothered about my symptoms.

My blood work is normal. MRI of the brain came back normal. EMG and Nerve study came back normal as well. I am so confused.

I am so worried and pathetic state of mind right now as I am afraid for my life. Could this be fibro?? Does any one have this experience. I am only 31yrs old!

Thanks for taking time to read!

I have sleep issues and I know on the rare occasion I get a really good nights sleep my pain is greatly reduced.

I also know from lots of research that there are no drugs that create sleep - at best they render the patient unconscious and most actually stop the most important stages of sleep - this in includes Elavil

Psychiatric prescription medications that can potentially reduce, delay, or worsen physiologically-restorative and hormone-balancing Stage N3 delta slow-wave sleep and/or reduce cognitively-restorative Stage REM sleep include:
•Benzodiazepines◦Alprazolam (Xanax)
◦Clonazepam (Klonopin)
◦Diazepam (Valium)
◦Lorazepam (Ativan)
◦Temazepam (Restoril)
Ambien

•MAOI (monoamine oxidase inhibitor)◦Isocarboxazid (Marplan)
◦Phenelzine (Nardil)
◦Selegiline (Emsam)
◦Tranylcypromine (Parnate)

•Selective SNRI (serotonin and norepinephrine reuptake inhibitor)◦Desvenlafaxine (Pristiq)
◦Duloxetine (Cymbalta)
◦Venlafaxine (Effexor)

•SSRI (selective serotonin reuptake inhibitors)◦Citalopram (Celexa)
◦Escitalopram (Lexapro)
◦Fluoxetine (Prozac)
◦Paroxetine (Paxil)
◦Sertraline (Zoloft)

•TCA (tricyclic antidepressants)

Andre, you know why I edited your post.

Post Edited By Moderator (Sherrine) : 11/27/2015 5:29:33 AM (GMT-7)

Hi, Sweetmum, and welcome! For Fibro to be diagnosed, you have to have pain in all four quadrants of your body that lasts for three month or longer. You have said iyour pain is along your spine that is causing the problems and you have twitching all over. We can have twitching but it's the pain that is the primary issue.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about Fibro and you can learn a lot there. This might help you see if you are heading in the right direction as to what you think is going on. Good starting links that might help you are called Symptoms and A Thorough Explanation of Fibromyalgia. If you see yourself there, try to see a rheumatologist who treats Fibro to get a definitive diagnosis. You see, there are other illnesses that have many of the same symptoms as Fibro and those have to be rules out first. There is no good test for Fibro so diagnosis is usually done this way. A link in Fibro 101 called What Else Could It Be will show you some of the things that should be ruled out.

I know this time is frightening for you but do try to relax and take one day at a time. The stress can cause so many problems for you. You will find out what is going on. I know I would get a second opinion and see if that doctor has some idea as to your problem. But you will get it figured out and get the help you need. It's the searching that is so difficult.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Do let us know what you find out because we do care about you. Hope to hear more from you soon.

Sherrine

I have recently been diagnosed, even though I have had Fibro for years with no diagnosis. I finally made an apt on my own with a Rheumotolgist and thank god I did. I was told by him that I was a classic case of Fibro and that he wishes he was still teaching because he would use me for his students to show them what Fibro looks like. I am 43 and have been through a lot of deaths in my family (my dad passed when he was 60 from Stomach/lung cancer and my mom the following year at just 58 from Early Onset Alzheimers) Honestly as much pain as I was having I was more worried about the Fibro Brain fog and thinking I was having early onset as well and the pains and aches that I had were from getting older. Then I realized I was in my 40s not my 90s so this pain that was hovering at 7/8 on the pain scale every day was not normal no matter what people thought. Thankfully my Rheumotolgist was great and had me do a sed rate, c-reactive and lots of other blood too and started me on prednisone to rule out other auto immune diseases. It has to be fibro because the prednisone is doing nothing but making my right eye blurry and making me sick to mystomach. Still waiting to go back to see him after the prednisone is done. Only a few days more thank god. Get to a RA dr asap.