Hi scoobymummy: It sure sounds to me like you have all the bases covered. Good for you for demanding more help and having the spunk to do it! I really like that you're being proactive and doing all you can to get more help. Hopefully, you have good insurance coverage. Testing, unfortunately, can really add up fast, financially. You likely already have found that out.
I can't think offhand of anything else you should ask for. It's really worth it to keep searching for answers until you're satisfied everything has been covered. We may not ever find a cure for fibro, but it's so good to exhaust every option available to make our lives better and yes, to demand more help if we need to.
Wish you the very best!