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The worst pat is waking up in the morning

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Fibromyalgia
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Posted 3/31/2016 1:10 PM (GMT 0)
Hello it's been a while since I've posted anything.. Every once in a while i need to describe my symptoms since I feel helpless at times...I dread going to sleep because I know that I will be waking up to pain in the mornings I wake up feeling like I got beat up. My arms and my left leg usually hurt. I sucks because I wish I had some medication to stop it ... I hate feeling like this .. Because I feel like something is happening and it's going un treated...pain meds just mask it I wish there was a medication that just cured it It's really tough I still work full time but I hate sitting at my desk suffering and worrying in silence about my condition even tho I have fibro part of me doesn't want to settle for this diagnoses I keep thinking its something else since I feel so uncomfortable at times. But im also tired of testing for other things that keep coming back negative ... It's like I just want to get some king of body scan to check everything once and for all lol. I also wonder if I'm missing something that hadn't been checked.
Posted 3/31/2016 3:43 PM (GMT 0)
Hi Jasflower. I think a lot of us fear that symptoms we attribute to fibro may, in fact, be caused by something more serious. I think the best we can do is get diagnosed with fibro by a board certified MD after tests have been run to rule other things out, get regular check-ups, and bring any new, persistent symptoms to our doctors. Past that, we have to try to put the worry on the back burner. Easier said than done, I know. It's hard to accept that fibro isn't degenerative when everything is in pain or that it's not something more serious.

I've had fibro for around 15 years or so (I think. I have a lot of health probs, so my timelines are getting fuzzy). One of my biggest issues has always been morning pain and stiffness. I wake up every morning feeling like I've been in a fight. Everything hurts and nothing wants to move. It takes an hour or two (sometimes more) before I can do much of anything. So I definitely understand the dread of getting out of bed. That's a "normal" manifestation of fibro for me. If this isn't a new thing for you, and your doctor attributes it to fibro, then I would try not to worry about it. One of the hallmarks of fibro is morning pain and stiffness.

I'm sitting at a desk right now just typing, and I can name at least 8 body parts that are buzzing with pain, and I'm not even moving. When I get up and move around, that number will definitely go up. It's something I've just learned to push to the background. Constant pain and discomfort are, unfortunately, also hallmarks of fibro.
Posted 3/31/2016 4:29 PM (GMT 0)
hello austen fan.......thank you for your response ....im sorry that you have the same pain that i have i do find comfort in the fact that im not alone .. i like the support that i get from this website .... no one understands what i feel unless they go through it to...i hoppy everyone has a good day today
Posted 3/31/2016 6:08 PM (GMT 0)
Jasflower and Austin, I am always stiff when I wake up but have been in less pain since I started taking a muscle relaxer. I now get up, stretch and walk around and things loosen up for me and the pain is milder. I also get up a couple of times in the middle of the night to use the bathroom so I think that helps too. I think that helps to have some movement thrown in there in the middle of the night.

I'm sorry you both are struggling like this.

Sherrine
Posted 4/1/2016 1:00 AM (GMT 0)
Just another reply to validate the morning feeling of being "beat up" or "hit by a train" is the term I usually use. :-)

It's so bad for me, that a few mornings each week I awake at around 4:30 in terrible pain. Luckily for me, Lyrica helps and so I drag myself to bathroom and take one. The muscle relaxers work for this too. In my case, though, most muscle relaxers are SSRIs and I take too many of those already...
Posted 4/1/2016 2:15 AM (GMT 0)
SSRI's are antidepressants not muscle relaxers. It stands for Selective Serotonin Reuptake Inhibitor. I do not take antidepressants but I do take a muscle relaxer called Robaxin (methocarbomol).

Sherrine
Posted 4/1/2016 2:46 AM (GMT 0)
You're right Sherrine, my bad. I was thinking some were like amitriptyline (tricyclic anti-d) which is sometimes prescribed as a relaxant. Several can, though, contribute to Serotonin Syndrome which must be what I was thinking.

The one Docs offer most often to me (and have some in cabinet) is Cyclobenzaprine, brand name Flexeril, which is "used off-label" for fibro. It does help, but doesn't work so well with continued use (for me anyway). Great to hear Robaxin is helping you. I'll ask my Doc about it and maybe give it a try.
Posted 4/2/2016 4:11 PM (GMT 0)
Hello,

Of the 30+ symptoms I've had since this all started, the only ones that are consistent are pain, fatigue, vision problems, burning hands and morning stiffness/pain. It takes me at least an hour before I'm "normal" and able to function. I looked up "Yoga for Lupus" and "Fibromyalgia exercise" on YouTube. I try to do one or two of those a day. It helps especially after I get out of bed.

As far as not accepting the fibro dx. I'm the poster child for that. I refused to believe a 30 year old man could have fibro. I saw 40+ docs in 2 years and made it all the way to the Mayo Clinic. They said I had fibro, optic neuritis and brain damage. (Always nice to hear) They don't know what caused the brain damage or if it will get worse but they don't think so. They attribute all of my issues to Fibo, minus the vision problems from the optic neuritis. After 40 docs I just said "fine, I give up, it's fibro" and just moved on. I don't miss spending all my time in doc offices so it's fine.

Not to sound to hippy dippy, but we all have our own journey with this thing. Only you can decide if/when it's time to accept a fibro dx. Keep reading the posts here and I think you'll start to see a lot of people are going through the same things you are.

I hope you have a good day today,

A
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