Fighting and fighting and fighting

Just curious if there are folks out there like me. I guess I have Fibro (rheumie diagnosed)...a secondary thing after a serious immune deficiency called CVID, which I inject plasma regularly to correct. Both cause joint pain and so forth.

So I fight....all the time. I guess I figure I will hurt no matter what. I am a lifeguard and I just recertified - lots of physical standard tests that I can do...but that I pay for afterwards. *sigh* I keep going - I am actually fitter than many that I work with but I pay for it.

I definitely believe in keeping active & eating healthy to fight fibro. It really does help. I take ampitriptyline so I can sleep at night...it sorta works but what it really does is fight the nerve pain & tingling. When I ran out last time & had to wait for a doc's appointment I had a lot of pain and tingling in my limbs...so I guess it helps.

Anyway, some fight...some don't...I am not judging...but I was wanting to connect I guess with those that fight & try to live "normally"....my co workers do not know what I deal with. Yep, I'm stubborn...and a private person.

52 years old, and currently work three jobs or about 60 hours a week, every week. It can only be done with lots of meds. I'm very luck to have a PCP that I've been seeing for 25 years, and he does everything he can to help me. I've seen many specialists, none of them really care or know what to do.

Heck, I recently saw my "rheumy" and I ask him about his other fibro patients. He said most of them stop seeing him after a couple of years. He's right, and I won't be back.

I applaud all of you. I am 59 and went on SS in 2011. Stopped working in 2010. Most days I don't get much done at all. My husband is very supportive. I don't expect him to understand. If someone had told me everything I have told him, I would find it hard to believe all the symptoms I have.

"Great things do not just happen by impuse, but as a succession of small things linked together."

Trust me i understand, i work 40 hrs a week and do 1 hr stretching routine every day and swim a few days a week-4 hrs a week. My doc keeps adding things they want me to do every day and it is serious stuff.

Keep up the fight!! I know it is rough but make yourself a routine and you will soon begin to enjoy it.

Bravo to all the fighters here!

Yes, to deal adequately with fibro, I think, is a constant battle.

The good news is that the more we do it, the more automatic it gets. We each need to find what works best for us as far as diet, any supplements, how much rest versus how much exercise, how to get things done when in pain, etc. and good ol' pacing.

And have you noticed that quite often we need to change the way we do things to find improvement or a better way to do something (lifting, exercise, or whatever)? That's okay, though--just find what helps your pain, or helps your day to be better, or find a way to sleep better, etc.. This forum is a terrific source for all that.

Chuzzle said it so well: Never give up; never give in. And yes, I agree, it only gets worse when you lie down under it. It really is an ongoing battle, but once one gets into that routine of 'battle,' it does help make it a little easier to deal with.

Onward and upward.... :)