Internal buzzing non-stop; muscle twitches

I am a 43 year old female. I have had perfect health my whole life.

I am buzzing inside like crazy for three weeks. It evolved into twitches and buzzing in my right foot. I had the hardest time sleeping and eventually got completely panicked. I ended up in the ER with clean labs and clean X-ray of abdomen and lower spine. The vibration, buzzing, tremor feels like it is in my lower abdomen, spine or pelvis and is completely non-stop. They put me on Flexiril, which did nothing. Now they have put me on Lyrica and .5 Ativan at bedtime, which helped a little by making me drowsy at night encough to get intermittent sleep. It has done nothing to take away the internal buzz or twitches. I feel like the buzzing is moving up my neck. I am so concerned about this progressing into ticks or jerks.

I have been to the neurologist who did an EEG and said that there is a 90-95% chance it is not ALS. She did some clinical tests, as well. I had one nerve in my right leg that had damage, but she thought it was from a prior injury and said the rest of the test was in normal limits for muscles and nerves. I am waiting on blood tests for Lyme disease and my B and RH levels.

I am trying to stay cool, but this is consuming all of my thoughts until we have some answers. I also had a non-contrast brain Mri, which showed the preliminary results as normal. My primary care physician thinks this could be fibromyalgia or benign fasciculation syndrome. He said if the Lyrica doesn't stop this, he is recommending lumbar puncture. I am not sure what he is looking for with this.

Does anyone have any experience with this? Does Lyrica help over time? Any ideas that it could be something else? Really searching for what is causing all of this. Would give a whole lot of money to go back to feeling normal.

Post Edited (Buzzing1) : 4/23/2016 9:47:34 AM (GMT-6)

Hi Buzzing 1:

It is good that your Doctors are being so thorough.

I have buzzing in my hands but nowhere else. I do have stomach issues. The buzzing for me may be from the Carpal Tunnel in my wrists. The Carpal Tunnel in my wrists has been diagnosed for me. Sometimes my nerves jump. It has happened in my legs and stomach.

Having patience while your Doctor's try to determine what is happening is difficult, but necessary.

I was on Lyrica for a couple years. I was taken off due to weight gain. I did not find that it caused a whole lot of side effects. I have been very aware of my nervous system for a long time. Sometimes I would feel the meds effect on my nerves. It never totally stopped my pain. You are not mentioning pain, I hope it stays that way for you. The buzzing in my hands has started after my treatment with Lyrica but I did have symptoms before. I use wrist braces at night for the Carpal Tunnel. I have had 2 MRIs done on my head as I have chronic daily headaches. The MRIs both showed foci in white matter. It was suggested that they did not look like those seen in MS patients but is seen in Migraine patients.

Glad that they are checking your blood for various things.

Hope you get some answers.

Loring

Osteoarthritis in Multiple Joints, Fibromyalgia, Neuralgia, Complex Regional Pain Syndrome III, Daily Chronic Headaches, Irritable Bowel, Hard of Hearing...

I was diagnosed with fibromyalgia in 2010. The internal tremors began in 2012. Mine are in the back of my neck and inside my head. The buzzing used to start and stop, now I feel it continuously whenever I am at rest. My neurologist has tried many different medications. I am trying gabapentin for the second time. I gained weight and quit it the first time I tried it about a year ago. My doctors think it's linked to the central nervous system and fibromyalgia. I have a lot of fibromyalgia pain through out my body and I can tolerate pain much easier than tremors. Xanax does calm them. I don't like being dependent on medications.