HealingWell
Search Close Search
☰

why would ANA appear and disappear? do pressure points do that too?

Support Forums
>
Fibromyalgia
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 7/25/2008 7:18 PM (GMT 0)
Seeing the doc on Tuesday and thought surely someone here would have an answer so I can ask an intelligent question of her.

Why would Anti Nuclear Antibodies appear in bloodwork one time, then be gone a couple of years later?  Is this customary behavior for ANA? 

Also, are pressure points sensitive all the time?  I have two spots on my neck/collarbone area that send me through the roof if they are touched just right.  A woman in my church said a demon had ahold of me!  I don't take that literally, even though I think she meant it that way . . . but maybe figuratively.  

Other points I don't know how to check (or even if the neck ones are in the right place).  Do pressure points come and go depending upon whether I am having a good day or bad day?  I just don't want her to say something like, your ANA is negative (or) the pressure points are not there so nothing is wrong, when it could just mean nothing is flaring up at the moment.

~Sue

Posted 7/25/2008 11:12 PM (GMT 0)
Hey, Sue!  If the woman in your church was right, that means we are all, on this forum, demon possessed!  devil    I know some think I am!  tongue

 

My pressure points have come and gone.  If I'm in a flare they are worse.  They seem to move around, depending where my pain is that day.

 

I don't really know much about the ANA testing so I can't help you there.

 

Sherrine

Posted 7/26/2008 1:57 AM (GMT 0)
Last time I went to the doctor's I just about hit the roof everytime he hit a pressure point. Yesterday, I was only sensitive to 3 out of the 12 I had. I juts asked that very same question, adn Sherrine came to my rescue! Good luck at your appointment, let us know how it goes :)
Posted 7/26/2008 2:04 AM (GMT 0)
Yeah, preasure points definetly move around and/or, are more sensitive some days than other. ANA definetly changes with time. I can't explain why but it does.
Posted 7/26/2008 2:18 AM (GMT 0)
Yep, Sj is right about the ANA thing.  Mine was positive at 1:1280 when i was diagnosed with lupus.  Then 4 years later it was negative, now it's positive again.  All depends on if those antibodies are active and present.  I don't really have an explanation either, LOL.... Autoimmune function is wacko-bizzaro. confused

My tender points are always there, but I have pain elsewhere that moves around.  But my pressure points have never gone away. I guess it's a bit different for every person.

Posted 7/26/2008 2:46 AM (GMT 0)
Hmm, that answers my question, I think. It is quite confusing, isn't it?!
Posted 7/26/2008 5:29 AM (GMT 0)
my rhuemy suspected that i had scleroderma and lupus because of some tale-tell rashes....i had the ANA test and it was 'inconclusive"???? what the heck? i might have lupus and i might not....then i did some research....the anitinuclear antibody test is only 50% correct most of the time....that would mean that you can have lupus or RA and the test wouldn't show it half the time...so, why wouldn't it be plausible that it would show that you do not have it half the time, even when you do? i think it is the only halfway viable testing strategy they have, so they use it for diagnostics....
Posted 7/26/2008 3:39 PM (GMT 0)
Yes, fibro is confusing.  That's why it takes so long for a diagnosis!  You want to rule out other things first.

 

Sherrine

Posted 7/26/2008 4:32 PM (GMT 0)
My head is spinning around and I'm spewing split pea soup. devil For the most part my tenderpoints stay sore, sadly. But there are a lot of symptoms that I've never had, like stiffness. The list of symptoms is what people have experienced but it doesn't mean everyone has them all.

 

It seems lupus can be confusing also. My oldest son was telling me about a friend of their's that was dxd with lupus, even had some kind of biopsy that showed lupus. She went to a specialist and all the test came back negative for lupus. I have met this lady and she is such a sweetheart and will keep up with what they find with her. I'm curious to see if she is dxd with fibro actually.

 

The human body, what a puzzle.

 

luv and hugs

Marlee

Posted 7/26/2008 8:03 PM (GMT 0)
I had never heard of anti nuclear antibodies. And what would be a nuclear antibody? Nuclear sounds like a bomb.

Now my head is spinning, there is so much that I am still learning about this DD. I quit getting my fibromyalgia network newsletter. I think that I will re sign up for it. I am getting out of the loop. I did order the fibromyalgia for dummies though. Maybe that will catch me up.LOL..

hugs, Karen
Posted 11/28/2014 6:08 PM (GMT 0)
My ANA was positive so my PCP sent me to a specialist. I was diagnosed with lupus and fibro. I ignored everything for three years than my PCP decided I needed to see a specialist cause my ANA was positive a lot more. He did lab work,it was neg so he told me I don't have lupus. This is the same doctor that told me he can't do anything more for me than What my PCP. So I stopped seeing him again and ignore the fact that he said I don't have lupus lol.
Posted 11/29/2014 12:08 AM (GMT 0)
Lupus CANNOT be diagnosed by lab work!!! I don't know where these Drs come from who think you can do that.

A positive ANA indicates you might have some sort of auto-immune disease, and you need to be fully examined by a Lupus-aware Rheumatologist. One way to find one in your area is to check with www.lupus.org, locate your local chapter, then contact them and ask which local Drs are active on their advisory board. These will be the Drs you want to see if you suspect any kind of auto-immune disease such as Lupus. These are the ONLY guys fully qualified to diagnose and treat Lupus!!!

Lupus is diagnosed by having 4 of 11 possible symptoms. You may or may not have a positive ANA, it is NOT a deciding factor.

Best wishes.
Posted Today 8:27 AM (GMT 0)
Lynnwood, there is a new test for Lupus called a double strand DNA test and the high end is a 9
unfortunately I'm a 13 so it's a definite I have it. Have no idea how long it's been out but it was done
on me last year and was a positive result.

I like to use massage for my trigger points in my spine and back. I can't afford a real one so I have
3 great grandkids who do it for me. I'm teaching them about the trigger points and how to dig into
them to disperse the pain....hurts when it's done but I feel much better afterwards.
✚ New Topic ✚ Reply